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Mad studies is a field of scholarship, theory, and activism about the lived experiences, history, cultures, and politics about people who may identify as mad, mentally ill, psychiatric survivors, consumers, service users, patients, neurodivergent, and disabled. Mad studies originated from consumer/survivor movements organized in Canada, the United States, the United Kingdom, Australia, and in other parts of the world. The methods for inquiry draw from a number of academic disciplines such as
women's studies Women's studies is an academic field that draws on feminist and interdisciplinary methods to place women's lives and experiences at the center of study, while examining social and cultural constructs of gender; systems of privilege and oppress ...
, critical race studies, indigenous epistemologies,
queer studies Queer studies, sexual diversity studies, or LGBT studies is the education of topics relating to sexual orientation and gender identity usually focusing on lesbian, gay, bisexual, transgender, gender dysphoria, asexual, queer, questioning, inte ...
, psychological anthropology, and
ethnography Ethnography (from Greek ''ethnos'' "folk, people, nation" and ''grapho'' "I write") is a branch of anthropology and the systematic study of individual cultures. Ethnography explores cultural phenomena from the point of view of the subject o ...
. This field shares theoretical similarities to critical
disability studies Disability studies is an academic discipline that examines the meaning, nature, and consequences of disability. Initially, the field focused on the division between "impairment" and "disability," where impairment was an impairment of an individual ...
, psychopolitics, and
critical social theory A critical theory is any approach to social philosophy that focuses on society and culture to reveal, critique and challenge power structures. With roots in sociology and literary criticism, it argues that social problems stem more from socia ...
. The academic movement formed, in part, as a response to
recovery Recovery or Recover may refer to: Arts and entertainment Books * Recovery (novel), ''Recovery'' (novel), a Star Wars e-book * Recovery Version, a translation of the Bible with footnotes published by Living Stream Ministry Film and television * R ...
movements, which many mad studies scholars see as being "co-opted" by mental health systems. In 2021 the first academic journal of Mad Studies, The International Journal of Mad Studies was launched.


Origins and scope

Richard A. Ingram, a senior research fellow in the School of Disability Studies at
Ryerson University Toronto Metropolitan University (TMU or Toronto Met) is a public university, public research university located in Toronto, Ontario, Canada. The university's core campus is situated within the Garden District, Toronto, Garden District, although i ...
(2007), has been credited with coining the phrase "Mad Studies" at the First Regional Graduate/Undergraduate Student Disability Studies Conference at Syracuse University on May 3, 2008. In an academic article entitled "Doing Mad Studies: Making (Non)sense Together," Ingram points to a number of theorists who created the intellectual groundwork for the field, including Nietzsche, Bataille,
Blanchot Maurice Blanchot (; ; 22 September 1907 – 20 February 2003) was a French writer, philosopher and literary theorist. His work, exploring a philosophy of death alongside poetic theories of meaning and sense, bore significant influence on post- ...
,
Deleuze Gilles Louis René Deleuze ( , ; 18 January 1925 – 4 November 1995) was a French philosopher who, from the early 1950s until his death in 1995, wrote on philosophy, literature, film, and fine art. His most popular works were the two volu ...
, and Guattari. In a 2014 ''
Guardian Guardian usually refers to: * Legal guardian, a person with the authority and duty to care for the interests of another * ''The Guardian'', a British daily newspaper (The) Guardian(s) may also refer to: Places * Guardian, West Virginia, Unite ...
'' article,
Peter Beresford Peter Beresford OBE, FAcSS, FRSA (born 1 May 1945) is a British academic, writer, researcher and activist best known for his work in the field of citizen participation and user involvement, areas of study he helped to create and develop. He is c ...
names Canadian scholars at the forefront of this academic field: "Mad studies has been pioneered by Ryerson and
York York is a cathedral city with Roman origins, sited at the confluence of the rivers Ouse and Foss in North Yorkshire, England. It is the historic county town of Yorkshire. The city has many historic buildings and other structures, such as a ...
Universities in Toronto, with key figures such as mental health survivors, activists and educators
David Reville David R. Reville (born April 19, 1943) is a former politician in Ontario, Canada, and an activist and educator active in Mad Pride, mad studies, and disability studies. Reville was a New Democratic member of the Legislative Assembly of Ontario ...
and Geoffrey Reaume and academics Kathryn Church and Brenda LeFrancois." Journalist Alex Gillis summarizes the spread of mad studies programs in a November 2015 article: "Soon after Ryerson and York launched mad studies courses in the early 2000s, similar courses began in Simon Fraser University’s department of sociology and anthropology, and more recently at Memorial University’s school of social work, Queen’s University’s school of
kinesiology Kinesiology () is the scientific study of human body movement. Kinesiology addresses physiological, anatomical, biomechanical, pathological, neuropsychological principles and mechanisms of movement. Applications of kinesiology to human health ...
and health studies, and the history departments at Trent University and the University of Winnipeg. A few universities in England, Scotland and the Netherlands launched courses in the past two years, using Canadian courses as models." Some dimensions of this emerging field may include research on the "social construction of 'mental illness, normalizing imperatives of the state and medicine, rapidly expanding nosologies (categories of pathology) for mental illness, collusion(s) of pharmaceutical corporations and professional associations within psychiatry, connections between ecocide and mental stress, psychiatrization of nonhuman animals, representation(s) of madness in media, history of consumer/survivor movement(s), and the rise and fall of mental treatments within scientific, medical, and lay communities." Mad people have traditionally been excluded from shaping what constitutes expert knowledge about themselves. Mad-positive pedagogies often center on ways Mad persons' experiences represent sites of/for learning holding deep knowledge and value. ″Mad studies represents an evolving interdisciplinary field in which Mad studies scholars often seek to disrupt, counter, and nuance dominant discourses on mental health.″ As such, Mad Studies informed pedagogical approaches emphasize Mad persons' perspectives as a way to counter sanist oppression and reshape curriculum to better appreciate and understand Mad subjects. Thereby refuting a pedagogy of saneness and opening new possibilities. Teaching from a Mad Studies informed lens requires unlearning normativity, rethinking sanist paradigms, and represents a disruptive critical praxis.


