The Alzheimer's Association is a
nonprofit
A nonprofit organization (NPO), also known as a nonbusiness entity, nonprofit institution, not-for-profit organization, or simply a nonprofit, is a non-governmental (private) legal entity organized and operated for a collective, public, or so ...
voluntary health organization that focuses on
Alzheimer's disease
Alzheimer's disease (AD) is a neurodegenerative disease and the cause of 60โ70% of cases of dementia. The most common early symptom is difficulty in remembering recent events. As the disease advances, symptoms can include problems wit ...
care, support and research.
History
Jerome H. Stone founded the Alzheimer's Association with the help of several family support groups after meeting with the
National Institute on Aging in 1979.
Stone's efforts began in 1970 when his wife was first diagnosed with Alzheimer's. During the 1970s, there was very little information available about the disease, and only a few support groups existed at the time. Stone joined with seven independent groups who wanted to form a national organization. The groups consisted of researchers, physicians, caregivers and other humanitarians. Together, they held their first meeting on December 4, 1979, to discuss solutions for the need for Alzheimer's information and care and a cure for the disease.
The Alzheimer's Disease and Related Disorders Association was incorporated on April 10, 1980. In that year, the
National Institutes of Health
The National Institutes of Health (NIH) is the primary agency of the United States government responsible for biomedical and public health research. It was founded in 1887 and is part of the United States Department of Health and Human Service ...
(NIH) invested $13 million in Alzheimer's disease research. In 1982, President
Ronald Reagan
Ronald Wilson Reagan (February 6, 1911 โ June 5, 2004) was an American politician and actor who served as the 40th president of the United States from 1981 to 1989. He was a member of the Republican Party (United States), Republican Party a ...
designated the first National Alzheimer's Disease Awareness Week.
The Association affirms to be the world's largest nonprofit funder of Alzheimer's research and the nonprofit with the highest impact worldwide.
It has chapters in communities across the nation, with its home office located in Chicago and a public policy office in Washington, D.C.
The Alzheimer's Association 24/7 Helpline (800.272.3900) is available 365 days a year. Through this free service, specialists and master's-level clinicians offer confidential support and information to people living with dementia, caregivers, families and the public. The Association also has free online tools to help people find answers, local resources and support.
In January 2023, Joanne
Pike succeeded Harry Johns as Association president and CEO, becoming the first woman to hold these positions in the organization's history.
Events
Walk to End Alzheimer's
Held annually in more than 600 communities nationwide, the Alzheimer's Association Walk to End Alzheimer's is a fundraiser for Alzheimer's care, support and research. Participants are encouraged to raise critical funds that allow the Alzheimer's Association to provide 24/7 care and support and advance research toward methods of prevention, treatment and, ultimately, a cure.
The Longest Day
The Longest Day is the day with the most sunlight โ the
summer solstice
The summer solstice or estival solstice occurs when one of Earth's poles has its maximum tilt toward the Sun. It happens twice yearly, once in each hemisphere ( Northern and Southern). The summer solstice is the day with the longest peri ...
. The Longest Day participants fight the darkness of Alzheimer's and all other dementia through a fundraising activity of their choice on a day that works for them. With sports tournaments, card games, parties, baking and more, participants raise funds to advance the care, support and research efforts of the Alzheimer's Association.
Ride to End Alzheimer's
The Alzheimer's Association Ride to End ALZ is a cycling event for the fundraising and public awareness about the Alzheimer's disease, aimed at occasional cyclists and enthusiasts.
Publications
The Alzheimer's Association publishes ''Alzheimer's & Dementia'', an
open access
Open access (OA) is a set of principles and a range of practices through which nominally copyrightable publications are delivered to readers free of access charges or other barriers. With open access strictly defined (according to the 2001 de ...
and peer-reviewed journal that also provides the research and patient community with a collaborative
forum.
Alzheimer's Impact Movement
The Alzheimer's Impact Movement (AIM) is a separately incorporated
501(c)(4)
A 501(c) organization is a nonprofit organization in the Law of the United States#Federal law, federal law of the United States according to Internal Revenue Code (26 U.S.C. ยง 501(c)). Such organizations are exempt from some Taxation in the Un ...
advocacy affiliate of the Alzheimer's Association. AIM works to secure policies to overcome Alzheimer's and dementia, including increased investment in research, improved care and support, and development of approaches to reduce the risk of developing dementia. Working at the federal and state level, AIM advances the public policy priorities of the Alzheimer's and dementia community.
Alzheimer's Impact Movement Advocacy Forum
The Alzheimer's Impact Movement (AIM) Advocacy Forum is an annual gathering that takes place in the spring in Washington, D.C. The multiday event includes training sessions, celebrity guests, the National Alzheimer's Dinner, and topical presentations focusing on Alzheimer's disease policymaking and legislation. The feature of the event is a lobby day during which time volunteer attendees conduct meetings with members of Congress on Capitol Hill.
Transparency
The Alzheimer's Association publicly shares its governance policies, financial reports and partnership information.
References
External links
*
Alzheimer's Impact Movement* (peer-reviewed and
open access
Open access (OA) is a set of principles and a range of practices through which nominally copyrightable publications are delivered to readers free of access charges or other barriers. With open access strictly defined (according to the 2001 de ...
scientific journal published by
John Wiley & Sons
John Wiley & Sons, Inc., commonly known as Wiley (), is an American Multinational corporation, multinational Publishing, publishing company that focuses on academic publishing and instructional materials. The company was founded in 1807 and pr ...
)
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Alzheimer's and dementia organizations
Organizations established in 1980
Non-profit organizations based in Chicago
Mental health organizations based in Illinois