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Judi Chamberlin (née Rosenberg; October 30, 1944 – January 16, 2010) was an American activist, leader, organizer, public speaker and educator in the
psychiatric survivors movement The psychiatric survivors movement (more broadly consumer/survivor/ex-patient movement) is a diverse association of individuals who either currently access mental health services (known as consumers or service users), or who are survivors of interv ...
. Her political activism followed her involuntary confinement in a psychiatric facility in the 1960s. She was the author of ''On Our Own: Patient-Controlled Alternatives to the Mental Health System,'' which is a foundational text in the
Mad Pride Mad Pride is a mass movement of the users of mental health services, former users, and the aligned, which advocates that individuals with mental illness should be proud of their 'mad' identity. Mad Pride activists seek to reclaim terms such as " m ...
movement.


Early life

Judi Chamberlin was born Judith Rosenberg in Brooklyn in 1944. She was the only daughter of Harold and Shirley Jaffe Rosenberg. The family later changed their name to Ross. Her father was a factory worker when she was a child and later worked as an executive in the advertising industry. Her mother was employed as a school secretary. Chamberlin graduated from
Midwood High School Midwood High School is a high school located at 2839 Bedford Avenue in Brooklyn, New York City, administered by the New York City Department of Education. It has an enrollment of 3,938 students. Its H-shaped building, with six Ionic order, Ionic co ...
. After graduation, she had no plans of attending college and worked as a secretary instead.


Psychiatric experience

In 1966, at the age of twenty-one and recently married, Chamberlin suffered a miscarriage and, according to her own account, became severely depressed. Following psychiatric advice, she voluntarily signed herself into a psychiatric facility as an in-patient. However, after several voluntary admissions she was diagnosed with schizophrenia and involuntarily committed to a psychiatric ward at Mt. Sinai Hospital in New York state for a period of five months. As an involuntary patient, she witnessed and experienced a range of abuses.
Seclusion Seclusion is the act of secluding (i.e. isolating from society), the state of being secluded, or a place that facilitates it (a secluded place). A person, couple, or larger group may go to a secluded place for privacy or peace and quiet. The se ...
rooms and refractory wards were used for resistive patients, even when their forms of resistance were non-violent. The
psychiatric medication A psychiatric or psychotropic medication is a psychoactive drug taken to exert an effect on the chemical makeup of the brain and nervous system. Thus, these medications are used to treat mental illnesses. These medications are typically made o ...
she was given made her feel tired and affected her memory. As an involuntary patient she was unable to leave the facility and became, she said, "a prisoner of the system". The derogation of her
civil liberties Civil liberties are guarantees and freedoms that governments commit not to abridge, either by constitution, legislation, or judicial interpretation, without due process. Though the scope of the term differs between countries, civil liberties may ...
that she experienced as an inmate provided the impetus for her activism as a member of the psychiatric survivor movement.


Activism

Following her discharge, Chamberlin became involved in the nascent psychiatric patients' rights movement. In 1971 she joined the Boston-based Mental Patients Liberation Front (MPLF), and she also became associated with the Center for Psychiatric Rehabilitation at
Boston University Boston University (BU) is a private research university in Boston, Massachusetts. The university is nonsectarian, but has a historical affiliation with the United Methodist Church. It was founded in 1839 by Methodists with its original campu ...
. Her affiliation with this center facilitated her role in co-founding the Ruby Rogers Advocacy and Drop-in-Centers, which are self-help institutions staffed by former psychiatric patients. and was also a founder and later a Director of Education of the
National Empowerment Center The National Empowerment Center (NEC) is an advocacy and peer-support organization in the United States that promotes an empowerment-based recovery model of mental disorders. It is run by consumers/survivors/ex-patients "in recovery" and is located ...
. The latter is also an ex-patient run organization that provides information, technical assistance, and support to users and survivors of the psychiatric system. Its mission statement declares its intent is to "carry a message of recovery, empowerment, hope and healing to people who have been labeled with mental illness". She was also involved with the National Association for Rights Protection and Advocacy and was an influential leader in the Mad Pride movement. Chamberlin met
David Oaks David William Oaks (born September 16, 1955, Chicago, Illinois) is a civil rights activist and founder and former executive director of Eugene, Oregon-based MindFreedom International. Career David Oaks' organization MindFreedom International in ...
in 1976, when he was the chief executive of
MindFreedom International MindFreedom International is an international coalition of over one hundred grassroots groups and thousands of individual members from fourteen nations. Based in the United States, it was founded in 1990 to advocate against Involuntary treatment, ...
. They were both members of the Mental Patients Liberation Front. She later became a board member of MindFreedom International, an umbrella organization for approximately one hundred grass roots groups campaigning for the human rights of people labeled "mentally ill." In 1978, her book ''On Our Own: Patient Controlled Alternatives to the Mental Health System'' was published. It became the standard text of the psychiatric survivor movement, and in it Chamberlain coined the word "
mentalism Mentalism is a performing art in which its practitioners, known as mentalists, appear to demonstrate highly developed mental or intuitive abilities. Performances may appear to include hypnosis, telepathy, clairvoyance, divination, precognition ...
." She used the word "mentalism" also in a book chapter in 1975. She was a major contributor to the
National Council on Disability The National Council on Disability (NCD) is an advisory agency on disability policy in the United States for all levels of government and for private sector entities NCD is an independent agency of the United States government headquartered in ...
's report ''From Privileges to Rights: People Labeled with Psychiatric Disabilities Speak for Themselves'', which was published in 2000. The report argued that psychiatric patients should enjoy the same basic human rights as other citizens and that patient privileges contingent on good behavior within the psychiatric system, such as the ability to wear their own clothes, leave the confines of a psychiatric facility, or receive visitors, should instead be regarded as basic rights. Chamberlin was elected as co-chair of the
World Network of Users and Survivors of Psychiatry The World Network of Users and Survivors of Psychiatry (WNUSP) is an international organisation representing, and led by what it terms " survivors of psychiatry". As of 2003, over 70 national organizations were members of WNUSP, based in 30 countrie ...
(WNUSP) at the launching conference and General Assembly in
Vancouver Vancouver ( ) is a major city in western Canada, located in the Lower Mainland region of British Columbia. As the List of cities in British Columbia, most populous city in the province, the 2021 Canadian census recorded 662,248 people in the ...
,
British Columbia British Columbia (commonly abbreviated as BC) is the westernmost province of Canada, situated between the Pacific Ocean and the Rocky Mountains. It has a diverse geography, with rugged landscapes that include rocky coastlines, sandy beaches, ...
,
Canada Canada is a country in North America. Its ten provinces and three territories extend from the Atlantic Ocean to the Pacific Ocean and northward into the Arctic Ocean, covering over , making it the world's second-largest country by tot ...
in 2001, and served in this capacity until the next General Assembly in 2004. During this period she also served on the Panel of Experts advising the
United Nations The United Nations (UN) is an intergovernmental organization whose stated purposes are to maintain international peace and international security, security, develop friendly relations among nations, achieve international cooperation, and be ...
special rapporteur on
disability Disability is the experience of any condition that makes it more difficult for a person to do certain activities or have equitable access within a given society. Disabilities may be Cognitive disability, cognitive, Developmental disability, dev ...
, on behalf of WNUSP in its role as a
Non-governmental organization A non-governmental organization (NGO) or non-governmental organisation (see spelling differences) is an organization that generally is formed independent from government. They are typically nonprofit entities, and many of them are active in h ...
, representing psychiatric survivors. She appears in the 2011 disability rights documentary ''
Lives Worth Living ''Lives Worth Living'' is a 2011 documentary film directed by Eric Neudel and produced by Alison Gilkey, and broadcast by PBS through ITVS, as part of the Independent Lens series. The film is the first television chronicle of the history of the Am ...
''.


