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The Groningen Protocol is a medical protocol created in September 2004 by Eduard Verhagen, the medical director of the department of
pediatrics Pediatrics (American English) also spelled paediatrics (British English), is the branch of medicine that involves the medical care of infants, children, Adolescence, adolescents, and young adults. In the United Kingdom, pediatrics covers many o ...
at the University Medical Center Groningen (UMCG) in
Groningen Groningen ( , ; ; or ) is the capital city and main municipality of Groningen (province), Groningen province in the Netherlands. Dubbed the "capital of the north", Groningen is the largest place as well as the economic and cultural centre of ...
, the Netherlands. It contains directives with criteria under which physicians can perform "active ending of life on infants" ( child euthanasia) without fear of legal prosecution.


Origin

The protocol was created by a committee of physicians and others at the University Medical Center
Groningen Groningen ( , ; ; or ) is the capital city and main municipality of Groningen (province), Groningen province in the Netherlands. Dubbed the "capital of the north", Groningen is the largest place as well as the economic and cultural centre of ...
, in consultation with the Groningen district attorney, and has been ratified by the Dutch National Association of Pediatricians. According to its authors, the Groningen Protocol was developed to assist with the decision-making process when considering actively ending the life of a newborn, by providing the information required to assess the situation within a legal and medical framework. In July 2005 the protocol was declared to be mandatory by the Dutch Society for Pediatrics.


Protocol

The protocol, drawn up after extensive consultation between physicians, lawyers, parents and the Prosecution Office, offers procedures and guidelines to achieve the correct decision and performance. The final decision about "active ending of life on infants" is ''not'' in the hands of the physicians but with the parents, with physicians and social workers agreeing to it. Criteria are, amongst others, "unbearable suffering" and "expected quality of life". Only the parents may initiate the procedure. The procedure is reported to be working well. For the Dutch public prosecutor, the termination of a child's life (under age 1) is acceptable if four requirements were properly fulfilled: #The presence of hopeless and unbearable suffering. #The consent of the parents to termination of life. #Medical consultation having taken place. #Careful execution of the termination. Doctors who end the life of a baby must report the death to the local medical examiner, who in turn reports it to both the district attorney and to a review committee. The procedure differs in this respect from the
black letter law In common law legal systems, black-letter law refers to well-established legal rules that are no longer subject to reasonable dispute. Black-letter law can be contrasted with legal theory or unsettled legal issues. History and etymology In an 1 ...
governing voluntary euthanasia. There, the medical examiner sends the report only to the regional review committee, which alerts the district attorney only if it judges that the physician acted improperly.


Legal status

The Dutch euthanasia laws require people to ask for euthanasia themselves (
voluntary euthanasia Voluntary euthanasia is the purposeful ending of another person's life at their request, in order to relieve them of suffering. Voluntary euthanasia and physician-assisted suicide (PAS) have been the focus of intense debate in the 21st century, ...
), and it is legal for people of 12 years and older. In the
Netherlands , Terminology of the Low Countries, informally Holland, is a country in Northwestern Europe, with Caribbean Netherlands, overseas territories in the Caribbean. It is the largest of the four constituent countries of the Kingdom of the Nether ...
, euthanasia remains technically illegal for patients under the age of 12. The Groningen Protocol does not give physicians unassailable legal protection. Case law has so far protected physicians from prosecution as long as they act in accordance with the protocol, but no black-letter law exists in this area. In April 2023 the Dutch parliament released a statement that an arrangement will be introduced for the termination of life of seriously ill and untreatable children aged 1 to 12. This arrangement follows some areas of the Groningen protocol: "It will concern children with such a serious illness or disorder that death is inevitable and the death of these children is expected in the foreseeable future."


