Nataline Mary Sarkisyan (July 10, 1990 – December 20, 2007) was an American teenager with recurrent
leukemia
Leukemia ( also spelled leukaemia and pronounced ) is a group of blood cancers that usually begin in the bone marrow and result in high numbers of abnormal blood cells. These blood cells are not fully developed and are called ''blasts'' or ' ...
. Her case became part of the
health care reform debate in the United States
The healthcare reform debate in the United States has been a political issue focusing upon increasing medical coverage, decreasing costs, insurance reform, and the philosophy of its provision, funding, and government involvement.
Details
Du ...
in 2007 when
Cigna HealthCare denied coverage for a
liver transplant
Liver transplantation or hepatic transplantation is the replacement of a Liver disease, diseased liver with the healthy liver from another person (allograft). Liver transplantation is a treatment option for Cirrhosis, end-stage liver disease and ...
operation. The company later reversed its decision after a great deal of media attention to her story, but Sarkisyan died hours later.
[Flower, Joe]
Healthcare Beyond Reform: Doing It Right for Half the Cost
p. 193[Chen, Pauline W. (6 January 2011)]
''The New York Times
''The New York Times'' (''the Times'', ''NYT'', or the Gray Lady) is a daily newspaper based in New York City with a worldwide readership reported in 2020 to comprise a declining 840,000 paid print subscribers, and a growing 6 million paid ...
''
Background
Sarkisyan was born to an Armenian-American family. She was diagnosed with leukemia at age 14. She was covered under her father's health insurance, through his employer, Mercedez-Benz. The employer plan was administered by Cigna HealthCare. During her treatment for leukemia, her liver deteriorated.
Sarkisyan's doctors at the UCLA Medical Center told the family and Cigna that they recommended a
liver transplant
Liver transplantation or hepatic transplantation is the replacement of a Liver disease, diseased liver with the healthy liver from another person (allograft). Liver transplantation is a treatment option for Cirrhosis, end-stage liver disease and ...
, and patients in similar circumstances have a six-month survival rate of 65%. Different doctors gave different estimates of the likelihood of success. Dr. John Roberts, chief of the transplant service at
UC San Francisco
The University of California, San Francisco (UCSF) is a public land-grant research university in San Francisco, California. It is part of the University of California system and is dedicated entirely to health science and life science. It condu ...
(not the transplant center treating Sarkisyan), said that his center generally does not accept a patient without a 50% or greater five-year survival rate. Dr. Goran Klintmalm, chief of the Baylor Regional Transplant Institute in
Dallas
Dallas () is the List of municipalities in Texas, third largest city in Texas and the largest city in the Dallas–Fort Worth metroplex, the List of metropolitan statistical areas, fourth-largest metropolitan area in the United States at 7.5 ...
, said this particular operation was a "very high-risk transplant," but that he would consider the same operation on a similar patient. On December 11, 2007, Cigna rejected the request for coverage for the liver transplant. Sarkisyan's doctors at UCLA, including the head of its transplant unit, wrote a letter to protest that the treatment proposed was neither experimental nor unproven and called on Cigna to urgently review its decision.
Cigna HealthCare refused to pay for treatment by citing policy provisions which do not cover services considered experimental, investigational and/or unproven to be safe and/or effective for the patient. Cigna said that it had no financial stake in the decision because it only administered the insurance plan and would not bear the cost of any operation. The cost of a liver transplant and one year of follow-up care was $450,000 in 2005. UCLA declined two livers while waiting for insurance approval from Cigna. Ms. Sarkisyan's family was also informed that they could proceed with the transplant if they could make a down-payment of $75,000.
Among the groups who publicly spoke out against Cigna's decision was the
California Nurses Association/National Nurses Organizing Committee.
[Prosono, Marvin]
'Bystander Sociology' and the Sonderbehandlung of the Social
in ''The Shape of Sociology for the 21st Century: Tradition and Renewal'', at p. 273 (2010)
Wendell Potter
Wendell Potter (born July 16, 1951) is an American advocate for health insurance payment reform, ''New York Times'' bestselling author, and former health insurance industry communications director. A critic of HMOs and the tactics used by health ...
, a Cigna PR executive, advised the board to cover the cost of Sarkisyan's liver transplant as her situation became increasingly high profile. A flash point occurred during a protest for Sarkisyan in front of Cigna's offices in Glendale, California with live coverage from
CNN
CNN (Cable News Network) is a multinational cable news channel headquartered in Atlanta, Georgia, U.S. Founded in 1980 by American media proprietor Ted Turner and Reese Schonfeld as a 24-hour cable news channel, and presently owned by ...