Connection with disability studies

Mad studies is greatly connected with
Disability Studies Disability studies is an academic discipline that examines the meaning, nature, and consequences of disability. Initially, the field focused on the division between "impairment" and "disability," where impairment was an impairment of an individual ...
, though it veers from certain discourses. Like disability studies, Mad studies developed from existing activist movements and relies on social models of disability, which argue that "disablement is the outcome of a range of structural, social, cultural and political forces which are disabling, rather than the inevitable consequence of individual impairment." Further, both frameworks hold central the concerns of those impacted by the discourses (i.e., Mad people and people with disabilities), as see those impacted as producing vital knowledge. In part, this means that knowledge produced and circulated about the disciplines must be accessible. However, while the disability movement included Mad individuals, physical disabilities were centered, particularly in developing Disability Studies. This becomes more apparent in the centering of ''impairment'' versus ''disability.'' According to
Disabled Peoples' International Disabled Peoples' International (DPI) is a cross disability, consumer controlled international non-governmental organization (INGO) headquartered in Ottawa, Ontario, Canada, and with regional offices in Asia-Pacific, the Middle East, Europe, Afri ...
, ''impairment'' refers to "the functional limitation within the individual caused by physical, mental or sensory impairment," where ''disability'' refers to "the loss or limitation of opportunities to take part in the normal life of the community on an equal level with others due to physical and social barriers." People with mental health conditions may feel the language of impairment does not apply to their experience. Further, though lay individuals with mental health conditions may dislike the language of madness, they also do not feel the social model of disability adequately represents their needs and struggles.


Conferences and symposiums

* June 12–15, 2008, Simon Fraser University, Madness, Citizenship, and Social Justice Conference * May 2012, Ryerson University, International Conference on Mad Studies * September 9–11, 2014, Lancaster University, Disability Studies Conference (stream that focused on Mad Studies) * May 2015, Bergen, Norway, Nordic Network for Disability Research, Mad Studies Symposium * June 17, 2015, Liverpool, UK, PsychoPolitics in the Twenty First Century: Peter Sedgwick and Radical Movements in Mental Health * June 2015, Lancaster University, Mad Studies and Neurodiversity- Exploring Connections * September 30 - October 1, 2015, Durham University, UK, Making Sense of Mad Studies * September 6–8, 2016, Lancaster University, Disability Studies Conference (stream that focused on Mad Studies) * September 11–13, 2018, Lancaster University, Disability Studies Conference (stream that focused on Mad Studies)


Key texts

* ''This is Survivor Research'', edited by Angela Sweeney,
Peter Beresford Peter Beresford OBE, FAcSS, FRSA (born 1 May 1945) is a British academic, writer, researcher and activist best known for his work in the field of citizen participation and user involvement, areas of study he helped to create and develop. He is c ...
, Allison Faulkner, Mary Nettle, and Diana Rose (2009) * ''Mad at School: Rhetorics of Mental Disability and Academic Life'', by Margaret Price (2011) * ''Mad Matters: A Critical Reader in Canadian Mad Studies'', edited by Brenda A. LeFrançois, Robert Menzies, and Geoffrey Reaume (2013) * ''Psychiatry Disrupted: Theorizing Resistance and Crafting the (R)evolution'', edited by
Bonnie Burstow Bonnie Burstow (March 6, 1945 – January 4, 2020) was a Canadian psychotherapist, author, and anti-psychiatry scholar. She was a professor in the Ontario Institute for Studies in Education (OISE) at the University of Toronto. Burstow argued th ...
, Brenda A. LeFrançois, and Shaindl Diamond (2014) * ''Decolonizing Global Mental Health: The Psychiatrization of the Majority World'' by China Mills (2014) * ''Disability Incarcerated: Imprisonment and Disability in the United States and Canada'', edited by
Liat Ben-moshe Liat Ben-Moshe is a disability scholar and assistant professor of criminology, Law, and Justice at the University of Illinois at Chicago. Ben-Moshe holds a PhD in sociology from Syracuse University with concentrations in Women and Gender Studies a ...
, Allison C. Carey, and Chris Chapman (2014) * ''Madness, Distress, and the Politics of Disablement'', edited by Helen Spandler, Jill Anderson, and Bob Sapey (2015) * ''Psychiatry and the Business of Madness: An Ethical and Epistemological Accounting'' by
Bonnie Burstow Bonnie Burstow (March 6, 1945 – January 4, 2020) was a Canadian psychotherapist, author, and anti-psychiatry scholar. She was a professor in the Ontario Institute for Studies in Education (OISE) at the University of Toronto. Burstow argued th ...
(2015) * ''Searching for a Rose Garden: Challenging Psychiatry, Fostering Mad Studies'', edited by Jasna Russo and Angela Sweeney (2016) * ''Deportation and the Confluence of Violence within Forensic Mental Health and Immigration Systems'' by Ameil J. Joseph (2015)


References

{{reflist Abnormal psychology Identity politics Interdisciplinary subfields of sociology Critical theory