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Disability studies is an academic discipline that examines the meaning, nature, and consequences of
disability Disability is the experience of any condition that makes it more difficult for a person to do certain activities or have equitable access within a given society. Disabilities may be Cognitive disability, cognitive, Developmental disability, dev ...
. Initially, the field focused on the division between "impairment" and "disability," where impairment was an impairment of an individual's mind or body, while disability was considered a
social construct Social constructionism is a theory in sociology, social ontology, and communication theory which proposes that certain ideas about reality, physical reality arise from collaborative consensus, instead of pure observation of said reality. The ...
. This premise gave rise to two distinct models of disability: the
social Social organisms, including human(s), live collectively in interacting populations. This interaction is considered social whether they are aware of it or not, and whether the exchange is voluntary or not. Etymology The word "social" derives from ...
and
medical Medicine is the science and practice of caring for a patient, managing the diagnosis, prognosis, prevention, treatment, palliation of their injury or disease, and promoting their health. Medicine encompasses a variety of health care practic ...
models of disability. In 1999 the social model was universally accepted as the model preferred by the field. However, in recent years, the division between the social and medical models has been challenged. Additionally, there has been an increased focus on interdisciplinary research. For example, recent investigations suggest using "cross-sectional markers of stratification" may help provide new insights on the non-random distribution of risk factors capable of acerbating disablement processes. Disability studies courses include work in disability history, theory, legislation, policy, ethics, and the arts. However, students are taught to focus on the lived experiences of individuals with disabilities in practical terms. The field is focused on increasing individuals with disabilities access to
civil rights Civil and political rights are a class of rights that protect individuals' freedom from infringement by governments, social organizations, and private individuals. They ensure one's entitlement to participate in the civil and political life of ...
and improving their
quality of life Quality of life (QOL) is defined by the World Health Organization as "an individual's perception of their position in life in the context of the culture and value systems in which they live and in relation to their goals, expectations, standards ...
. Disability studies emerged in the 1980s primarily in the US, the UK, and Canada. In 1986, the Section for the Study of Chronic Illness, Impairment, and Disability of the Social Science Association (United States) was renamed the
Society for Disability Studies The Society for Disability Studies is an international academic network of disability studies practitioners. It often abbreviates its name to SDS, though that abbreviation continues to be used by academics and political scientists to describe the ...
. The first US disabilities studies program emerged in 1994 at
Syracuse University Syracuse University (informally 'Cuse or SU) is a Private university, private research university in Syracuse, New York. Established in 1870 with roots in the Methodist Episcopal Church, the university has been nonsectarian since 1920. Locate ...
. The first edition of the Disabilities Studies Reader (one of the first collections of academic papers related to disability studies) was published in 1997. The field grew rapidly over the next ten years. In 2005, the
Modern Language Association The Modern Language Association of America, often referred to as the Modern Language Association (MLA), is widely considered the principal professional association in the United States for scholars of language and literature. The MLA aims to "st ...
established disability studies as a "division of study". While Disability Studies primarily emerged in the US, the UK, and Canada, disability studies were also conducted in other countries through different lens. For instance, Germany looks at Queer Disability Studies since the beginning of the early 20th century. The Disability Studies in Germany are influenced by the written literary works of feminist sexologist who study how being disabled affects one's sexuality and ability to feel pleasure. In Norway, Disability Studies are focused in the literary context. A variation emerged in 2017 with the first Accessibility Studies program at Central Washington University with an interdisciplinary focus on social justice, universal design, and international Web Accessibility Guidelines (WAG3) as a general education knowledge base.


History

Universities have long studied disabilities from a clinical perspective. In 1986, the Section for the Study of Chronic Illness, Impairment, and Disability of Social Science Association was renamed the
Society for Disability Studies The Society for Disability Studies is an international academic network of disability studies practitioners. It often abbreviates its name to SDS, though that abbreviation continues to be used by academics and political scientists to describe the ...
and its journal ''
Disability Studies Quarterly The Ohio State University Libraries are the collective libraries of the Ohio State University and its satellite campuses. This system welcomes Ohio State faculty, students, visiting scholars and the general public to study and research. It includes ...
'' was the first journal in disability studies. The first US disabilities studies program emerged in 1994 at
Syracuse University Syracuse University (informally 'Cuse or SU) is a Private university, private research university in Syracuse, New York. Established in 1870 with roots in the Methodist Episcopal Church, the university has been nonsectarian since 1920. Locate ...
. However, courses and programs were very few. In the 1997 first edition of the ''Disability Studies Reader'', Lennard J. Davis wrote that "it had been virtually impossible to have someone teaching about disability within the humanities". In the second edition, written ten years later, he writes that "all that has changed", but "just because disability studies is on the map, does not mean that is easy to find". Still the field continued to grow throughout the 2000s. In 2009 ''Disability Studies Quarterly'' published ''A Multinational Review of English-language Disability Studies Degrees and Courses''. They found that from 2003 to 2008 the number of disability studies stand-alone studies programs in the US, UK, Australia, New Zealand, and Canada grew from 56 to 108 and the number of degree-granting programs grew from 212 to 420. A total of 17 degrees in disability studies were offered, with 11 programs in the US, 2 in the UK, 3 in Canada, and 1 in Australia. The 2014 article "Disability Studies: A New Normal" in ''
The New York Times ''The New York Times'' (''the Times'', ''NYT'', or the Gray Lady) is a daily newspaper based in New York City with a worldwide readership reported in 2020 to comprise a declining 840,000 paid print subscribers, and a growing 6 million paid ...
'' suggests that the expansion in disability studies programs is related to the 1990 passage of the
Americans with Disabilities Act The Americans with Disabilities Act of 1990 or ADA () is a civil rights law that prohibits discrimination based on disability. It affords similar protections against discrimination to Americans with disabilities as the Civil Rights Act of 1964 ...
(ADA). Those raised after the passage of the ADA have entered colleges and the workforce, as Disability Studies has grown. In a 2014 article, ''Disability Studies Quarterly'' published an analysis on the relationships between student run groups and disability studies, from 2008 to 2012. Their article analyzes groups at four different universities and describes how professors have incorporated student activism into their curriculum and research.


