The North American Association of Central Cancer Registries, Inc. (NAACCR), established in 1987, is a collaborative
umbrella organization
An umbrella organization is an association of (often related, industry-specific) institutions who work together formally to coordinate activities and/or pool resources. In business, political, and other environments, it provides resources and ofte ...
for
cancer
Cancer is a group of diseases involving abnormal cell growth with the potential to invade or spread to other parts of the body. These contrast with benign tumors, which do not spread. Possible signs and symptoms include a lump, abnormal b ...
registries, governmental agencies, professional associations, and private groups in North America interested in enhancing the quality and use of
cancer registry
A cancer registry is a systematic collection of data about cancer and tumor diseases. The data are collected by Cancer Registrars. Cancer Registrars capture a complete summary of patient history, diagnosis, treatment, and status for every cancer ...
data.
All central cancer registries in the United States and Canada are members.
Organizational mission
The North American Association of Central Cancer Registries, Inc. is a professional organization that develops and promotes uniform data standards for cancer registration; provides education and training; certifies population-based registries; aggregates and publishes data from central cancer registries; and promotes the use of cancer surveillance data and systems for cancer control and epidemiologic research,
public health
Public health is "the science and art of preventing disease, prolonging life and promoting health through the organized efforts and informed choices of society, organizations, public and private, communities and individuals". Analyzing the det ...
programs, and patient care to reduce the burden of cancer in North America.
Leadership and committees
NAACCR is governed by a ten-member board of directors.
The NAACCR Executive Director is an ex-officio member of the board. NAACCR members participate in five steering committees, several special committees, and temporary ad hoc committees which help drive much of the association's work.
These include:
Steering committees:
* Standardization and Registry Development Steering Committee
* Research and Data Use Steering Committee
* Communications Steering Committee
* Professional Development Steering Committee
* Strategic Planning and Alliances Steering Committee
Sponsoring member organizations
NAACCR is sponsored by eight member organizations, which participate in quarterly Sponsoring Member Organization meetings and provide input on NAACCR's cancer surveillance activities:
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American Cancer Society
The American Cancer Society (ACS) is a nationwide voluntary health organization dedicated to eliminating cancer. Established in 1913, the society is organized into six geographical regions of both medical and lay volunteers operating in more than ...
*
American College of Surgeons Cancer Programs
American(s) may refer to:
* American, something of, from, or related to the United States of America, commonly known as the "United States" or "America"
** Americans, citizens and nationals of the United States of America
** American ancestry, pe ...
*
Canadian Partnership Against Cancer
*
Centers for Disease Control and Prevention
The Centers for Disease Control and Prevention (CDC) is the national public health agency of the United States. It is a United States federal agency, under the Department of Health and Human Services, and is headquartered in Atlanta, Georgi ...
*
College of American Pathologists
The College of American Pathologists (CAP) is a member-based physician organization founded in 1946 comprising approximately 18,000 board-certified pathologists. It serves patients, pathologists, and the public by fostering and advocating ...
*
National Cancer Institute
The National Cancer Institute (NCI) coordinates the United States National Cancer Program and is part of the National Institutes of Health (NIH), which is one of eleven agencies that are part of the U.S. Department of Health and Human Services. ...
*
National Cancer Registrars Association
*
Public Health Agency of Canada
The Public Health Agency of Canada (PHAC; french: Agence de la santé publique du Canada, ASPC) is an agency of the Government of Canada that is responsible for public health, emergency preparedness and response, and infectious and chronic dis ...
Main activities
Cancer data standards
One of NAACCR's first goals was to achieve consensus on cancer registration standards among the many standard-setting organizations in the United States and Canada, in order to facilitate compilation and comparison of information across different registries. Today, nearly all registries in North America have adopted the NAACCR consensus standards. NAACCR updates these standards annually to meet the changing needs of the registry community.
Cancer research
Every year, NAACCR issues a call for data from its registry members. These data are evaluated for accuracy and compiled into analytic files to produce CINA, an annual statistical monograph of cancer incidence in the United States and Canada; CINA+ Online, an online query system of cancer incidence data for the previous five years from selected member registries; and CINA Deluxe, a data file for NAACCR researchers to conduct cancer surveillance systems.
NAACCR also collaborates with other cancer organizations to produce the Annual Report to the Nation on the Status of Cancer.
Education and training
In order to develop and maintain the skills and knowledge of cancer reporters in North America, NAACCR creates and releases training workshops, resource materials, and continuing education opportunities. These include online
webinar
Web conferencing is used as an umbrella term for various types of online conferencing and collaborative services including webinars (web seminars), webcasts, and web meetings. Sometimes it may be used also in the more narrow sense of the peer-le ...
s, in-person workshops, scholarships and grants, and other resources.
Since its inception, NAACCR has also hosted an annual meeting, focusing on a different theme each year.
References
External links
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{{DEFAULTSORT:North American Association Of Central Cancer Registries
Cancer organizations based in the United States
Medical and health organizations based in Illinois