Sense, The National Deafblind And Rubella Association
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Sense is a
charitable organization A charitable organization or charity is an organization whose primary objectives are philanthropy and social well-being (e.g. educational, Religion, religious or other activities serving the public interest or common good). The legal definitio ...
based in the
United Kingdom The United Kingdom of Great Britain and Northern Ireland, commonly known as the United Kingdom (UK) or Britain, is a country in Northwestern Europe, off the coast of European mainland, the continental mainland. It comprises England, Scotlan ...
. The charity exists to support people who are deafblind or who have a hearing or vision impairment and another
disability Disability is the experience of any condition that makes it more difficult for a person to do certain activities or have equitable access within a given society. Disabilities may be Cognitive disability, cognitive, Developmental disability, d ...
and campaigns for the rights of disabled people in the UK. It operates in
England England is a Countries of the United Kingdom, country that is part of the United Kingdom. It is located on the island of Great Britain, of which it covers about 62%, and List of islands of England, more than 100 smaller adjacent islands. It ...
,
Northern Ireland Northern Ireland ( ; ) is a Countries of the United Kingdom, part of the United Kingdom in the north-east of the island of Ireland. It has been #Descriptions, variously described as a country, province or region. Northern Ireland shares Repub ...
and
Wales Wales ( ) is a Countries of the United Kingdom, country that is part of the United Kingdom. It is bordered by the Irish Sea to the north and west, England to the England–Wales border, east, the Bristol Channel to the south, and the Celtic ...
. Founded in 1961, the charity's full name is Sense, The National Deafblind and
Rubella Rubella, also known as German measles or three-day measles, is an infection caused by the rubella virus. This disease is often mild, with half of people not realizing that they are infected. A rash may start around two weeks after exposure and ...
Association but its operating name is Sense. It was previously called The National Deafblind and Rubella Association.


Charitable services

The charity offers a range of services for disabled people including residential services, advice and information and arts and sports activities. It also offers education services to young people with complex learning disabilities. It also provides a residential holiday scheme for disabled children. Sense also supports people in the UK affected by
Usher syndrome Usher syndrome, also known as Hallgren syndrome, Usher–Hallgren syndrome, retinitis pigmentosa–dysacusis syndrome or dystrophia retinae dysacusis syndrome, is a rare genetic disorder caused by a mutation in any one of at least 11 genes result ...
.


Campaigning and advocacy work

Sense also campaigns for the rights of disabled people to take part in life.


General Election 2024 - The disabled people's vote

In 2024, Sense campaigned to get more disabled people to vote, highlighting the major issues they wanted tackled by the next UK government. Example issues include - give every disabled child equal access to education, making the benefits system work for disabled people and tackling barriers to work. A report found that nearly a quarter of people with complex disabilities felt elections weren’t run in a way that made it easy for them to vote.


Give carers a break

In 2023, with a third of family carers stating they do not have enough support to give them a rest, Sense launched the Give Carers A Break campaign, calling for greater investment in respite services to support family carers.


Cost of living

From 2021 through to 2023, Sense campaigned on the
cost-of-living crisis A cost-of-living crisis refers to a socioeconomic situation or period of high inflation where nominal wages have stagnated while there is a sharp increase in the cost of basic goods, such as food, housing, and energy. As a result, living standar ...
, calling for more support for disabled people. Research showed that disabled households were disproportionately impacted by rising process. Sense delivered direct support with emergency payments of £500 to families to help them cover their bills.


Campaigning on exclusion and social isolation

In 2021, Sense campaigned to highlight the exclusion and social isolation of disabled people during the
COVID-19 pandemic The COVID-19 pandemic (also known as the coronavirus pandemic and COVID pandemic), caused by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), began with an disease outbreak, outbreak of COVID-19 in Wuhan, China, in December ...
. The charity was also involved in highlighting the abuse of a woman and her deafblind sister for removing a face mask. Sense also published a report about exclusion and social isolation among disabled people that highlighted the barriers faced by disabled people in everyday life.