Definitions

According to the transnational
Society for Disability Studies The Society for Disability Studies is an international academic network of disability studies practitioners. It often abbreviates its name to SDS, though that abbreviation continues to be used by academics and political scientists to describe the ...
:


Disability studies and medical humanities

The
social model of disability The social model of disability identifies systemic barriers, derogatory attitudes, and social exclusion (intentional or inadvertent), which make it difficult or impossible for disabled people to attain their valued functionings. The social mode ...
is expanded to chronic illness and to the broader work of the
medical humanities ''Medical Humanities'' is a quarterly peer-reviewed academic journal covering the field of medical humanities. The journal presents the international conversation around medicine and its engagement with the humanities and arts, social sciences, hea ...
. Practitioners are working towards improving the healthcare for disabled people through disability studies. This multi-disciplinary field of inquiry draws on the experiences and perspectives of people with disabilities to address discrimination.
Infinite Ability Infinite Ability is a special interest group on disability within the Medical Humanities Group of the University College of Medical Sciences (University of Delhi). It was founded by Dr Satendra Singh in 2011. The main purpose behind the form ...
has done some preliminary work in
India India, officially the Republic of India (Hindi: ), is a country in South Asia. It is the seventh-largest country by area, the second-most populous country, and the most populous democracy in the world. Bounded by the Indian Ocean on the so ...
to introduce disability studies to medical students. The medical humanities movement advocates use of literature in exploring illness, from practitioner and patient perspectives, with
graphic medicine Graphics () are visual images or designs on some surface, such as a wall, canvas, screen, paper, or stone, to inform, illustrate, or entertain. In contemporary usage, it includes a pictorial representation of data, as in design and manufacture, ...
as an emerging strategy that combines comics-style medium and illness narrative.


Intersectionality

Feminism Feminism is a range of socio-political movements and ideologies that aim to define and establish the political, economic, personal, and social equality of the sexes. Feminism incorporates the position that society prioritizes the male po ...
introduces the inclusion of
intersectionality Intersectionality is an analytical framework for understanding how aspects of a person's social and political identities combine to create different modes of discrimination and privilege. Intersectionality identifies multiple factors of adva ...
in disability studies. It focuses on
race Race, RACE or "The Race" may refer to: * Race (biology), an informal taxonomic classification within a species, generally within a sub-species * Race (human categorization), classification of humans into groups based on physical traits, and/or s ...
,
gender Gender is the range of characteristics pertaining to femininity and masculinity and differentiating between them. Depending on the context, this may include sex-based social structures (i.e. gender roles) and gender identity. Most cultures u ...
,
sexuality Human sexuality is the way people experience and express themselves sexually. This involves biological, psychological, physical, erotic, emotional, social, or spiritual feelings and behaviors. Because it is a broad term, which has varied ...
,
class Class or The Class may refer to: Common uses not otherwise categorized * Class (biology), a taxonomic rank * Class (knowledge representation), a collection of individuals or objects * Class (philosophy), an analytical concept used differentl ...
and other related systems of
oppression Oppression is malicious or unjust treatment or exercise of power, often under the guise of governmental authority or cultural opprobrium. Oppression may be overt or covert, depending on how it is practiced. Oppression refers to discrimination w ...
that can also intersect with having a disability. From a feminist standpoint, there is a large concern for grasping multiple positions and differences among social groups. Some research on intersectionality and disability has focused on the aspect of being part of two or more stigmatized groups and how these are contributing factors to multiple forms of harassment, the paradox known as "Double Jeopardy". In academic settings and practices such as Gender or Women's Studies the course work does not always highlight ideals of intersectionality and identity. But Sri Craven highlights the fact that in academia students and professors don't look at history in a culmination of the intersecting identities but rather focus in one perspective. Craven and his colleagues include identities such as disability both mental and physical in an alternative course description to get students and faculty to think about identity, oppression and struggle in a new way.


