Dynamic Consent
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Dynamic Consent
Dynamic consent is an approach to informed consent that enables on-going engagement and communication between individuals and the users and custodians of their data. It is designed to address the many issues that are raised by the use of digital technologies in research and clinical care that enable the wide-scale use, linkage, analysis and integration of diverse datasets and the use of AI and big data analyses. These issues include how to obtain informed consent in a rapidly-changing environment; growing expectations that people should know how their data is being used; increased legal and regulatory requirements for the management of secondary use of data in biobanks and other medical research infrastructure. The concept has been developed in 2007 by an Italian group who introduced the concept of an ongoing process between researcher and participant where "technology now allows the establishment of dynamic participant–researcher partnerships." Dynamic Consent therefore describes ...
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Informed Consent
Informed consent is a principle in medical ethics and medical law, that a patient must have sufficient information and understanding before making decisions about their medical care. Pertinent information may include risks and benefits of treatments, alternative treatments, the patient's role in treatment, and their right to refuse treatment. In most systems, healthcare providers have a legal and ethical responsibility to ensure that a patient's consent is informed. This principle applies more broadly than healthcare intervention, for example to conduct research and to disclosing a person's medical information. Definitions of informed consent vary, and the standard required is generally determined by the state. Informed consent requires a clear appreciation and understanding of the facts, implications, and consequences of an action. To give informed consent, the individual concerned must have adequate reasoning faculties and possess all relevant facts. Impairments to reasoning an ...
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Personal Information
Personal data, also known as personal information or personally identifiable information (PII), is any information related to an identifiable person. The abbreviation PII is widely accepted in the United States, but the phrase it abbreviates has four common variants based on ''personal'' or ''personally'', and ''identifiable'' or ''identifying''. Not all are equivalent, and for legal purposes the effective definitions vary depending on the jurisdiction and the purposes for which the term is being used. Under European and other data protection regimes, which centre primarily on the General Data Protection Regulation (GDPR), the term "personal data" is significantly broader, and determines the scope of the regulatory regime. National Institute of Standards and Technology Special Publication 800-122 defines personally identifiable information as "any information about an individual maintained by an agency, including (1) any information that can be used to distinguish or trace an i ...
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Patient-reported Outcome
A patient-reported outcome (PRO) is a health outcome directly reported by the patient who experienced it. It stands in contrast to an outcome reported by someone else, such as a physician-reported outcome, a nurse-reported outcome, and so on. PRO methods, such as questionnaires, are used in clinical trials or other clinical settings, to help better understand a treatment's efficacy or effectiveness. The use of digitized PROs, or electronic patient-reported outcomes (ePROs), is on the rise in today's health research setting. Terminology PROs should not be confused with PCOs, or '' patient-centered outcomes''. The latter implies the use of a questionnaire covering issues and concerns that are specific to a patient. Instead, ''patient-reported'' outcomes refers to reporting situations in which only the patient provides information related to a specific treatment or condition; this information may or may not be of concern to the patient. Further, PROs should not be confused with PREM ...
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Care
Care may refer to: Organizations and projects * CARE (New Zealand), Citizens Association for Racial Equality, a former New Zealand organisation * CARE (relief agency), "Cooperative for Assistance and Relief Everywhere", an international aid and development organization * Care.com, a company operating an online portal * Carpet America Recovery Effort, an American carpet recycling project * Charged Aerosol Release Experiment, a NASA project concerning dust in space * Christian Action Research and Education, a Christian lobby group in the United Kingdom * Control and Rehabilitation Effort, a behavior modification program implemented in 1968 at United States Penitentiary, Marion * Credit Abuse Resistance Education, an American national program * Crew Module Atmospheric Re-entry Experiment, a 2014 ISRO experimental vehicle People with the surname * Danny Care (soccer) (born 1974), American soccer player * Danny Care (born 1987), English rugby union player * Henry Care (1646–1688 ...
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University Of Manchester
, mottoeng = Knowledge, Wisdom, Humanity , established = 2004 – University of Manchester Predecessor institutions: 1956 – UMIST (as university college; university 1994) 1904 – Victoria University of Manchester 1880 – Victoria University 1851 – Owens College 1824 – Manchester Mechanics' Institute , endowment = £242.2 million (2021) , budget = £1.10 billion (2020–21) , chancellor = Nazir Afzal (from August 2022) , head_label = President and vice-chancellor , head = Nancy Rothwell , academic_staff = 5,150 (2020) , total_staff = 12,920 (2021) , students = 40,485 (2021) , undergrad = () , postgrad = () , city = Manchester , country = England, United Kingdom , campus = Urban and suburban , colours = Manchester Purple Manchester Yellow , free_label = Scarf , free = , website = , logo = UniOfManchesterLogo.svg , affiliations = Universities Research Association Sutton 30 Russell Group EUA N8 Group NWUA ACUUniversities UK The Universit ...
