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The National Vaccine Information Center (NVIC), founded under the name Dissatisfied Parents Together (DPT) in 1982, is an American
501(c)(3) A 501(c)(3) organization is a United States corporation, trust, unincorporated association or other type of organization exempt from federal income tax under section 501(c)(3) of Title 26 of the United States Code. It is one of the 29 types of 50 ...
IRS Exempt Organizations Select Check
/ref> organization that has been widely criticized as a leading source of fearmongering and misinformation about vaccines. While NVIC describes itself as the "oldest and largest consumer-led organization advocating for the institution of vaccine safety and
informed consent Informed consent is a principle in medical ethics and medical law, that a patient must have sufficient information and understanding before making decisions about their medical care. Pertinent information may include risks and benefits of treatme ...
protections", it promotes false and misleading information including the discredited claim that vaccines cause autism, and its campaigns portray vaccination as risky, encouraging people to consider "alternatives." In April 2020, the organization was identified as one of the greatest disseminators of COVID-19 misinformation on Facebook. Despite its name, the National Vaccine Information Center bears no relation to the National Vaccine Advisory Committee, an advisory body of the United States Department of Health and Human Services. Since 2003, the NVIC has maintained a website named Medalerts.org, which republishes the CDC's
Vaccine Adverse Event Reporting System The Vaccine Adverse Event Reporting System (VAERS) is a United States program for vaccine safety, co-managed by the U.S. Centers for Disease Control and Prevention (CDC) and the Food and Drug Administration (FDA). VAERS is a postmarketing surveil ...
data without its appropriate warnings. This has led to misleading attributions of deaths to the
COVID-19 vaccine A COVID19 vaccine is a vaccine intended to provide acquired immunity against severe acute respiratory syndrome coronavirus 2 (SARS‑CoV‑2), the virus that causes coronavirus disease 2019 ( COVID19). Prior to the COVID19 pandemic, an e ...
s.


History

The organization was co-founded in 1982 by Jeff Schwartz, Barbara Loe Fisher, and Kathi Williams under the name Dissatisfied Parents Together (DPT). Each of them had observed the health of one of their children deteriorate at some point after receiving a dose of the
DPT vaccine The DPT vaccine or DTP vaccine is a class of combination vaccines against three infectious diseases in humans: diphtheria, pertussis (whooping cough), and tetanus. The vaccine components include diphtheria and tetanus toxoids and either kille ...
and had watched a television broadcast of the film ''DPT: Vaccine Roulette'', which drew an erroneous causal link between DPT vaccines and illnesses of some children who received them. In 1985, Fisher and Harris Coulter co-authored a book, ''DPT: A Shot in the Dark'', which asserted an association between the whole cell pertussis (whooping cough) vaccine in the DPT shot and
autism The autism spectrum, often referred to as just autism or in the context of a professional diagnosis autism spectrum disorder (ASD) or autism spectrum condition (ASC), is a neurodevelopmental condition (or conditions) characterized by difficulti ...
. The Centers for Disease Control and Prevention now recommend the newer acellular
pertussis vaccine Pertussis vaccine is a vaccine that protects against whooping cough (pertussis). There are two main types: whole-cell vaccines and acellular vaccines. The whole-cell vaccine is about 78% effective while the acellular vaccine is 71–85% effectiv ...
s (DTaP and Tdap), and whole cell pertussis vaccines are no longer used in the US. because of adverse effects unrelated to autism. In the early 1980s, the organization joined with the
American Academy of Pediatrics The American Academy of Pediatrics (AAP) is an American professional association of pediatricians, headquartered in Itasca, Illinois. It maintains its Department of Federal Affairs office in Washington, D.C. Background The Academy was founded ...
to draft the original legislation for the National Childhood Vaccine Injury Act of 1986, which created a federal vaccine injury compensation program, mandated doctors to give parents vaccine benefit and risk information, and required the recording and reporting of vaccine injuries and deaths (see
Vaccine Adverse Event Reporting System The Vaccine Adverse Event Reporting System (VAERS) is a United States program for vaccine safety, co-managed by the U.S. Centers for Disease Control and Prevention (CDC) and the Food and Drug Administration (FDA). VAERS is a postmarketing surveil ...
). The organization changed its name to the National Vaccine Information Center in the early 1990s. Like other anti-vaccination groups, NVIC has been investing heavily into its social media presence in the 2010s. In addition to developing their own social media channels, the organization pushes anti-vaccination messages to online gatherings of young parents, anti-
GMO A genetically modified organism (GMO) is any organism whose genetic material has been altered using genetic engineering techniques. The exact definition of a genetically modified organism and what constitutes genetic engineering varies, with ...
activists and wellness enthusiasts. However, due the group's decision to stick to Facebook as their main social media channel, they experienced only a small growth of their social media base, while other anti-vaccination groups such as Children's Health Defense saw their impact increase considerably on systems such as Instagram during the COVID-19 pandemic. In April 2020, the organization was identified as one of the greatest disseminators of COVID-19 misinformation on Facebook.


Funding

Although the NVIC claims to be supported primarily by small donations, 40% of its funding came from the anti-vaccination activist and distributor of vitamin supplements Joseph Mercola, who provided $2.9 million between 2009 and 2018. The funds were provided through Mercola's Natural Health Research Foundation. Barry Segal's Focus for Health foundation is also contributing to NVIC, with $400,000 between 2011 and 2017. In 2020 the NVIC took and received a federal loan of through the Paycheck Protection Program, even though it had opposed federal vaccination campaigns and spread misinformation about vaccines. Because of the latter behavior, in early 2021 Facebook disallowed the group from purchasing advertising on its networks.