Race

Recent scholarship has included studies that explore the intersection between disability and race. Christopher Bell's work publicly challenged disability studies to engage with race, calling it "white disability studies". His posthumous volume on ''Blackness and Disability'' further developed his analysis. These works engage with issues of
neoliberal Neoliberalism (also neo-liberalism) is a term used to signify the late 20th century political reappearance of 19th-century ideas associated with free-market capitalism after it fell into decline following the Second World War. A prominent fa ...
economic oppression. The 2009 publication of
Fiona Kumari Campbell Fiona Kumari Campbell (born 1963) is a disability studies researcher and theorist, focusing on disability in relation to law, technology, advocacy, and desire. She is currently a Senior Lecturer in the School of Education and Social Work at t ...
's ''Contours of Ableism: The Production of Disability and Abledness'' signaled a new direction of research — studies in ableism, moving beyond preoccupations with disability to explore the maintenance of abledness in sexed, raced and modified bodies. A. J. Withers' work critiques the social model of disability because, among other things, it erases the experiences of BIPOC people, women, trans and queer people and puts forward a more radical model of disability. Similarly, recent work has focused on the intersections of race and ethnicity with disability in the field of education studies and has attempted to bridge
Critical Race Studies Critical race theory (CRT) is a cross-disciplinary examination, by social movement, social and Civil and political rights, civil-rights scholars and activists, of how law in the United States, laws, social and political movements, and media sh ...
with disability studies. Other contemporary works, such as literary studies conducted by critic
Sami Schalk Sami Schalk is an Associate Professor in the Department of Gender & Women's Studies at the University of Wisconsin - Madison. She was previously an Assistant Professor in the English Department at the University at Albany, SUNY. In 2019 she starte ...
explore the intersection of disability and race and the use of dis/ability as a metaphor within the genre of black women's
speculative fiction Speculative fiction is a term that has been used with a variety of (sometimes contradictory) meanings. The broadest interpretation is as a category of fiction encompassing genres with elements that do not exist in reality, recorded history, na ...
. Collectively, these works reflect an effort to deal with complex histories of marking racially "othered" bodies as physically, psychologically, or morally deficient, and traces this history of scientific racism to contemporary dynamics. Empirical studies show that minority students are disproportionately more likely to be removed from class or school for "behavioral" or academic reasons, and far more likely to be labeled with intellectual or learning disabilities. The authors propose a union of critical race and disability studies, DisCrit, as an intersectional approach designed to analyzing the interaction between ableism, sexism, and racism. In addition to work by individual scholars, disability studies organizations have also begun to focus on disability and race and gender. The Society for Disability Studies created the Chris Bell Memorial Scholarship to honor Bell's commitment to diversity in disability studies. Postsecondary disability studies programs increasingly engage with the intersectionality of oppression. The
University of Manitoba The University of Manitoba (U of M, UManitoba, or UM) is a Canadian public research university in the province of Manitoba. Several recent masters' student research papers at
York University York University (french: Université York), also known as YorkU or simply YU, is a public university, public research university in Toronto, Ontario, Canada. It is Canada's fourth-largest university, and it has approximately 55,700 students, 7,0 ...
focus on issues related to women with disabilities and people of African descent with disabilities.