. During the protest, the company agreed to reverse its decision and offered to pay for the transplant itself (independent of the insurance policy) when it made the exception to the policy. Potter advised a colleague from the regional office to inform the Sarkisyan family that Cigna would provide coverage, to which Hilda Sarkisyan, Nataline's mother, responded by jumping in joy and hugging supporters. Nataline Sarkisyan died a few hours after Cigna's reversal of its policy.
[Pilkington, Ed (21 December 2007)]
Insurer's U-turn too late to save life of transplant teenager
''The Guardian
''The Guardian'' is a British daily newspaper. It was founded in 1821 as ''The Manchester Guardian'', and changed its name in 1959. Along with its sister papers ''The Observer'' and ''The Guardian Weekly'', ''The Guardian'' is part of the Gu ...
''
Sarkisyan is buried at
Forest Lawn Memorial Park (Hollywood Hills)
Forest Lawn Memorial Park – Hollywood Hills is one of the six Forest Lawn cemeteries in Southern California. It is located at 6300 Forest Lawn Drive, Los Angeles, California 90068, in the Hollywood Hills neighborhood of Los Angeles.
Histor ...
.
Aftermath
Sarkisyan's family spoke out at a
New Hampshire
New Hampshire is a U.S. state, state in the New England region of the northeastern United States. It is bordered by Massachusetts to the south, Vermont to the west, Maine and the Gulf of Maine to the east, and the Canadian province of Quebec t ...
rally in support of Senator
John Edwards
Johnny Reid Edwards (born June 10, 1953) is an American lawyer and former politician who served as a U.S. senator from North Carolina. He was the Democratic nominee for vice president in 2004 alongside John Kerry, losing to incumbents George ...
' presidential campaign on January 6, 2008, based on his advocacy of reforming and overhauling the US health care system.
[Burling, Stracey (13 January 2008)]
When a health insurer says it won't pay Ethicists and economists say a 17-year-old girl's case points up complex questions on rationing resources
''The Philadelphia Inquirer
''The Philadelphia Inquirer'' is a daily newspaper headquartered in Philadelphia, Pennsylvania. The newspaper's circulation is the largest in both the U.S. state of Pennsylvania and the Delaware Valley metropolitan region of Southeastern Pennsy ...
''
Cigna PR Executive
Wendell Potter
Wendell Potter (born July 16, 1951) is an American advocate for health insurance payment reform, ''New York Times'' bestselling author, and former health insurance industry communications director. A critic of HMOs and the tactics used by health ...
resigned shortly after Sarkisyan's death and
blew the whistle
A whistleblower (also written as whistle-blower or whistle blower) is a person, often an employee, who reveals information about activity within a private or public organization that is deemed illegal, immoral, illicit, unsafe or fraudulent. Whi ...
on the health insurance industry.
Lawsuit
Sarkisyan's family retained attorney
Mark Geragos
Mark John Geragos (born October 5, 1957) is an American criminal defense lawyer and the managing partner of Geragos & Geragos, in Los Angeles.
Early life and education
Geragos was born in Los Angeles, California, where he attended Flintridge Pr ...
to sue Cigna, and requested that
Los Angeles County District Attorney
The District Attorney of Los Angeles County is in charge of the office that prosecutes felony and misdemeanor crimes that occur within Los Angeles County, California, United States. The current district attorney (DA) is George Gascón.
Some mi ...
Steve Cooley
Stephen Lawrence Cooley (born May 1, 1947) is an American politician and prosecutor. He was the Los Angeles County District Attorney from 2000 to 2012. Cooley was re-elected in 2004 and again in 2008.
In 2010, Cooley won the Republican nominat ...
file murder charges against the insurer.
[(22 December 2007)]
Attorney Wants Criminal Charges Against Insurer
''ABC News''[Hernandez, Miriam (21 December 2007)]
Teen's family plans to sue health insurer
''KABC-TV''[(21 December 2007)]
''USA Today
''USA Today'' (stylized in all uppercase) is an American daily middle-market newspaper and news broadcasting company. Founded by Al Neuharth on September 15, 1982, the newspaper operates from Gannett's corporate headquarters in Tysons, Virgini ...
'' The case was thrown out due to a ''Pilot Life Ins. Co. v. Dedeaux'', 1987 U.S. Supreme Court ruling shielding employer-paid healthcare plans from damages over their coverage decisions.
See also
*
Health care in the United States
The United States far outspends any other nation on health care, measured both in ''per capita'' spending and as a percentage of GDP. Despite this, the country has significantly worse healthcare outcomes when compared to peer nations. The Uni ...
References
External links
*
{{DEFAULTSORT:Sarkisyan, Nataline
Healthcare reform in the United States
Social problems in medicine
Corruption in the United States
December 2007 events in the United States