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Rare Disease Day
Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. The date is chosen because in leap years it is February 29, the rarest date. The European Organisation for Rare Diseases established the day in 2008 to raise awareness for unknown or overlooked illnesses. According to that organization, treatment for many rare diseases is insufficient, as are the social networks to support individuals with rare diseases and their families; furthermore, while there were already numerous days dedicated to individuals with specific diseases (such as AIDS, cancer, etc.), there had previously not been a day for representing those affected by rare diseases. In 2009, Rare Disease Day went global as the National Organization for Rare Disorders mobilized 200 rare disease patient advocacy organizations in the United States while organizatio ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] [Amazon] |
Rare Diseases
A rare disease is any disease that affects a small percentage of the population. In some parts of the world, the term orphan disease describes a rare disease whose rarity results in little or no funding or research for treatments, without financial incentives from governments or other agencies. Orphan drugs are medications targeting orphan diseases. Most rare diseases are genetic in origin and thus are present throughout the person's entire life, even if symptoms do not immediately appear. Many rare diseases appear early in life, and about 30% of children with rare diseases will die before reaching their fifth birthdays. Fields condition is considered the rarest known disease, affecting three known individuals, two of whom are identical twins. With four diagnosed patients in 27 years, ribose-5-phosphate isomerase deficiency is considered the second rarest. While no single number has been agreed upon for which a disease is considered rare, several efforts have been undertaken ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] [Amazon] |
Representation (politics)
Political representation is the activity of making citizens "present" in public policy-making processes when political actors act in the best interest of citizens according to Hanna Pitkin, Hanna Pitkin's ''Concept of Representation'' (1967). This definition of political representation is consistent with a wide variety of views on what representing implies and what the duties of representatives are. For example, representing may imply acting on the expressed wishes of citizens, but it may alternatively imply acting according to what the representatives themselves judge is in the best interests of citizens. And representatives may be viewed as individuals who have been authorized to act on the behalf of others, or may alternatively be viewed as those who will be held to account by those they are representing. Political representation can happen along different units such as social groups and area, and there are different types of representation such as substantive representation an ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] [Amazon] |
Derby Evening Telegraph
The ''Derby Telegraph'', formerly the ''Derby Evening Telegraph'', is a daily tabloid newspaper distributed in the Derby area of England. Stories produced by the ''Derby Telegraph'' team are published online under the Derbyshire Live brand. History In 1857, Richard Keene was publishing the ''Derby Telegraph'' every Saturday. His business was in the Irongate district of Derby. His family was to include Alfred John Keene who was a local painter whose work is displayed in the Derby Art Gallery. Another paper was first published in 1879 by Eliza Pike. It was known at the time as the ''Derby Daily Telegraph'' and was a four-page broadsheet which cost a halfpenny. Historical copies of the ''Derby Daily Telegraph'', dating back to 1879, are available to search and view in digitised form at The British Newspaper Archive. The first editor was W.J. Piper who stayed in the post until he died in 1918. He was succeeded by William Gilman who in 1927, saw the paper sold three times in a s ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] [Amazon] |
PR Newswire
PR Newswire is a distributor of press releases headquartered in Chicago. The service was created in 1954 to allow companies to electronically send press releases to news organizations, using teleprinters at first. The founder, Herbert Muschel, operated the service from his house in Manhattan for approximately 15 years. The business was eventually sold to Western Union and then United Newspapers of London. In December 2015, Cision Inc. announced it would acquire the company. On January 1, 2021, Cision formally merged PR Newswire into the company. History PR Newswire was founded in March 1954 by Herbert Muschel, who ran the business from his town house in New York City for the first 15 years of its operation. The company used telecommunications lines and teleprinters owned by Western Union to distribute content to a dozen news organizations in New York. Its first customer was Trans World Airlines. In 1963, Muschel recruited David Steinberg of the New York Herald Tribune to ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] [Amazon] |
Mystery Diagnosis
''Mystery Diagnosis'' is a television docudrama series that aired on Discovery Health Channel and OWN: Oprah Winfrey Network. Each episode focuses on two or more individuals who have struggled with obscure medical ailments, and their quest for a diagnosis. The program details the patients' and doctors' difficulty in pinpointing a diagnosis; often due to nonspecific symptoms, masquerading syndromes, the rarity of the condition or disease, or the patient's case being an unusual manifestation of said condition or disease. The series debuted on Discovery Health Channel in 2005, and was continued when the Oprah Winfrey Network replaced Discovery Health on January 1, 2011. The last season premiered January 5, 2011. Description Each episode tells the stories of two patients who experienced difficult to diagnose medical conditions. Each segment generally begins with a short description of the patient's life before they fell ill (or in the case of a young child, the parents' life before ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] [Amazon] |
The Discovery Channel
