The Lewy Body Dementia Association (LBDA) is a US
nonprofit organization
A nonprofit organization (NPO) or non-profit organisation, also known as a non-business entity, not-for-profit organization, or nonprofit institution, is a legal entity organized and operated for a collective, public or social benefit, in co ...
based in
Lilburn, Georgia
Lilburn is a city in Gwinnett County, Georgia, United States. The population was 14,502 at the 2020 census. The estimated population was 12,810 in 2019. It is a part of the Atlanta metropolitan area.
Geography
Lilburn is located in western Gw ...
, and "dedicated to raising awareness of the
Lewy body dementia
Lewy body dementias are two similar and common subtypes of dementia—dementia with Lewy bodies (DLB) and
Parkinson's disease dementia (PDD). Both are characterized by changes in thinking, movement, behavior, and mood. The two conditions have si ...
s (LBD), supporting people with LBD, their families and caregivers and promoting scientific advances".
Through "outreach, education and research", their mission is to support people affected by LBD.
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Work
According to a 2014 review, the LBDA provides services that aid society and families with LBD. They provide support and awareness, reduce stress on individuals and families with LBD, and may reduce use of healthcare. They help enable better diagnoses and better understanding of LBD.
A 2013 journal review of treatment of dementia with Lewy bodies
Dementia with Lewy bodies (DLB) is a type of dementia characterized by changes in sleep, behavior, cognition, movement, and regulation of automatic bodily functions. Memory loss is not always an early symptom. The disease worsens over time an ...
suggests that caregivers join support groups including the LBDA for helpful information.
In 2018, the LBDA launched a collaboration of 24 US Research Centers of Excellence, coordinated by Mayo Clinic.
History
The LBDA developed in 2003[ ] out of an online support group.[ In 2008, it launched a network of support groups throughout the US.][
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Notes
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External links
Lewy Body Dementia Association Official Website
Cognitive disorders
Lewy body dementia
Health charities in the United States
Health and disability rights organizations in the United States