Baby M (Australia)
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Baby M (14 July 1989 – 26 July 1989) was the pseudonym of an Australian girl named Allison who was born with severe birth defects, whose treatment and eventual death caused significant controversy and international discussion about the
medical ethics Medical ethics is an applied branch of ethics which analyzes the practice of clinical medicine and related scientific research. Medical ethics is based on a set of values that professionals can refer to in the case of any confusion or conflict. T ...
of disabled newborns. Right to Life activists accused her parents and the hospital of murdering the infant, leading to a lengthy legal inquest.


Baby M

In July 1989, Allison was born at
Royal Children's Hospital The Royal Children's Hospital (RCH) is a major children's hospital in Melbourne, Australia. As a major specialist paediatric hospital in Victoria, the Royal Children's Hospital provides a full range of clinical services, tertiary care, as well ...
in
Melbourne Melbourne ( ; Boonwurrung/Woiwurrung: ''Narrm'' or ''Naarm'') is the capital and most populous city of the Australian state of Victoria, and the second-most populous city in both Australia and Oceania. Its name generally refers to a met ...
with severe birth defects. She had an extreme case of
spina bifida Spina bifida (Latin for 'split spine'; SB) is a birth defect in which there is incomplete closing of the spine and the membranes around the spinal cord during early development in pregnancy. There are three main types: spina bifida occulta, me ...
that left her paralysed below the waist, and she had a brain malformation marked by
hydrocephalus Hydrocephalus is a condition in which an accumulation of cerebrospinal fluid (CSF) occurs within the brain. This typically causes increased intracranial pressure, pressure inside the skull. Older people may have headaches, double vision, poor ...
that meant she was most likely mentally disabled and would have seizures. Within days she developed severe breathing issues. Neonatal physician Peter Loughnan informed her parents of their daughter's poor outlook and the low quality of life she would face if she survived. He recommended the parents consider a "conservative treatment, in which Allison would be cuddled, fed and relieved of any pain," with no life-saving measures performed. He consulted with other specialists, including fellow neonatal physician Peter McDougall, who "strongly supported" Loughnan's assessment of the infant. They believed any surgery would be futile. After consulting two Catholic priests and seeking guidance from relatives, Allison's parents agreed with the doctor's recommendation. A relative informed the Victorian
Right to Life The right to life is the belief that a being has the right to live and, in particular, should not be killed by another entity. The concept of a right to life arises in debates on issues including capital punishment, with some people seeing it as ...
association of the parents' decision to withhold lifesaving treatment upon advice of medical staff. When Allison was seven days old, the activists arrived at Royal Children's Hospital and demanded to see her parents, announcing they wanted to adopt her. When this was unsuccessful, the activists called the police and told them a baby was being drugged and starved to death at the hospital, causing detectives to investigate. After Allison's death at 12 days old, the Right to Life group accused the parents and the doctors of murdering her.


Inquest and rule of law

In addition to media and public attention, the case was particularly unique as the medical practice of withdrawing life-saving treatment from the baby lacked "explicit legal backing" in Australia. In actuality, in a similar 1986 case, Justice Frank Vincent of the
Supreme Court of Victoria The Supreme Court of Victoria is the highest court in the Australian state of Victoria. Founded in 1852, it is a superior court of common law and equity, with unlimited and inherent jurisdiction within the state. The Supreme Court comprises ...
ordered the same hospital to take "all necessary means" to save a nine-day-old baby boy with spina bifida. During the 1986 case, Justice Vincent ruled that nobody "has any power to determine that the life of any child, however disabled that child may be, will be deliberately taken away from it .... he lawdoes not permit any decisions to be made concerning the quality of life, nor does it enable ... any assessment to be made as to the value of any human being." In that case, the grandparents had sought legal means to keep the baby alive, and Justice Vincent made the baby a ward of the court. However, the doctors and hospital did not present their side to the court or provide evidence to explain their recommendation. In 1991, a hearing into the Baby M case lasted five months. The Deputy Coroner Wendy Wilmoth ruled that Allison had died of natural causes, and chastised the Right to Life group. "The decisions made by her doctors and her parents, and the careful steps taken to ensure these decisions were legally, ethically and morally sound, have been tested and found entirely reasonable and appropriate," Wilmoth stated. The child's parents and the medical staff were exonerated of all wrongdoing. Television journalist
Jill Singer Jill Leonie Singer (1957 – 8 June 2017) was an Australian journalist, writer and television presenter. Career Singer began her career in journalism as an ABC radio trainee in 1984. She eventually became a senior reporter for '' The 7.30 Rep ...
's coverage of the case and inquest, a report entitled, ''Baby M'', was broadcast on ''
The 7.30 Report ''The 7.30 Report'' is an Australian week-nightly television current affairs program, which was shown on ABC1 and ABC News 24 at from 1986 to 2011. In 2011, it evolved into ''7.30'', a revamped current affairs program. History ''The 7.30 Report ...
'' in 1992. It once again brought the case to the public, which prompted the Victorian Law Reform Commission to introduce new guidelines for doctors and parents in dealing with disabled and sick newborn babies. Singer won the Walkley Award for Best Investigative Report for ''Baby M''.


Later developments

In 2010, Allison's parents gave Loughnan and McDougall permission to speak publicly about the case, which they did at a medical ethics conference, "Tackling Ethical Dilemmas in Intensive Care."


See also

*
Baby K Stephanie Keene (October 13, 1992 – April 5, 1995), better known by the pseudonym Baby K, was an anencephalic baby who became the center of a major American court case and a debate among bioethicists. History Prenatal assessment Stephanie Ke ...


References

{{DEFAULTSORT:M, Baby 1989 births 1989 deaths People from Melbourne Medical controversies in Australia People with hydrocephalus People with spina bifida Pseudonymous children Child deaths