COVID pandemic

On October 16–18, NVIC hosted the 2020 International Public Conference on Vaccination, which aimed to coordinate messaging between the main anti-vaccination groups in the context of the COVID-19 pandemic. The attendees included Robert F. Kennedy Jr.'s Children's Health Defense and
Del Bigtree Del Matthew Bigtree is an American television and film producer as well as CEO of the anti-vaccination group Informed Consent Action Network. He produced the film '' Vaxxed: From Cover-Up to Catastrophe'', based on the discredited opinions of ...
speaking for the Informed Consent Action Network, as well as Joseph Mercola, Andrew Wakefield and
Sherri Tenpenny Sherri J. Tenpenny is an American anti-vaccination activist and conspiracy theorist who supports the disproven hypothesis that vaccines cause autism. An osteopathic physician, she is the author of four books opposing vaccination. A 2015 lect ...
.


Medalerts.org

NVIC's Medalerts republication of
Vaccine Adverse Event Reporting System The Vaccine Adverse Event Reporting System (VAERS) is a United States program for vaccine safety, co-managed by the U.S. Centers for Disease Control and Prevention (CDC) and the Food and Drug Administration (FDA). VAERS is a postmarketing surveil ...
data, done without CDC's detailed warning of the data limitations, had led to incorrect interpretations and misleading reports attributing deaths to COVID-19 vaccines. The original United States Department of Health and Human Services VAERS website is willfully cautious, containing extensive and important warnings such as "Reports of death to VAERS following vaccination do not necessarily mean the vaccine caused the death" and others. The website states : : "VAERS reports alone cannot be used to determine if a vaccine caused or contributed to an adverse event or illness. The reports may contain information that is incomplete, inaccurate, coincidental, or unverifiable. In large part, reports to VAERS are voluntary, which means they are subject to biases." HHS's VAERS data replicated by Medalerts is known to be frequently misrepresented by anti-vaccines sources.


Reception

The journalist
Michael Specter Michael Specter (born 1955) is an American journalist who has been a staff writer, focusing on science and technology, and global public health at ''The New Yorker'' since September 1998. He has also written for ''The Washington Post'' and ''The ...
described the NVIC as: : "... an organization that, based on its name, certainly sounds like a federal agency. Actually, it's just the opposite: the NVIC is the most powerful anti-vaccine organization in America, and its relationship with the U.S. government consists almost entirely of opposing federal efforts aimed at vaccinating children." The NVIC falsely asserts that there has been inadequate research into the link between the rise in the number of children diagnosed with autism and mass vaccination programs. There have been a number of peer-reviewed studies and meta-analyses that have shown no correlation between vaccine administration and autism diagnosis, and there is no biological plausibility for vaccines to cause autism, as autism is not an immune-mediated disease. The skeptic and science blogger Phil Plait notes that while "On their site they take "vaccine injuries" as given," the "litany of effects is interesting, given that to the best of my knowledge (and I've looked) none of them has actually been linked to vaccines in real medical studies." The NVIC received criticism in April 2011 for ads that it placed on a jumbotron in Times Square. The ads criticized childhood immunization and promoted an alternative medicine website. In a letter to CBS, which owned the jumbotron, the
American Academy of Pediatrics The American Academy of Pediatrics (AAP) is an American professional association of pediatricians, headquartered in Itasca, Illinois. It maintains its Department of Federal Affairs office in Washington, D.C. Background The Academy was founded ...
stated, "By providing advertising space to an organization like the NVIC... you are putting thousands of lives of children at risk."Consumer Health Digest #11-10
National Council Against Health Fraud, April 28, 2011
A controversial ad produced by NVIC regarding preventive measures for
influenza Influenza, commonly known as "the flu", is an infectious disease caused by influenza viruses. Symptoms range from mild to severe and often include fever, runny nose, sore throat, muscle pain, headache, coughing, and fatigue. These symptoms ...
was aired on some Delta Air Lines flights, prompting the president of the American Academy of Pediatrics to write a letter to the CEO of Delta on November 4, 2011, urging Delta to "remove these harmful messages."Herper, Matthew (November 7, 2011)
"Pediatrician Group Slams Delta Airlines For Running Video Made By Vaccine Skeptics,"
'' Forbes''.
Khan, Amina (November 16, 2011)
"Pediatricians decry in-flight vaccine-questioning ad on Delta,"
'' Los Angeles Times''.
An online petition was also set up to urge Delta to remove the ads. The refusal of Delta Air Lines to stop showing the ad immediately prompted the ''Institute for Science in Medicine'' to protest and to call the decision: : "...indefensible from a public health perspective,..." and saying "The NVIC ad is, as one commentator aptly observed, a Trojan Horse. Delta passengers in November are being directed to the website of a prominent anti-vaccination organization, one that has tried to thwart national vaccine campaigns for three decades. Moreover, NVIC has the sort of name that sounds like a federal agency, one that passengers might mistake as a source of reliable information."Delta’s Decision Doesn’t Fly with Us. Airline Continues to Show Anti-Vaccinationists’ Ad.
''Institute for Science in Medicine'', Nov. 2011


See also

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List of vaccine topics This is a list of vaccine-related topics. A vaccine is a biological preparation that improves immunity to a particular disease. A vaccine typically contains an agent that resembles a disease-causing microorganism, and is often made from weakened ...


References


External links

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Centers for Disease Control and Prevention (CDC)
Barbara Loe Fisher
at
The Skeptic's Dictionary ''The Skeptic's Dictionary'' is a collection of cross-referenced skeptical essays by Robert Todd Carroll, published on his website skepdic.com and in a printed book. The skepdic.com site was launched in 1994 and the book was published in 2003 wi ...
{{authority control Organizations established in 1982 Anti-vaccination organizations 501(c)(3) organizations Non-profit organizations based in Vienna, Virginia 1982 establishments in Virginia Alternative medicine organizations Anti-vaccination in the United States