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London School Of Economics
, mottoeng = To understand the causes of things , established = , type = Public research university , endowment = £240.8 million (2021) , budget = £391.1 million (2020–21) , chair = Susan Liautaud , chancellor = The Princess Royal(as Chancellor of the University of London) , director = The Baroness Shafik , head_label = Visitor , head = Penny Mordaunt(as Lord President of the Council '' ex officio'') , students = () , undergrad = () , postgrad = () , city = London , country = United Kingdom , coor = , campus = Urban , free_label = Newspaper , free = '' The Beaver'' , free_label2 = Printing house , free2 = LSE Press , co ...
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University Of Oxford
, mottoeng = The Lord is my light , established = , endowment = £6.1 billion (including colleges) (2019) , budget = £2.145 billion (2019–20) , chancellor = The Lord Patten of Barnes , vice_chancellor = Louise Richardson , students = 24,515 (2019) , undergrad = 11,955 , postgrad = 12,010 , other = 541 (2017) , city = Oxford , country = England , coordinates = , campus_type = University town , athletics_affiliations = Blue (university sport) , logo_size = 250px , website = , logo = University of Oxford.svg , colours = Oxford Blue , faculty = 6,995 (2020) , academic_affiliations = , The University of Oxford is a collegiate research university in Oxf ...
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University Of Warwick
The University of Warwick ( ; abbreviated as ''Warw.'' in post-nominal letters) is a public research university on the outskirts of Coventry between the West Midlands (county), West Midlands and Warwickshire, England. The university was founded in 1965 as part of a government initiative to expand higher education. The Warwick Business School was established in 1967, the Warwick Law School in 1968, WMG, University of Warwick, Warwick Manufacturing Group (WMG) in 1980, and Warwick Medical School in 2000. Warwick incorporated Coventry College of Education in 1979 and Horticulture Research International in 2004. Warwick is primarily based on a campus on the outskirts of Coventry, with a satellite campus in Wellesbourne and a central London base at the Shard. It is organised into three faculties—Arts, Science Engineering and Medicine, and Social Sciences—within which there are 32 departments. As of 2021, Warwick has around 29,534 full-time students and 2,691 academic and research ...
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Warwick Manufacturing Group
WMG, University of Warwick (formerly Warwick Manufacturing Group), is a UK-based research and education group combining collaborative research and development with education programmes working in applied science, technology and engineering. An academic department of the University of Warwick and a centre of the High Value Manufacturing Catapult, WMG was founded by Kumar Bhattacharyya in 1980 to help reinvigorate UK manufacturing and improve competitiveness through innovation and skills development. History Warwick Manufacturing Group was founded in 1980 by Kumar Bhattacharyya to support the reinvigoration of UK manufacturing through research and knowledge transfer (Bhattacharyya, made a life peer in 2004, became chairman of WMG). Its first venture was a part-time master's degree for senior industry staff; this considered technology and management as a unified whole, with modules taught at a purpose-built residential centre. The course proved popular with industry and companies ...
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Hewlett-Packard
The Hewlett-Packard Company, commonly shortened to Hewlett-Packard ( ) or HP, was an American multinational information technology company headquartered in Palo Alto, California. HP developed and provided a wide variety of hardware components, as well as software and related services to consumers, small and medium-sized businesses ( SMBs), and large enterprises, including customers in the government, health, and education sectors. The company was founded in a one-car garage in Palo Alto by Bill Hewlett and David Packard in 1939, and initially produced a line of electronic test and measurement equipment. The HP Garage at 367 Addison Avenue is now designated an official California Historical Landmark, and is marked with a plaque calling it the "Birthplace of 'Silicon Valley'". The company won its first big contract in 1938 to provide test and measurement instruments for Walt Disney's production of the animated film ''Fantasia'', which allowed Hewlett and Packard to formally esta ...
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Technology Strategy Board
Innovate UK is the United Kingdom's innovation agency, which provides money and support to organisations to make new products and services. It is a non-departmental public body operating at arm's length from the Government as part of the United Kingdom Research and Innovation organisation. History Innovate UK has its roots as an advisory body – the Technology Strategy Board – established in 2004, within the Department of Trade and Industry (DTI), before becoming an independent body in July 2007 after the reorganisation of the DTI into the Department for Innovation, Universities and Skills (DIUS) and the Department for Business, Enterprise and Regulatory Reform (BERR) under Gordon Brown's government. The original Technology Strategy Board had its roots in the Innovation Review published by the DTI in December 2003, and the Lambert Review. This reconfigured the major funding mechanism as the Collaborative Research and Development Technology Programme, transformed the pre-e ...
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