Discovery Channel, known as The Discovery Channel from 1985 to 1995, and often referred to as simply Discovery, is an American cable channel that is best known for its ongoing reality television shows and promotion of pseudoscience. It initially provided documentary television programming focused primarily on popular science, technology, and history, but by the 2010s had become increasingly dominated by programs that were reality television shows, promoted conspiracy theories, or advocated junk science. It is owned by Warner Bros. Discovery, a publicly traded company run by CEO David Zaslav. , Discovery Channel was the third most widely distributed subscription channel in the United States, behind now-sibling channel TBS and the Weather Channel; it is available in 409 million households worldwide, through its U.S. flagship channel and its various owned or licensed television channels internationally. , Discovery Channel is available to approximately 71,000,000 pay te ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] [Amazon] |
Evan Harris
Evan Leslie Harris (born 21 October 1965) is a British Liberal Democrat politician. He was the Member of Parliament (MP) for Oxford West and Abingdon from 1997 to 2010, losing his seat in the 2010 general election by 176 votes to Conservative Nicola Blackwood. Since 2011 he has been the joint executive director of Hacked Off, the campaign for an accountable press. Early life and career Evan Harris was born on 21 October 1965 in Sheffield, West Riding of Yorkshire, the son of South African Jewish parents (his father was a medical professor). He was brought up in Liverpool, where he had a state education at the Liverpool Blue Coat School. In 1984 he won a scholarship to the independent Harvard-Westlake School in Los Angeles, California, and later won a scholarship to attend Wadham College, Oxford, where he was awarded a Bachelor of Arts degree in physiology and a diploma in medical sociology. He completed his education at the Oxford Medical School, where he graduated BM BC ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] [Amazon] |
Physical Medicine And Rehabilitation
Physical medicine and rehabilitation (PM&R), also known as physiatry, and outside the United States as physical and rehabilitation medicine (PRM), is a branch of medicine that aims to enhance and restore functional ability and quality of life to people with physical impairments or disabilities. Officially established in the United States in the mid-1900s, PM&R has played a major role in patient recovery following several major epidemics and both world wars. Common medical conditions treated by PM&R physicians include spinal cord injury, brain injury, musculoskeletal injury, stroke, pain, and spasticity from muscle, ligament, or nerve damage. PM&R physicians lead rehabilitation teams in inpatient and outpatient settings and are trained in medication management, electrodiagnosis, and targeted injections. A physician having completed training in this field may be referred to as a physiatrist. Scope of the field Physical medicine and rehabilitation encompasses a variety o ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] [Amazon] |
Therapy
A therapy or medical treatment is the attempted remediation of a health problem, usually following a medical diagnosis. Both words, ''treatment'' and ''therapy'', are often abbreviated tx, Tx, or Tx. As a rule, each therapy has indications and contraindications. There are many different types of therapy. Not all therapies are effective. Many therapies can produce unwanted adverse effects. ''Treatment'' and ''therapy'' are often synonymous, especially in the usage of health professionals. However, in the context of mental health, the term ''therapy'' may refer specifically to psychotherapy. Semantic field The words ''care'', ''therapy'', ''treatment'', and ''intervention'' overlap in a semantic field, and thus they can be synonymous depending on context. Moving rightward through that order, the connotative level of holism decreases and the level of specificity (to concrete instances) increases. Thus, in health-care contexts (where its senses are always nonc ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] [Amazon] |
Medical Diagnosis
Medical diagnosis (abbreviated Dx, Dx, or Ds) is the process of determining which disease or condition explains a person's symptoms and signs. It is most often referred to as a diagnosis with the medical context being implicit. The information required for a diagnosis is typically collected from a history and physical examination of the person seeking medical care. Often, one or more diagnostic procedures, such as medical tests, are also done during the process. Sometimes the posthumous diagnosis is considered a kind of medical diagnosis. Diagnosis is often challenging because many signs and symptoms are nonspecific. For example, redness of the skin ( erythema), by itself, is a sign of many disorders and thus does not tell the healthcare professional what is wrong. Thus differential diagnosis, in which several possible explanations are compared and contrasted, must be performed. This involves the correlation of various pieces of information followed by the recognition and d ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] [Amazon] |
Preventive Healthcare
Preventive healthcare, or prophylaxis, is the application of healthcare measures to prevent diseases.Hugh R. Leavell and E. Gurney Clark as "the science and art of preventing disease, prolonging life, and promoting physical and mental health and efficiency. Leavell, H. R., & Clark, E. G. (1979). Preventive Medicine for the Doctor in his Community (3rd ed.). Huntington, NY: Robert E. Krieger Publishing Company. Disease and disability are affected by environmental factors, genetic predisposition, disease agents, and Lifestyle disease, lifestyle choices, and are dynamic processes that begin before individuals realize they are affected. Disease prevention relies on anticipatory actions that can be categorized as primal, primary, secondary, and tertiary prevention. Each year, millions of people die of preventable causes. A 2004 study showed that about half of all deaths in the United States in 2000 were due to preventable behaviors and exposures. Leading causes included cardiovascul ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] [Amazon] |