Feminism

Feminism integrates the social and political aspects that makes a body oppressed while allowing empowerment to be present in acknowledging its culture. Scholars of Feminist Disability Studies include
Rosemarie Garland-Thomson Rosemarie Garland-Thomson is Professor of English at Emory University with a focus on disability studies and feminist theory. Her book ''Extraordinary Bodies'', published in 1997, is a founding text in the disability studies canon. Garland-Thomson ...
and
Alison Kafer Alison Kafer is an American academic specializing in feminist, queer, and disability theory. , she is an associate professor of feminist studies at the University of Texas, Austin. She is the author of the book ''Feminist, Queer, Crip''. Educ ...
.
Rosemarie Garland-Thomson Rosemarie Garland-Thomson is Professor of English at Emory University with a focus on disability studies and feminist theory. Her book ''Extraordinary Bodies'', published in 1997, is a founding text in the disability studies canon. Garland-Thomson ...
explains that these related systems of oppression pervades all aspects of culture by "its structuring institutions, social identities, cultural practices, political positions, historical communities, and the shared human experience of embodiment". Garland-Thomson further describes that "identity based critical enterprises have enriched and complicated our understandings of social justice, subject formation, subjugated knowledges and collective action". Feminism works towards
accessibility Accessibility is the design of products, devices, services, vehicles, or environments so as to be usable by people with disabilities. The concept of accessible design and practice of accessible development ensures both "direct access" (i. ...
for everyone regardless of which societal oppressive behavior makes them a minority. Although physical adjustments are most commonly fought for in disability awareness, psychological exclusion also plays a major role oppressing people with disabilities. The intersection of disability and feminism is more common in American history than we think yet it does not show up in media, museums or archives that are dedicated to feminist work. Rachel Corbman, a professor of Women's, Gender and Sexuality Studies at Stony Brook University In New York highlights how the influence of lesbian feminist organizations like the "''Disabled Lesbian Alliance (DLA)"'' are not represented in the archives of literature and documentation of events in the community. The DLA work close together to fight for visibility, accessibility and acceptance of individuals whether they are disabled, or lesbian or both. Corbman's article highlights the beginning of disability activism during the feminist movement of the 1970s and 80s and how the intersecting identities enticed new members and activists from across the country to join the cause. Other disability centered feminist organizations that are part of the feminist archives include the Lesbian Illness Support Group and Gay and Lesbian Blind (GLB).
Sara Ahmed Sara Ahmed (30 August 1969) is a British-Australian writer and scholar whose area of study includes the intersection of feminist theory, lesbian feminism, queer theory, affect theory, critical race theory and postcolonialism. Her seminal wor ...
elaborates the mental exclusiveness of privilege in "Atmospheric Walls", that there is an atmosphere that surrounds minority bodies which explains why an intersectionally privileged person could be made uncomfortable simply by being in the same room as a person of color, or in this case someone with a disability. Feminists and scholars also developed theories that put attention on the connection of gender and disability. Scholars like Thomas J. Gerschick argued that disability plays a big role on processing and experiencing gender, and people with disabilities often suffer stigmatization towards their gender, since their disabilities may make their body representation excluded by normative binary gender representation. Gerschick also argues that this stigmatization can affect the gendering process and self-representation of people with disabilities. Ellen Samuels explores
gender Gender is the range of characteristics pertaining to femininity and masculinity and differentiating between them. Depending on the context, this may include sex-based social structures (i.e. gender roles) and gender identity. Most cultures u ...
, queer sexualities, and disability. Feminists also look into how people with disabilities are politically oppressed and powerless. Abby L. Wilkerson argues that people with disabilities are politically powerless because they are often desexualized, and the lack of sexual agency leads to the lack of political agency. Wilkerson also indicates that the
erotophobia Erotophobia is a term coined by a number of researchers in the late 1970s and early 1980s to describe one pole on a continuum of attitudes and beliefs about sexuality. The model of the continuum is a basic polarized line, with erophobia (fear of ...
towards minority groups like people with disabilities further oppresses them, since it prevents these groups from gaining political power through sexual agency and power.


