Stephen Heywood (April 13, 1969 – November 26, 2006) was an American
builder and self-taught
architect
An architect is a person who plans, designs and oversees the construction of buildings. To practice architecture means to provide services in connection with the design of buildings and the space within the site surrounding the buildings that h ...
, specializing in the renovation of old houses.
He was diagnosed with
ALS
Amyotrophic lateral sclerosis (ALS), also known as motor neuron disease (MND) or Lou Gehrig's disease, is a neurodegenerative disease that results in the progressive loss of motor neurons that control voluntary muscles. ALS is the most com ...
in 1998, at the age of 29. He was the subject of ''
His Brother's Keeper: A Story from the Edge of Medicine'', written by the
Pulitzer Prize
The Pulitzer Prize () is an award for achievements in newspaper, magazine, online journalism, literature, and musical composition within the United States. It was established in 1917 by provisions in the will of Joseph Pulitzer, who had made h ...
-winning author
Jonathan Weiner
Jonathan Weiner (born November 26, 1953) is an American writer of non-fiction books based on his biological observations, focusing particularly on evolution in the Galápagos Islands, genetics, and the environment.
His latest book is ''Long for ...
, and the documentary film ''
So Much So Fast'', which premiered at the 2006
Sundance Film Festival
The Sundance Film Festival (formerly Utah/US Film Festival, then US Film and Video Festival) is an annual film festival organized by the Sundance Institute. It is the largest independent film festival in the United States, with more than 46,66 ...
.
His brothers
James Heywood and Benjamin Heywood are co-founders of a website for patients with ALS and other life-changing illnesses,
PatientsLikeMe
PatientsLikeMe is the world’s largest integrated community, health management, and real-world data platform. Through PatientsLikeMe, a growing community of more than 830,000 people with over 2,900 conditions share personal stories and informat ...
; his father is the engineering professor
John B. Heywood.
Heywood lived in
Newton, Massachusetts
Newton is a city in Middlesex County, Massachusetts, United States. It is approximately west of downtown Boston. Newton resembles a patchwork of thirteen villages, without a city center. According to the 2020 U.S. Census, the population of Ne ...
, with his wife and son until his death at age 37 from an accidentally detached respirator in November 2006.
References
External links
So Much So Fast''
Frontline
Front line refers to the forward-most forces on a battlefield.
Front line, front lines or variants may also refer to:
Books and publications
* ''Front Lines'' (novel), young adult historical novel by American author Michael Grant
* ''Frontlines ...
''
PatientsLikeMe.com a website for patients with ALS and other life-altering conditions, set up by Stephen's brothers Jamie and Ben Heywood
1969 births
2006 deaths
Deaths from motor neuron disease
Neurological disease deaths in Massachusetts
People from Newton, Massachusetts
Place of birth missing
Place of death missing
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