The Huntington's Disease Association (HDA) is a charity that supports people in

England England is a Countries of the United Kingdom, country that is part of the United Kingdom. It is located on the island of Great Britain, of which it covers about 62%, and List of islands of England, more than 100 smaller adjacent islands. It ...

and

Wales Wales ( ) is a Countries of the United Kingdom, country that is part of the United Kingdom. It is bordered by the Irish Sea to the north and west, England to the England–Wales border, east, the Bristol Channel to the south, and the Celtic ...

affected by the genetic

neurodegenerative A neurodegenerative disease is caused by the progressive loss of neurons, in the process known as neurodegeneration. Neuronal damage may also ultimately result in their death. Neurodegenerative diseases include amyotrophic lateral sclerosis, mul ...

brain condition

Huntington's disease Huntington's disease (HD), also known as Huntington's chorea, is an incurable neurodegenerative disease that is mostly Genetic disorder#Autosomal dominant, inherited. It typically presents as a triad of progressive psychiatric, cognitive, and ...

(HD). The HDA was founded in 1986 and is based in

Liverpool Liverpool is a port City status in the United Kingdom, city and metropolitan borough in Merseyside, England. It is situated on the eastern side of the River Mersey, Mersey Estuary, near the Irish Sea, north-west of London. With a population ...

. It supports a network of regional care advisors who offer care and support to people with and at risk of Huntington's disease and their families. The HDA also has a research programme that supports scientific and social research into HD. It has worked to establish and support a network of

multidisciplinary An academic discipline or academic field is a subdivision of knowledge that is taught and researched at the college or university level. Disciplines are defined (in part) and recognized by the academic journals in which research is published, ...

clinics for HD patients in the UK. The charity was instrumental in the 2010 launch of an All-Party Parliamentary Group for Huntington's disease in the

UK Parliament The Parliament of the United Kingdom of Great Britain and Northern Ireland is the supreme legislative body of the United Kingdom, and may also legislate for the Crown Dependencies and the British Overseas Territories. It meets at the Palace of ...

, chaired by Lord Walton of Detchant, and 2010 research revealing that the

prevalence In epidemiology, prevalence is the proportion of a particular population found to be affected by a medical condition (typically a disease or a risk factor such as smoking or seatbelt use) at a specific time. It is derived by comparing the number o ...

of HD is much higher than previously thought. The HDA won the 2005 UK Charity Award for healthcare and medical research and the 2005

National Health Service The National Health Service (NHS) is the term for the publicly funded health care, publicly funded healthcare systems of the United Kingdom: the National Health Service (England), NHS Scotland, NHS Wales, and Health and Social Care (Northern ...

(NHS) Health and Social Care Award for long term conditions. The HDA's patrons are singer

Tony Hadley Anthony Patrick Hadley (born 2 June 1960) is an English pop singer. He rose to fame in the 1980s as the lead singer of the New wave music, new wave band Spandau Ballet and launched a solo career following the group's split in 1990. Hadley retur ...

and entertainer

Shane Richie Shane Patrick Paul Roche (born 11 March 1964), known as Shane Richie, is an English actor, comedian, presenter and singer. Following initial success as a stage and screen performer, he became best known for his portrayal of the character Alfie ...

. The HDA is part of the UK HD Alliance, along with the Scottish Huntington's Association and HD Association Northern Ireland. It is also a member of the International Huntington Alliance.

References

External links

Huntington's Disease Association website

International Huntington Alliance
Health charities in the United Kingdom Huntington's disease {{UK-charity-stub