Sense Sign School

In 2020, the charity ran an educational campaign called Sense Sign School to increase understanding of British Sign Language (BSL). This campaign promoted free online lessons in BSL taught by a teenager living with
CHARGE syndrome CHARGE syndrome (formerly known as CHARGE association) is a rare syndrome caused by a genetic disorder. First described in 1979, the acronym "CHARGE" came into use for newborn children with the congenital features of coloboma of the eye, heart ...
.


Campaigning on exclusion and social isolation

In 2018, Sense campaigned for local authorities to support families caring for disabled loved-ones to ensure they long-term plans in place for their care. This followed research highlighting that that three-quarters of family carers have no plans for what will happen when they can no longer look after their loved ones. In a news report, BBC disability correspondent Nikki Fox met with a family that Sense supports, highlighting a survey carried out by The Charity. The survey suggests three-quarters of family carers have no plans for what will happen when they can no longer look after their loved ones. BBC Radio 5's Afternoon Edition report featured Charlie Beswick, mum of 12-year-old twin boys, Harry and Oliver. The report investigated what would happen to Harry when Charlie is no longer able to look after Harry. Sense supported Charlie to find the right support.


Children's play campaign

This activity included a 2016 campaign that highlighted that many disabled children were excluded from playgrounds and other children's play activities. This included an inquiry into children's play activities in the UK and a report called The Case for Play. The children's play inquiry was co-chaired by Lord Blunket, and covered by The Independent in Serina Sandhu's article 'Disabled children 'facing barriers' to play, inquiry finds.'


Governance and regulation

Sense is a charitable company registered with the
Charity Commission The Charity Commission for England and Wales is a non-ministerial department of His Majesty's Government that regulates registered charities in England and Wales and maintains the Central Register of Charities. Its counterparts in Scotland and ...
. It is also regulated by the
Care Quality Commission The Care Quality Commission (CQC) is an executive non-departmental public body of the Department of Health and Social Care of the United Kingdom. It was established in 2009 to regulate and inspect health and social care providers in England. It ...
,
Ofsted The Office for Standards in Education, Children's Services and Skills (Ofsted) is a non-ministerial department of His Majesty's government, reporting to Parliament. Ofsted's role is to make sure that organisations providing education, training ...
(Office For Standards In Education) and
Care Inspectorate Wales The Care Inspectorate Wales (formerly known as Care and Social Services Inspectorate Wales) () is a scrutiny body which supports improvement. They look at the quality of care in Wales to ensure it meets high standards. Where improvement is nee ...
(CIW).


Royal patronage

Princess Anne Anne, Princess Royal (Anne Elizabeth Alice Louise; born 15 August 1950) is a member of the British royal family. She is the second child and only daughter of Queen Elizabeth II and Prince Philip, Duke of Edinburgh, and the only sister of King ...
, the
Princess Royal Princess Royal is a substantive title, title customarily (but not automatically) awarded by British monarchs to their eldest daughters. Although purely honorary, it is the highest honour that may be given to a female member of the royal famil ...
is the patron of Sense. In December 2020, Princess Anne was thanked for her work by a disabled teenager supported by Sense.


Guinness World Record

Sense is notable for holding the world's largest
tactile signing Tactile signing is a common means of communication used by people with deafblindness. It is based on a sign language or another system of manual communication. "Tactile signing" refers to the mode or medium, i.e. signing (using some form of signe ...
lesson. This took place in
London London is the Capital city, capital and List of urban areas in the United Kingdom, largest city of both England and the United Kingdom, with a population of in . London metropolitan area, Its wider metropolitan area is the largest in Wester ...
on 2 October 2018 and involved 390 participants.


References

{{DEFAULTSORT:Sense, UK charity Charities for disabled people based in the United Kingdom Measles Rubella Deafblindness Deafness organisations based in the United Kingdom Blindness organisations in the United Kingdom Deafness charities Blindness charities