Jeremy Gruber
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Jeremy Gruber
Jeremy Gruber is a lawyer, writer, and public policy advocate and is the senior vice president at Open Primaries. He is the former President and Executive Director of the Council for Responsible Genetics. He has testified before the United States Congress on genetic privacy and discrimination issues. He was a leader of the successful effort to enact the Genetic Information Nondiscrimination Act as well as a number of state laws that preceded it and led the successful campaign to roll back a controversial student genetic testing program at the University of California, Berkeley. In 2011, Gruber led an effort to successfully enact CalGINA-a California law that extends genetic privacy and nondiscrimination protections into areas such as life, long term care, and disability insurance, mortgages, elections and other areas. Gruber is a founder and executive committee member of the Coalition for Genetic Fairness and the Pew Project on the Genetic Information Nondiscrimination Act (GINA). ...
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Council For Responsible Genetics
The Council for Responsible Genetics (CRG) was a nonprofit NGO with a focus on biotechnology. History The Council for Responsible Genetics was founded in 1983 in Cambridge, Massachusetts. An early voice concerned about the social and ethical implications of modern genetic technologies, CRG organized a 1985 Congressional Briefing and a 1986 panel of the American Association for the Advancement of Science, both focusing on the potential dangers of genetically engineered biological weapons. Francis Boyle was asked to draft legislation setting limits on the use of genetic engineering, leading to the Biological Weapons Anti-Terrorism Act of 1989. CRG was the first organization to advance a comprehensive, scientifically based position against human germline engineering. It was also the first to compile documented cases of genetic discrimination, laying the intellectual groundwork for the Genetic Information Nondiscrimination Act of 2008 (GINA). The organization created both a Gen ...
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United States Congress
The United States Congress is the legislature of the federal government of the United States. It is bicameral, composed of a lower body, the House of Representatives, and an upper body, the Senate. It meets in the U.S. Capitol in Washington, D.C. Senators and representatives are chosen through direct election, though vacancies in the Senate may be filled by a governor's appointment. Congress has 535 voting members: 100 senators and 435 representatives. The U.S. vice president has a vote in the Senate only when senators are evenly divided. The House of Representatives has six non-voting members. The sitting of a Congress is for a two-year term, at present, beginning every other January. Elections are held every even-numbered year on Election Day. The members of the House of Representatives are elected for the two-year term of a Congress. The Reapportionment Act of 1929 establishes that there be 435 representatives and the Uniform Congressional Redistricting Act requires ...
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Genetic Privacy
Genetic privacy involves the concept of personal privacy concerning the storing, repurposing, provision to third parties, and displaying of information pertaining to one's genetic information. This concept also encompasses privacy regarding the ability to identify specific individuals by their Nucleic acid sequence, genetic sequence, and the potential to gain information on specific characteristics about that person via portions of their genetic information, such as their propensity for specific diseases or their immediate or distant ancestry. With the public release of genome sequence information of participants in large-scale research studies, questions regarding participant privacy have been raised. In some cases, it has been shown that it is possible to identify previously anonymous participants from large-scale genetic studies that released gene sequence information. Genetic privacy concerns also arise in the context of criminal law because the government can sometimes overcom ...
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Genetic Information Nondiscrimination Act
The Genetic Information Nondiscrimination Act of 2008 (, GINA ), is an Act of Congress in the United States designed to prohibit some types of genetic discrimination. The act bars the use of genetic information in health insurance and employment: it prohibits group health plans and health insurers from denying coverage to a healthy individual or charging that person higher premiums based solely on a genetic predisposition to developing a disease in the future, and it bars employers from using individuals' genetic information when making hiring, firing, job placement, or promotion decisions.Statement of Administration policy
Executive Office of the President, Office of Management and Budget, April 27, 2007
Senator

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University Of California, Berkeley
The University of California, Berkeley (UC Berkeley, Berkeley, Cal, or California) is a public land-grant research university in Berkeley, California. Established in 1868 as the University of California, it is the state's first land-grant university and the founding campus of the University of California system. Its fourteen colleges and schools offer over 350 degree programs and enroll some 31,800 undergraduate and 13,200 graduate students. Berkeley ranks among the world's top universities. A founding member of the Association of American Universities, Berkeley hosts many leading research institutes dedicated to science, engineering, and mathematics. The university founded and maintains close relationships with three national laboratories at Berkeley, Livermore and Los Alamos, and has played a prominent role in many scientific advances, from the Manhattan Project and the discovery of 16 chemical elements to breakthroughs in computer science and genomics. Berkeley is ...
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Coalition For Genetic Fairness
The Coalition for Genetic Fairness (CGF) is a public interest group concerned about genetic discrimination. The group was founded in 1997 by several organizations. Much of the CGF's work to date has been surrounding the Genetic Information Nondiscrimination Act. Members The following is a partial list of CGF's members: *20th Century Fox *American Academy of Family Physicians *American Association for the Advancement of Science *American Civil Liberties Union *American Heart Association * Association of American Medical Colleges *Brown University *Council for Responsible Genetics * Facing Our Risk of Cancer Empowered (FORCE) *Genetic Alliance *Harvard Medical School- Partners HealthCare Center for Genetics and Genomics * Huntington's Disease Society of America * Jewish Council for Public Affairs *Medgar Evers College, CUNY * Medical College of Wisconsin *National Association for the Advancement of Colored People (NAACP) *National Association of Social Workers *Sarah Lawrence Coll ...