Gender and sexuality

At the intersection of disability, gender, and sexuality one finds crip theory. Crip theory exists as an interdisciplinary approach to critical disability theory. The term "crip theory" originates in Carrie Sandahl's article "Queering the Crip or Cripping the Queer?: Intersections of Queer and Crip Identities in Solo Autobiographical Performance". It was published in 2003 as part of a journal issue titled "Desiring Disability: Queer Theory Meets Disability Studies". Christopher Bell's ''Blackness and Disability''; and the work of
Robert McRuer Robert McRuer (born 1966) is an American theorist who has contributed to fields in transnational queer and disability studies. McRuer is known as being one of the founding scholars involved in forming the field of Disability studies#Gender and sexu ...
both explore
queerness ''Queer'' is an umbrella term for people who are not heterosexual or cisgender. Originally meaning or , ''queer'' came to be used pejoratively against those with same-sex desires or relationships in the late 19th century. Beginning in the lat ...
and disability. Since then many books and articles have been written on the topic. Each subsequent piece of scholarship dedicated to crip theory as a topic expands how crip theory is understood. *2006 ''Crip Theory: Cultural Signs of Queerness and Disability'' by Robert McRuer *2011 ''Feminist Disability Studies'' by Kim Q. Hall * 2012 ''Sex and Disability'' by Robert McRuer, Anna Mollow * 2013 ''Feminist, Queer, Crip'' by Alison Kafer *2018 ''Crip Times: Disability, Globalization, and Resistance'' by Robert McRuer *2018 ''Disability Studies and the Environmental Humanities: Toward an Eco-Crip Theory'' by Sarah Jaquette Ray, Jay Sibara, Stacy Alaimo *2019 ''The Matter of Disability: Materiality, Biopolitics, Crip Affect'' by David T. Mitchell, Susan Antebi, et al. Most of the literature above is written by individual authors in the United States but there is nothing on there from other countries that depicts disability and sexuality in the same context. Myren-Svelstad, a Norwegian scholar compares two deviant novels in Norway's society, Nini Roll Anker's ''Enken he Widow' written in 1932 and Magnhild Haalke's ''Allis sønn lli's Son' written in 1935. They both depict a queer man who is also disabled. The disability being depicted as someone whose mental capacity is significantly different than society's heteronormative view. These communities on their own are topics of numerous deliberations; however, they also often link in significance in many ways. The significance of the movements began to build momentum and most legal recognition in the 1980s. It was only in 1973 that the
American Psychiatric Association The American Psychiatric Association (APA) is the main professional organization of psychiatrists and trainee psychiatrists in the United States, and the largest psychiatric organization in the world. It has more than 37,000 members are involve ...
removed homosexuality from their list of mental disorders. In addition to this, it was about forty years later in 2013 that the ''Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition'' (
DSM-5 The ''Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition'' (DSM-5), is the 2013 update to the ''Diagnostic and Statistical Manual of Mental Disorders'', the taxonomic and diagnostic tool published by the American Psychiatric ...
) changed the listing of transgender to "gender dysphoria". One of the most notable circumstances where the case of these two minority rights come together was the court case ''
In re Guardianship of Kowalski ''In re Guardianship of Kowalski'', 478 N.W.2d 790 (Minn. Ct. App. 1991), is a Minnesota Court of Appeals case that established a lesbian's partner as her legal guardian after Sharon Kowalski became incapacitated following an automobile accid ...
'', in which an accident that occurred in 1983 left 36-year-old Sharon Kowalski physically disabled with severe brain injuries. The court granted guardianship of her to her homophobic parents who refused visitation rights to her long time partner, Karen Thompson. The court case lasted nearly ten years and was resolved by granting Thompson custody in 1991. This was a major victory in the realm of gay rights but also called to attention the validity of rights for those who identified under the queer and disabled spectrum. Numerous support groups emerged from necessity to create safe spaces for those identifying in these specific minority groups such as the founding of the Rainbow Alliance of the Deaf in 1977, the Lesbian Disabled Veterans of America group in 1996 which then became the Gay, Lesbian, Bisexual and Transgender Disabled Veterans of America, and the San Francisco Gay Amputees group in 2006. A 2012 study showed that disability was more common in LGBTQ individuals when compared to heterosexual peers. It was also shown that the LGBTQ group with disabilities were noticeably younger in age than the heterosexual group. In a 2014 study of intersecting identities found that "disabled women whether gay, straight, bisexual or otherwise identifying have a harder time finding romantic relationships due to their socioeconomic status and ability. Drummond and Brotman introduce the idea that the lesbian disabled community face many barriers because of discrimination in the form of ableism, homophobia, racism and more due to intersecting identities and interests. It is also a large topic of discussion to say that both groups have to undergo the same kind of "coming out" process in terms of their sexual identity, gender identity, and disability identity because of the lasting social stigma. "Coming out" through sexual identity, gender identity, and disability identity is one example of "Double Jeopardy", as they are part of more than one stigmatized group.
Eli Clare Eli Clare (born 1963) is an American writer, activist, educator, and speaker. His work focuses on queer, transgender, and disability issues. Clare was one of the first scholars to popularize the bodymind concept. He has written two books of creat ...
writes at the intersection of disability and transgender studies, namely as to how these disciplines can learn from each other. Similarly to how there is a 'coming out' for both transgender people and people with disabilities, there is a lack of bodily privacy both groups are faced with, primarily due to an over-medicalization of the body. Clare also works to make the distinction between bodily and medical truths, where one's diagnosis and medical treatment as a transgender or disabled person does not dictate their embodiment and how they navigate the world. Eventually, Clare reaches the idea of a disability politics of transness, which "delves into the lived experiences of our bodies, that questions the idea of normal and the notion of cure, that values self-determination, that resists shame and the medicalization of identity".
Queer studies Queer studies, sexual diversity studies, or LGBT studies is the education of topics relating to sexual orientation and gender identity usually focusing on lesbian, gay, bisexual, transgender, gender dysphoria, asexual, queer, questioning, inte ...
, which emerged from
women's studies Women's studies is an academic field that draws on feminist and interdisciplinary methods to place women's lives and experiences at the center of study, while examining social and cultural constructs of gender; systems of privilege and oppress ...
, brings light towards the different kind of oppression
queer ''Queer'' is an umbrella term for people who are not heterosexual or cisgender. Originally meaning or , ''queer'' came to be used pejoratively against those with same-sex desires or relationships in the late 19th century. Beginning in the lat ...
and
transgender A transgender (often abbreviated as trans) person is someone whose gender identity or gender expression does not correspond with their sex assigned at birth. Many transgender people experience dysphoria, which they seek to alleviate through tr ...
people with disabilities have. Queer studies are commonly associated with people with disabilities who identify as "Crip" and is commonly believed that queer politics must incorporate crip politics. Alison Kafer describes a first-person experience of identifying queer and crip both reappropriated terms in Kafer's ''Feminist Queer Crip''. Kafer describes the politics of the crip future and "an insistence on thinking these imagined futures – and hence, these lived presents - differently". Although many activists with disabilities find empowerment in appropriating the term crip, not all people with disabilities feel comfortable using that identity. There are many different terms used as an alternative to disability, for example Melwood, a nonprofit who uses the term "differing abilities", describes the label disability as "a limitation in the ability to pursue an occupation because of a physical or mental impairment; a disqualification, restriction or disadvantage and a lack of legal qualification to do something, was an inadequate or limiting 'label' for a cross section of people". Because the term disability has a history of inferiority, it is believed by many that substituting the term will help eliminate the
ableism Ableism (; also known as ablism, disablism (British English), anapirophobia, anapirism, and disability discrimination) is discrimination and social prejudice against people with Disability, disabilities or who are perceived to be disabled. Ableis ...
that is embedded within it. Susan Wendell describes ableism in society "as a structure for people who have no weakness". This also applies to anyone who has any intersectional disadvantages. Feminism identifies these disadvantages and strategizes how to deconstruct the system that supports marginalizing specific groups of people.


