|
Genesis Fund
The Genesis Foundation for Children is a non-profit organization that provides funding for clinical, informational, and therapeutic programs for children born with genetic disorders and rare diseases in the New England area. Through fundraising events, individual donations and corporate sponsorships, The Genesis Foundation for Children has raised over $30 million for over 60,000 New England children and their families. References External links The Genesis FundThe Feingold Center for ChildrenThe Pregnancy Exposure InfoLine (PEIL)Therapy and the Performing Arts - Cape CodThe John Havlicek Celebrity Fishing TournamentOn the Field at Fenway Park with Carl Yastrzemski {{DEFAULTSORT:Genesis Foundation for Children, The Disability organizations based in the United States Organizations based in Massachusetts ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Murray Feingold
Murray Feingold (July 20, 1930 – July 17, 2015) was an American pediatrician, geneticist, and founder of the Feingold Center for Children in Waltham, Massachusetts. He was also the founder and president of The Genesis Foundation for Children. Early life and career Feingold was born in Hazleton, Pennsylvania, in 1930. He was a graduate of Jefferson Medical School (now Thomas Jefferson University) in Philadelphia, Pennsylvania. He has served on the faculty of Tufts University School of Medicine, Harvard Medical School, and Boston University School of Medicine. He previously served as chief of the division of ambulatory services and chief of genetics and birth defects at Boston Floating Hospital for Children and director of genetics at Franciscan Children's Hospital and Rehabilitation Center. Feingold was the medical editor at CBS Boston WBZ-TV and WBZ Radio for 30 years. He died on July 17, 2015, three days shy of his 85th birthday. Feingold syndrome was named afte ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Boston Children's Hospital
Boston Children's Hospital formerly known as Children's Hospital Boston until 2012 is a nationally ranked, freestanding acute care children's hospital located in Boston, Massachusetts, adjacent both to its teaching affiliate, Harvard Medical School, and to Dana–Farber Cancer Institute. Dana–Farber and Children's jointly operate the Dana–Farber/Boston Children's Cancer and Blood Disorders Center to deliver comprehensive care for all types of childhood cancers. The hospital is home to the largest hospital-based pediatric research program in the world. The hospital features 485 pediatric beds and provides comprehensive pediatric specialties and subspecialties to infants, children, teens, and young adults aged 0–21 throughout Massachusetts, the United States, and the world. The hospital also sometimes treats adults that require pediatric care. The hospital uses the Brigham and Women's Hospital's rooftop helipad and is an ACS verified level I pediatric trauma center, one of t ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Genetic Disorders
A genetic disorder is a health problem caused by one or more abnormalities in the genome. It can be caused by a mutation in a single gene (monogenic) or multiple genes (polygenic) or by a chromosomal abnormality. Although polygenic disorders are the most common, the term is mostly used when discussing disorders with a single genetic cause, either in a gene or chromosome. The mutation responsible can occur spontaneously before embryonic development (a ''de novo'' mutation), or it can be inherited from two parents who are carriers of a faulty gene ( autosomal recessive inheritance) or from a parent with the disorder ( autosomal dominant inheritance). When the genetic disorder is inherited from one or both parents, it is also classified as a hereditary disease. Some disorders are caused by a mutation on the X chromosome and have X-linked inheritance. Very few disorders are inherited on the Y chromosome or mitochondrial DNA (due to their size). There are well over 6,000 known ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Rare Diseases
A rare disease is any disease that affects a small percentage of the population. In some parts of the world, an orphan disease is a rare disease whose rarity means there is a lack of a market large enough to gain support and resources for discovering treatments for it, except by the government granting economically advantageous conditions to creating and selling such treatments. Orphan drugs are ones so created or sold. Most rare diseases are genetic and thus are present throughout the person's entire life, even if symptoms do not immediately appear. Many rare diseases appear early in life, and about 30% of children with rare diseases will die before reaching their fifth birthdays. With only four diagnosed patients in 27 years, ribose-5-phosphate isomerase deficiency is considered the rarest known genetic disease. No single cut-off number has been agreed upon for which a disease is considered rare. A disease may be considered rare in one part of the world, or in a particular gro ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
New England
New England is a region comprising six states in the Northeastern United States: Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, and Vermont. It is bordered by the state of New York to the west and by the Canadian provinces of New Brunswick to the northeast and Quebec to the north. The Atlantic Ocean is to the east and southeast, and Long Island Sound is to the southwest. Boston is New England's largest city, as well as the capital of Massachusetts. Greater Boston is the largest metropolitan area, with nearly a third of New England's population; this area includes Worcester, Massachusetts (the second-largest city in New England), Manchester, New Hampshire (the largest city in New Hampshire), and Providence, Rhode Island (the capital of and largest city in Rhode Island). In 1620, the Pilgrims, Puritan Separatists from England, established Plymouth Colony, the second successful English settlement in America, following the Jamestown Settlement in Virginia foun ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Disability Organizations Based In The United States
Disability is the experience of any condition that makes it more difficult for a person to do certain activities or have equitable access within a given society. Disabilities may be cognitive, developmental, intellectual, mental, physical, sensory, or a combination of multiple factors. Disabilities can be present from birth or can be acquired during a person's lifetime. Historically, disabilities have only been recognized based on a narrow set of criteria—however, disabilities are not binary and can be present in unique characteristics depending on the individual. A disability may be readily visible, or invisible in nature. The United Nations Convention on the Rights of Persons with Disabilities defines disability as: Disabilities have been perceived differently throughout history, through a variety of different theoretical lenses. There are two main models that attempt to explain disability in our society: the medical model and the social model. The medical model serves as ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
