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Testing Women, Testing The Fetus
''Testing Women, Testing the Fetus'' by Rayna Rapp is a book, published in 1999, about analysis of the social repercussions of prenatal genetic testing. Rapp combines the data she collected herself with historical context of amniocentesis and genetic counseling to argue that amniocentesis and those abortions following positive test results is a social decision as much as an individual one. Methodology of research Beginning with her own prenatal diagnosis experience in 1983, Rapp spent approximately 15 years conducting research on the effects and experiences of genetic testing on women. Her research was spread across various locations in New York City. Rapp used a method of research known as "participant observation" to gather data for this project. For her, this meant interviewing women, geneticists, and Obstetrics, obstetricians; visiting laboratories, and prenatal testing centers; and working alongside advocates for disabled people. The women Rapp interviewed came from a range ...
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Rayna Rapp
Rayna Rapp (pen name Rayna R. Reiter) is a professor and associate chair of anthropology at New York University, specializing in gender and health; the politics of reproduction; science, technology, and genetics; and disability in the United States and Europe. She has contributed over 80 published works to the field of anthropology, independently, as a co-author, editor, and foreword-writing, including Robbie Davis-Floyd and Carolyn Sargent's '' Childbirth and Authoritative Knowledge.'' Her 1999 book, ''Testing Women, Testing the Fetus: the Social Impact of Amniocentesis in America,'' received multiple awards upon release and has been praised for providing "invaluable insights into the first generation of women who had to decide whether or not to terminate their pregnancies on the basis of amniocentesis result". She co-authored many articles with Faye Ginsburg, including ''Enabling Disability: Rewriting Kinship, Reimagining Citizenship,'' a topic the pair has continued to research ...
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Genetic Testing
Genetic testing, also known as DNA testing, is used to identify changes in DNA sequence or chromosome structure. Genetic testing can also include measuring the results of genetic changes, such as RNA analysis as an output of gene expression, or through biochemical analysis to measure specific protein output. In a medical setting, genetic testing can be used to diagnose or rule out suspected genetic disorders, predict risks for specific conditions, or gain information that can be used to customize medical treatments based on an individual's genetic makeup. Genetic testing can also be used to determine biological relatives, such as a child's biological parentage (genetic mother and father) through DNA paternity testing, or be used to broadly predict an individual's ancestry. Genetic testing of plants and animals can be used for similar reasons as in humans (e.g. to assess relatedness/ancestry or predict/diagnose genetic disorders), to gain information used for selective breeding, ...
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Participant Observation
Participant observation is one type of data collection method by practitioner-scholars typically used in qualitative research and ethnography. This type of methodology is employed in many disciplines, particularly anthropology (incl. cultural anthropology and European ethnology), sociology (incl. sociology of culture and cultural criminology), communication studies, human geography, and social psychology. Its aim is to gain a close and intimate familiarity with a given group of individuals (such as a religious, occupational, youth group, or a particular community) and their practices through an intensive involvement with people in their cultural environment, usually over an extended period of time. The method originated in the field research linked to European and American voyages of scientific exploration. During the year 1800, one of precursors of the method as Joseph Marie, baron de Gérando already affirming that: "The first way to get to know the Indians is to become like o ...
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Geneticist
A geneticist is a biologist or physician who studies genetics, the science of genes, heredity, and variation of organisms. A geneticist can be employed as a scientist or a lecturer. Geneticists may perform general research on genetic processes or develop genetic technologies to aid in the pharmaceutical or and agriculture industries. Some geneticists perform experiments in model organisms such as ''Drosophila'', ''C. elegans'', zebrafish, rodents or humans and analyze data to interpret the inheritance of biological traits. A basic science geneticist is a scientist who usually has earned a PhD in genetics and undertakes research and/or lectures in the field. A medical geneticist is a physician who has been trained in medical genetics as a specialization and evaluates, diagnoses, and manages patients with hereditary conditions or congenital malformations; and provides genetic risk calculations and mutation analysis. Education Geneticists participate in courses from many are ...
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Obstetrics
Obstetrics is the field of study concentrated on pregnancy, childbirth and the postpartum period. As a medical specialty, obstetrics is combined with gynecology under the discipline known as obstetrics and gynecology (OB/GYN), which is a surgical field. Main areas Prenatal care Prenatal care is important in screening for various complications of pregnancy. This includes routine office visits with physical exams and routine lab tests along with telehealth care for women with low-risk pregnancies: Image:Ultrasound_image_of_a_fetus.jpg, 3D ultrasound of fetus (about 14 weeks gestational age) Image:Sucking his thumb and waving.jpg, Fetus at 17 weeks Image:3dultrasound 20 weeks.jpg, Fetus at 20 weeks First trimester Routine tests in the first trimester of pregnancy generally include: * Complete blood count * Blood type ** Rh-negative antenatal patients should receive RhoGAM at 28 weeks to prevent Rh disease. * Indirect Coombs test (AGT) to assess risk of hemolytic dis ...
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Down Syndrome
Down syndrome or Down's syndrome, also known as trisomy 21, is a genetic disorder caused by the presence of all or part of a third copy of chromosome 21. It is usually associated with physical growth delays, mild to moderate intellectual disability, and characteristic facial features. The average IQ of a young adult with Down syndrome is 50, equivalent to the mental ability of an eight- or nine-year-old child, but this can vary widely. The parents of the affected individual are usually genetically normal. The probability increases from less than 0.1% in 20-year-old mothers to 3% in those of age 45. The extra chromosome is believed to occur by chance, with no known behavioral activity or environmental factor that changes the probability. Down syndrome can be identified during pregnancy by prenatal screening followed by diagnostic testing or after birth by direct observation and genetic testing. Since the introduction of screening, Down syndrome pregnancies are often abor ...
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Society For Medical Anthropology
The Organization of Medical Anthropology was formed in 1967 and first met on April 27, 1968, at the 27th Annual Meeting of the Society for Applied Anthropology (SfAA), during which the Medical Anthropology Newsletter was conceived and first published in October 1968 with 53 subscribers. On November 22, 1968, the Organization held its first medical anthropology workshop at the American Anthropological Association (AAA) Annual Meeting and became the Group for Medical Anthropology (GMA). Thereafter, medical anthropology meetings have met regularly both at the SfAA and AAA meetings. At the AAA Annual Meeting in San Diego, California, in November 1970, the GMA became the Society for Medical Anthropology (SMA) and adopted its Constitution, of which its first objective was “to promote study of anthropological aspects of health, illness, health care, and related topics.” In 1971, the SMA became a section of the AAA. The SMA offers several awards including the Rudolf Virchow Award The Ru ...
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American Ethnological Society
The American Ethnological Society (AES) is the oldest professional anthropological association in the United States. History of the American Ethnological Society Albert Gallatin and John Russell Bartlett founded the American Ethnological Society in New York City New York, often called New York City or NYC, is the List of United States cities by population, most populous city in the United States. With a 2020 population of 8,804,190 distributed over , New York City is also the L ... in 1842. Their goal was to promote research in ethnology and all inquiries involving humans. The early meetings of the AES took place in the homes of the members, where they discussed all aspects of human life, from history and geography to philology and anthropology. The AES was a scholarly institution, in which papers were presented that were later published. In the late 19th century, the AES's focus changed from the evolutionary concerns of ethnology to the academic ...
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