Queer/disabled invisibility and negativity

An aspect of disability studies that is not often talked about is that of the perception of seeing disabled individuals as invisible. Also known as "queer/disabled invisibility". In disability studies the individuals who are disabled who make it into academic course work are usually the ones who struggle not only with being disabled and facing ableistic norms of society but they also have to contend with other identities such as being queer, a woman or a person of another race other than the master race of caucasian in America. Queer/disabled invisibility can also come up in forms of negative perceptions about the way a disabled individual is being raised. For instance, queer mothers raising a disabled child are often viewed as the cause of the child's disability. Another example of queer and disabled negativity is highlighted in the life experiences of Josie a young woman who does not identify as a particular gender living with a lifelong illness and disability. This young woman describes how she experienced sexism, ableism, homophobia and transphobia in a number of ways at her university, the queer community and medical providers because of her disability. The discrimination the women in these examples is part of the heteronormative, ableistic perspective in societies around the world today but are rarely discussed in the literature or during Disability Studies courses.


Political economy and social class

Within class comes multiple avenues for intersectionality through disability. Disability looks different from a middle class, upper class, and lower class perspective, as well as through race, gender, and ethnicity. One's social class can contribute to when a person becomes disabled, rather it be sooner or later. For example, where there is poverty we will find disability. This poverty can include social, economic, and cultural poverty. Having a disability can contribute to poverty just as poverty can contribute to having a disability. People with disabilities are more likely to live in poverty and be unemployed than those who do not, resulting in lower socioeconomic status. Some scholars have argued that disability, as it is understood today, is interlocked with class and capitalism. Intellectual disability, as it is understood today, is the product of the industrial revolution as workers unable to keep up with fast-paced factory work were pathologized.


Criticism


Questioning the social model

The
International Association of Accessibility Professionals Founded on March 19, 2014, the International Association of Accessibility Professionals (IAAP) is a nonprofit organization headquartered in Atlanta, Georgia Georgia most commonly refers to: * Georgia (country), a country in the Caucasus region ...
recognizes six different models for conceptualizing disability: social, medical, cultural affiliation, economic, charity, and functional solutions. Once universally accepted in the field, the social model of disability has recently been challenged. In a 2014 ''Disability Studies Quarterly'' article, students involved in campus disability groups note that they actively seek cures for their chronic illnesses and "question the rejection of the medical model" of disability. The cultural affiliation model accepts the person's disability completely and uses it a point of pride in being associated with other people in a similar condition. The economic model recognizes the effect of bodily limitations on a person's ability to work, and there may be a need for economic support or accommodations for the person's disability while the charity model regards people with disabilities as unfortunate and in need of assistance from the outside, with those providing charity viewed as benevolent contributors to a needy population. The functional solutions model of disability is a practical perspective that identifies the limitations (or "functional impairments") due to disability, with the intent to create and promote solutions to overcome those limitations. The primary task is to eliminate, or at least reduce, the impact of the functional limitations of the body through technological or methodological innovation. The pragmatism of the functional solution model deemphasizes the sociopolitical aspects of disability, and instead prioritizes inventiveness and entrepreneurship. This is the prevailing opinion behind compliance literature that promotes
self-efficacy In psychology, self-efficacy is an individual's belief in their capacity to act in the ways necessary to reach specific goals. The concept was originally proposed by the psychologist Albert Bandura. Self-efficacy affects every area of human endea ...
and self-advocacy skills for people with disabilities preparing for transition to independent living. The social model has also been challenged for creating a false separation between disability and impairment as impairment, not just disability, is socially constructed. This critique draws on feminist arguments that the assertion that sex is biological but gender is social is a false dichotomy because sex is also socially constructed. This is not a rejection of physical reality but draws attention to the social value put on some values, needs and accommodations and the denigration of others.


