Shine (a name derived from Spina bifida, Hydrocephalus, Information, Networking and Equality) (formerly known as ASBAH) is a
UK registered
charity providing information and advice about
spina bifida and
hydrocephalus
Hydrocephalus is a condition in which an accumulation of cerebrospinal fluid (CSF) occurs within the brain. This typically causes increased intracranial pressure, pressure inside the skull. Older people may have headaches, double vision, poor ...
to individuals, families and carers.
Their services are targeted towards:
*support to parents before and around the birth of their baby, or diagnosis of the disability
*support to the child and family on educational matters
*specialised information and help on health matters
*helping young people access services to progress towards control of their lives
*responding to the needs of adults with spina bifida and/or hydrocephalus.
They do this by employing a network of advisers throughout
England
England is a country that is part of the United Kingdom. It shares land borders with Wales to its west and Scotland to its north. The Irish Sea lies northwest and the Celtic Sea to the southwest. It is separated from continental Europe b ...
,
Wales
Wales ( cy, Cymru ) is a Countries of the United Kingdom, country that is part of the United Kingdom. It is bordered by England to the Wales–England border, east, the Irish Sea to the north and west, the Celtic Sea to the south west and the ...
and
Northern Ireland
Northern Ireland ( ga, Tuaisceart Éireann ; sco, label= Ulster-Scots, Norlin Airlann) is a part of the United Kingdom, situated in the north-east of the island of Ireland, that is variously described as a country, province or region. Nort ...
who deliver advice, support and advocacy services. Their staff also include specialist advisers in education, health and continence management.
Shine works in partnership with a network of independent affiliated local associations to share information and promote good practice, and to deliver a range of support and specialist services.
Advisory committees for medical matters and education are composed of professionals from the relevant fields who offer guidance for ASBAH's services.
Shine's work is financed by voluntary donations, trading activities and grants from charitable and corporate trusts.
Conductor with spina bifida
Jeffrey Tate, CBE, has been their president since 1989. Footballer
Danny Mills is a patron.
References
External links
* {{Official website, www.shinecharity.org.uk
Health and disability rights organisations in the United Kingdom
Charities for disabled people based in the United Kingdom