Children's Craniofacial Association
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The Children's Craniofacial Association (CCA) is a United States–based
nonprofit organization A nonprofit organization (NPO), also known as a nonbusiness entity, nonprofit institution, not-for-profit organization, or simply a nonprofit, is a non-governmental (private) legal entity organized and operated for a collective, public, or so ...
supporting individuals and families with facial disfigurements. CCA is a family support organization recognized by governmental, educational and medical healthcare agencies across the US.


Children's Craniofacial Association's National Spokesperson is actor, entertainer Cher

Cher became CCA's National Spokesperson in 1990. In 1985, Cher starred in the movie
Mask A mask is an object normally worn on the face, typically for protection, disguise, performance, or entertainment, and often employed for rituals and rites. Masks have been used since antiquity for both ceremonial and practical purposes, ...
,a film about the life of Rocky Dennis, who had a rare craniofacial condition called Craniodiaphyseal Dysplasia. Cher attended an event in Washington, DC in September 1990, where families affected by craniofacial conditions testified before the House Budget Committee. During that week, she joined ten families on a visit to the White House hosted by then, First Lady,
Barbara Bush Barbara Bush (; June 8, 1925 â€“ April 17, 2018) was the first lady of the United States from 1989 to 1993, as the wife of the 41st president of the United States, George H. W. Bush. She was previously second lady of the United States fr ...
. During her
Love Hurts "Love Hurts" is a song written and composed by the American songwriter Boudleaux Bryant. First recorded by the Everly Brothers in July 1960, the song is most well known in two hit versions by UK artists: by Scottish hard rock band Nazareth in ...
,
Believe Believe may refer to: *Belief, a psychological state in which an individual holds a proposition or premise to be true, with or without proof for such proposition *Faith, a belief in something which has not been proven Arts, entertainment, and me ...
and
Farewell Tour A concert tour (or simply tour) is a series of concerts by an artist or group of artists in different cities, countries or locations. Often, concert tours are named to differentiate different tours by the same artist and to associate a specific ...
s, Cher often invited children with craniofacial conditions back stage to visit.


Publications


Quarterly Newsletter

CCA publishes a quarterly newsletter containing articles written by craniofacial surgeons, healthcare providers, family members and others.


See also

*
Goldenhar syndrome Goldenhar syndrome is a rare congenital defect characterized by incomplete development of the ear, nose, soft palate, lip and mandible on usually one side of the body. Common clinical manifestations include limbal dermoids, preauricular skin tag ...
* Peter Dankelson


References

{{Reflist Medical and health organizations based in Texas