Exclusion of cognitive and mental disabilities

There is discourse within disability studies to analyze the construction of ''mental illness.'' However, few post-structuralist disability scholars have focused their attention to impairments of the mind. According to Carol Thomas, a Reader in Sociology at the Institute for Health Research,
Lancaster University Lancaster University (legally The University of Lancaster) is a public university, public research university in Lancaster, Lancashire, Lancaster, Lancashire, England. The university was established in 1964 by royal charter, as one of several pla ...
, this may be because disability scholars have in the past considered only the barriers confronted by people with physical disabilities. The experience of impairment, cognitive disability, and mental illness had been absent from the discussion. It is unclear exactly which perspective of disability scholarship "psychological impairment" can fall under, and this has led to a hesitation on the part of scholars. Scholars such as
Peter Beresford Peter Beresford OBE, FAcSS, FRSA (born 1 May 1945) is a British academic, writer, researcher and activist best known for his work in the field of citizen participation and user involvement, areas of study he helped to create and develop. He is c ...
(2002) suggest "the development of a 'social model of madness and distress which would consider impairments of the mind. Yet others may recommend the "embodied approach" to the study of mental illnesses. With the emergence of
Crip theory Disability studies is an academic discipline that examines the meaning, nature, and consequences of disability. Initially, the field focused on the division between "impairment" and "disability," where impairment was an impairment of an individua ...
this hegemony is being challenged. In ''Feminist, Queer, Crip'', Alison Kafer states "My goal is to contextualize, historically and politically, the meanings typically attributed to disability, thereby positioning "disability" as a set of practices and associations that can be critiqued, contested, and transformed." 


Notable disability studies theorists

*
Peter Beresford Peter Beresford OBE, FAcSS, FRSA (born 1 May 1945) is a British academic, writer, researcher and activist best known for his work in the field of citizen participation and user involvement, areas of study he helped to create and develop. He is c ...
*
Michael Bérubé Michael Bérubé (born 1961) is Edwin Erle Sparks Professor of Literature at Pennsylvania State University, where he teaches American literature, disability studies, and cultural studies. He is the author of several books on cultural studies, disa ...
* James Charlton *
Lennard J. Davis Lennard J. Davis, a nationally and internationally known American specialist in disability studies, is Distinguished Professor of English studies, English at the University of Illinois at Chicago, School of Arts and Sciences, and also Professor ...
* Nirmala Erevelles *
Vic Finkelstein Victor (Vic) Berel Finkelstein (25 January 1938 – 30 November 2011) was a disability rights activist and writer. Born in Johannesburg, South Africa and later living in Britain, Finkelstein is known as a pioneer of the social model of disability a ...
*
Rosemarie Garland-Thomson Rosemarie Garland-Thomson is Professor of English at Emory University with a focus on disability studies and feminist theory. Her book ''Extraordinary Bodies'', published in 1997, is a founding text in the disability studies canon. Garland-Thomson ...
*
Johanna Hedva Johanna Hedva (born 1984) is a Korean Americans, Korean American contemporary artist, writer, and musician. They are the author of the 2018 novel ''On Hell'', and ''Minerva the Miscarriage of the Brain'', a collection of poetry, plays, and essays ...
*
Laura Hershey Laura Ann Hershey (August 11, 1962 – November 26, 2010) was a poet, journalist, popular speaker, feminist, and a disability rights activist and consultant. Known to have parked her wheelchair in front of buses, Hershey was one of the leaders of ...
*
Eva Kittay Eva Feder Kittay is an American philosopher. She is Distinguished Professor of Philosophy ( Emerita) at Stony Brook University. Her primary interests include feminist philosophy, ethics, social and political theory, metaphor, and the applicatio ...
*
Simi Linton Simi Linton is an American arts consultant, author, filmmaker, and activist. Her work focuses on disability in the arts, disability studies, and ways that disability rights and disability justice perspectives can be brought to bear on the arts. ...
* Mike Oliver *
Robert McRuer Robert McRuer (born 1966) is an American theorist who has contributed to fields in transnational queer and disability studies. McRuer is known as being one of the founding scholars involved in forming the field of Disability studies#Gender and sexu ...
*
Tom Shakespeare Sir Thomas William Shakespeare, 3rd Baronet, (born 11 May 1966) is an English sociologist and bioethicist. He has achondroplasia and uses a wheelchair. Early life and education Son of Sir William Geoffrey Shakespeare, 2nd Baronet, and Susan M ...
* Anne Waldschmidt *
Irving Zola Irving Kenneth Zola (1935–1994) was an American activist and writer in medical sociology and disability rights. Early life and education Irving Kenneth Zola, born in 1935, in Newton, Massachusetts. He came from a working class Jewish family. ...
*
Marta Russell Marta Russell (December 20, 1951 – December 15, 2013) was an American writer and disability rights activist. Her book, ''Beyond Ramps: Disability at the End of the Social Contract'' published in 1998 by Common Courage Press analyzes the relat ...