Review

In 2005 a review study was undertaken of all 22 reported cases between 1997 and 2004. All cases concerned newborns with
spina bifida Spina bifida (SB; ; Latin for 'split spine') is a birth defect in which there is incomplete closing of the vertebral column, spine and the meninges, membranes around the spinal cord during embryonic development, early development in pregnancy. T ...
and
hydrocephalus Hydrocephalus is a condition in which cerebrospinal fluid (CSF) builds up within the brain, which can cause pressure to increase in the skull. Symptoms may vary according to age. Headaches and double vision are common. Elderly adults with n ...
. In all cases, at least 2 doctors were consulted outside the medical team. In 17 of 22 cases, a multidisciplinary spina bifida team was consulted. All parents consented to the termination of life; in 4 cases they explicitly requested it. The mean time between reporting of the case and the decision concerning prosecution was 5.3 months. None of the cases led to prosecution. The study concluded that all cases of active termination of life reported were found to be in accordance with good practice.


Reception

The protocol is controversial and has been attacked by anti-
euthanasia Euthanasia (from : + ) is the practice of intentionally ending life to eliminate pain and suffering. Different countries have different Legality of euthanasia, euthanasia laws. The British House of Lords Select committee (United Kingdom), se ...
campaigner Wesley J. Smith, Senior Fellow at the conservative think tank
Discovery Institute The Discovery Institute (DI) is a conservatism in the United States, politically conservative think tank that advocates the pseudoscience, pseudoscientific concept Article available froUniversiteit Gent of intelligent design (ID). It was fou ...
, who described it as an attempt to legalize
infanticide Infanticide (or infant homicide) is the intentional killing of infants or offspring. Infanticide was a widespread practice throughout human history that was mainly used to dispose of unwanted children, its main purpose being the prevention of re ...
. Several studies have questioned the basis for the protocol and have recommended abandoning it; however,
bioethicist Bioethics is both a field of study and professional practice, interested in ethics, ethical issues related to health (primarily focused on the human, but also increasingly includes animal ethics), including those emerging from advances in biolo ...
Jacob M. Appel Jacob M. Appel (born February 21, 1973) is an American polymath, author, bioethicist, physician, lawyer, and social critic.Nagamatsu, Sequoia "A Few Words with the Ubiquitous Jacob M. Appel" ''Prince Mincer'' Journal http://primemincer.com/ con ...
of
New York University New York University (NYU) is a private university, private research university in New York City, New York, United States. Chartered in 1831 by the New York State Legislature, NYU was founded in 1832 by Albert Gallatin as a Nondenominational ...
has said that the protocol is a success and should be expanded.
Hilde Lindemann Hilde Lindemann (also ''Hilde Lindemann Nelson'') is an American philosophy professor and bioethicist and emerita professor at Michigan State University. Lindemann earned her B.A. in German language and literature in 1969 at the University of Geo ...
and Marian Verkerk said that the policy must be evaluated in the context of Dutch culture and medicine, but Eric Kodish has harshly criticized the protocol and its premises in an article published in ''
The Lancet ''The Lancet'' is a weekly peer-reviewed general medical journal, founded in England in 1823. It is one of the world's highest-impact academic journals and also one of the oldest medical journals still in publication. The journal publishes ...
''. Kodish concluded by inviting resistance to the protocol by means of civil disobedience against the medical institutionalization of infanticide.


See also

*
Futile medical care Futile medical care is the continued provision of medical care or treatment to a patient when there is no reasonable hope of a cure or benefit. Some proponents of evidence-based medicine suggest discontinuing the use of any treatment that has not ...


References

Notes Further reading * *{{cite journal , author=Manninen BA , title=A case for justified non-voluntary active euthanasia: exploring the ethics of the Groningen Protocol , journal=J Med Ethics , volume=32 , issue=11 , pages=643–51 , date=November 2006 , pmid=17074822 , pmc=2563300 , doi=10.1136/jme.2005.014845 Groningen (city) Euthanasia in the Netherlands
Netherlands , Terminology of the Low Countries, informally Holland, is a country in Northwestern Europe, with Caribbean Netherlands, overseas territories in the Caribbean. It is the largest of the four constituent countries of the Kingdom of the Nether ...