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Brandeis University
, mottoeng = "Truth even unto its innermost parts" , established = , type = Private research university , accreditation = NECHE , president = Ronald D. Liebowitz , provost = Carol Fierke , city = Waltham , state = Massachusetts , country = United States , endowment = $1.07 billion (2019) , students = 5,458 (2021) , undergrad = 3,591 (2021) , postgrad = 1,967 (2021) , faculty = 544 (2021) , administrative_staff = 1,314 (2021) , campus = Small City, , mascot = The Judge and Ollie the Owl (named for Justice Oliver Wendell Holmes Jr.) , sports_nickname = Judges , colors = Brandeis Blue , athletics_affiliations = , academic_affiliations = , website = , logo ...
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ACLU
The American Civil Liberties Union (ACLU) is a nonprofit organization founded in 1920 "to defend and preserve the individual rights and liberties guaranteed to every person in this country by the Constitution and laws of the United States". The ACLU works through litigation and lobbying, and has over 1,800,000 members as of July 2018, with an annual budget of over $300 million. Affiliates of the ACLU are active in all 50 states, the District of Columbia, and Puerto Rico. The ACLU provides legal assistance in cases where it considers civil liberties to be at risk. Legal support from the ACLU can take the form of direct legal representation or preparation of ''amicus curiae'' briefs expressing legal arguments when another law firm is already providing representation. In addition to representing persons and organizations in lawsuits, the ACLU lobbies for policy positions that have been established by its board of directors. Current positions of the ACLU include opposing the death ...
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National Workrights Institute
National may refer to: Common uses * Nation or country ** Nationality – a ''national'' is a person who is subject to a nation, regardless of whether the person has full rights as a citizen Places in the United States * National, Maryland, census-designated place * National, Nevada, ghost town * National, Utah, ghost town * National, West Virginia, unincorporated community Commerce * National (brand), a brand name of electronic goods from Panasonic * National Benzole (or simply known as National), former petrol station chain in the UK, merged with BP * National Car Rental, an American rental car company * National Energy Systems, a former name of Eco Marine Power * National Entertainment Commission, a former name of the Media Rating Council * National Motor Vehicle Company, Indianapolis, Indiana, USA 1900-1924 * National Supermarkets, a defunct American grocery store chain * National String Instrument Corporation, a guitar company formed to manufacture the first resonator ...
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American Nonprofit Executives
American(s) may refer to: * American, something of, from, or related to the United States of America, commonly known as the "United States" or "America" ** Americans, citizens and nationals of the United States of America ** American ancestry, people who self-identify their ancestry as "American" ** American English, the set of varieties of the English language native to the United States ** Native Americans in the United States, indigenous peoples of the United States * American, something of, from, or related to the Americas, also known as "America" ** Indigenous peoples of the Americas * American (word), for analysis and history of the meanings in various contexts Organizations * American Airlines, U.S.-based airline headquartered in Fort Worth, Texas * American Athletic Conference, an American college athletic conference * American Recordings (record label), a record label previously known as Def American * American University, in Washington, D.C. Sports teams Soccer * B ...
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American Civil Liberties Union People
American(s) may refer to: * American, something of, from, or related to the United States of America, commonly known as the "United States" or "America" ** Americans, citizens and nationals of the United States of America ** American ancestry, people who self-identify their ancestry as "American" ** American English, the set of varieties of the English language native to the United States ** Native Americans in the United States, indigenous peoples of the United States * American, something of, from, or related to the Americas, also known as "America" ** Indigenous peoples of the Americas * American (word), for analysis and history of the meanings in various contexts Organizations * American Airlines, U.S.-based airline headquartered in Fort Worth, Texas * American Athletic Conference, an American college athletic conference * American Recordings (record label), a record label previously known as Def American * American University, in Washington, D.C. Sports teams Soccer * B ...
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Year Of Birth Missing (living People)
A year or annus is the orbital period of a planetary body, for example, the Earth, moving in its orbit around the Sun. Due to the Earth's axial tilt, the course of a year sees the passing of the seasons, marked by change in weather, the hours of daylight, and, consequently, vegetation and soil fertility. In temperate and subpolar regions around the planet, four seasons are generally recognized: spring, summer, autumn and winter. In tropical and subtropical regions, several geographical sectors do not present defined seasons; but in the seasonal tropics, the annual wet and dry seasons are recognized and tracked. A calendar year is an approximation of the number of days of the Earth's orbital period, as counted in a given calendar. The Gregorian calendar, or modern calendar, presents its calendar year to be either a common year of 365 days or a leap year of 366 days, as do the Julian calendars. For the Gregorian calendar, the average length of the calendar year (the ...
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