See also

*
Accessibility Accessibility is the design of products, devices, services, vehicles, or environments so as to be usable by people with disabilities. The concept of accessible design and practice of accessible development ensures both "direct access" (i. ...
*
Cultural studies Cultural studies is an interdisciplinary field that examines the political dynamics of contemporary culture (including popular culture) and its historical foundations. Cultural studies researchers generally investigate how cultural practices re ...
*
Developmental disability Developmental disability is a diverse group of chronic conditions, comprising mental or physical impairments that arise before adulthood. Developmental disabilities cause individuals living with them many difficulties in certain areas of life, espe ...
*
Disability and poverty The world's poor are significantly more likely to have or incur a disability within their lifetime compared to more financially privileged populations. The rate of disability within impoverished nations is notably higher than that found in more de ...
* Disability Studies in Education *
Future planning For many elderly carers of a relative who has a learning or other disability, future planning is an issue. The population of older parents who have children with a learning disability is growing and many of their children are likely to outlive them ...
*
Inclusion (disability rights) Inclusion, in relation to persons with disabilities, is defined as including individuals with disabilities in everyday activities and ensuring they have access to resources and opportunities in ways that are similar to their non-disabled peer ...
*
List of disability studies journals This is a list of academic journals in the field of disability studies. * '' Disability & Society'' * '' Disability Studies Quarterly'' * '' Disability and Rehabilitation'' * '' Disability and Rehabilitation: Assistive Technology'' * '' Focus on A ...
*
Matching person and technology model The matching person and technology model is an organizational framework to assess and recommend successful use of a variety of assistive technologies for people with disabilities: educational technology, and those used in the workplace, school, ...
*
Special education Special education (known as special-needs education, aided education, exceptional education, alternative provision, exceptional student education, special ed., SDC, or SPED) is the practice of educating students in a way that accommodates th ...


References


Further reading

* Adams, R., Reiss, B. and Serlin, D., eds.
Keywords for Disability Studies.
' New York University Press, 2015. * Albrecht, Gary L., ed. ''Encyclopedia of Disability'' (5 vol. Sage, 2005) * Barnes, C. and G. Mercer. ''Exploring disability nd edition'. Cambridge, Polity Press, 2010. * Bell, Christopher, ed.
Blackness and Disability: Critical Examinations and Cultural Interventions (Forecaast Series)
'. LIT Verlag Münster, 2011. * Ben-Moshe, L., Chapman, C., and Carey, A., eds.
Disability Incarcerated: Imprisonment and Disability in the United States and Canada
'' Palgrave Macmillan, 2014. * Burch, Susan, and Paul K. Longmore, eds. ''Encyclopedia of American Disability History'' (3 Vol. 2009) * Burch, Susan and Michael Rembis. ''Disability Histories.'' Urbana, IL: University of Illinois Press, 2014. * Campbell, Fiona K.
Contours of Ableism: The Production of Disability and Abledness
, Palgrave Macmillan, 2009. * Corker, Mairian and Tom Shakespeare. ''Disability/Postmodernity: Embodying Disability Theory'', Continuum, 2002. * Davis, Lennard J., ed. ''The Disability Studies Reader.'' Routledge 1997, 2013, 2017. * DePoy, Elizabeth, and Stephen Gilson, ''Studying Disability:''. Los Angeles, CA: Sage 2011. * Guter, Bob, and John R. Killacky, '' Queer Crips: Disabled Gay Men and Their Stories''. New York: Harrington Park Press, 2004. * Johnstone, David. ''An Introduction to Disability Studies'', David Fulton Publishers Ltd 2001 * Linton, Simi.
Claiming Disability: Knowledge and Identity
'' New York University Press, 1998. * * McRuer, Robert .
Crip Theory: Cultural Signs of Queerness and Disability
(Cultural Front)'', NYU Press, 2006. * * Oliver, M.
Understanding Disability: From Theory to Practice
'. New York, Basigstoke, 1996 * Pothier, Dianne and Richard Devlin, eds.
Critical Disability Theory: Essays in Philosophy, Politics, Policy, and Law
(Law and Society Series)'', UBC Press, 2006. * Ronell, A.
The Telephone Book: Technology, Schizophrenia, Electric Speech
'' University of Nebraska Press, 1989. * Siebers, Tobin Anthony. ''Disability Theory (Corporealities: Discourses of Disability)'', University of Michigan Press, 2008. * Snyder, Sharon, Brenda J. Brueggemann, and Rosemarie Garland-Thomson, eds. ''Disability Studies: Enabling the Humanities.'' Modern Language Association, 2002. * Snyder, Sharon L. and David T. Mitchell. ''Cultural Locations of Disability'', University of Chicago Press, 2006. * Smith, Bonnie G., and Beth Hutchison, eds. ''Gendering Disability''. Rutgers University Press, 2004. * Thomas, C. ''Sociologies of Disability and Illness: contested ideas in disability studies and medical sociology'', London, Palgrave, 2007. * Waldschmidt, A., H. Berressem and M. Ingwersen, eds. ''Culture – Theory – Disability: Encounters between Disability Studies and Cultural Studies'', Bielefeld, transcript, 2017. * Withers, AJ. ''Disability Politics & Theory'', Halifax, Fernwood, 2012.


External links


Review of Disability Studies: An International JournalSociety for Disability Studies Disability Studies QuarterlyNational University of Ireland, Galway: List of Disability Related Academic Journals, with impact factorsSyracuse University Journals & Databases for Disability StudiesDisability and SocietyJournal of Literary and Cultural Disability Studies
{{DEFAULTSORT:Disability studies
Medical humanities ''Medical Humanities'' is a quarterly peer-reviewed academic journal covering the field of medical humanities. The journal presents the international conversation around medicine and its engagement with the humanities and arts, social sciences, hea ...
Interdisciplinary subfields of sociology Social constructionism