Personal life

Her marriages to Robert Chamberlin, Ted Chabasinski, and Howard Cahn ended in divorce. Chamberlin met Chabasinski, also an early member of the psychiatric survivor movement, in 1971 at the initial meeting of the Mental Patients Liberation Project in New York City. From 2006 until her death, Chamberlin's partner was Martin Federman. She has one daughter, Julie Chamberlin, and three grandchildren, Edward, Kyle, and Vivian.


Death

Chamberlin died from chronic lung disease at her home in
Arlington, Massachusetts Arlington is a New England town, town in Middlesex County, Massachusetts, Middlesex County, Massachusetts. The town is six miles (10 km) northwest of Boston, Massachusetts, Boston, and its population was 46,308 at the 2020 census. History ...
on January 16, 2010.Shapiro, J. (2010)
Advocate for people with mental illnesses dies
''National Public Radio'' (January 19, 2010). Retrieved on January 20, 2010.


Published works

* * * Chamberlin, Judi (1993). 'Erfahrungen und Zielsetzungen der nordamerikanischen Selbsthilfebewegung' (pp. 300–317). In: Kerstin Kempker / Peter Lehmann (Eds.), ''Statt Psychiatrie''. Berlin: Antipsychiatrieverlag. * * * * * * * Chamberlin, Judi (2004). Preface to: Peter Lehmann (ed.), ''Coming off Psychiatric Drugs: Successful withdrawal from neuroleptics, antidepressants, lithium, carbamazepine and tranquilizers'' (pp. 11–13). Berlin / Eugene / Shrewsbury: Peter Lehmann Publishing. (UK), (USA). E-Book in 2018. * Chamberlin, Judi (2014). Πρόλογος. στο: Πέτερ Λέμαν & Άννα Εμμανουηλίδου (επιμ.), ''Βγαί νοντας από τα ψυχοφάρμακα – Εμπειρίες επιτυχημένης διακοπής νευροληπτικών, αντικαταθλιπτικών, σταθεροποιητών διάθεσης, Ριταλίν και ηρεμιστικών'' (σ. 16–21). 2η διορθωμένη και βελτιωμένη έκδοση. Θεσσαλονίκη: εκδ. Νησίδες. .


Awards

*1992: Distinguished Service Award of the President of the United States, National Council on Disability *1992: David J. Vail National Advocacy Award, Mental Health Association of Minnesota *1995: N. Neal Pike Prize for Services to People with Disabilities,
Boston University School of Law Boston University School of Law (Boston Law or BU Law) is the law school of Boston University, a private research university in Boston, Massachusetts. It is consistently ranked among the top law schools in the United States and considered an eli ...


See also

*
MindFreedom International MindFreedom International is an international coalition of over one hundred grassroots groups and thousands of individual members from fourteen nations. Based in the United States, it was founded in 1990 to advocate against Involuntary treatment, ...
*
Psychiatric survivors movement The psychiatric survivors movement (more broadly consumer/survivor/ex-patient movement) is a diverse association of individuals who either currently access mental health services (known as consumers or service users), or who are survivors of interv ...
*
World Network of Users and Survivors of Psychiatry The World Network of Users and Survivors of Psychiatry (WNUSP) is an international organisation representing, and led by what it terms " survivors of psychiatry". As of 2003, over 70 national organizations were members of WNUSP, based in 30 countrie ...
*
National Council on Disability The National Council on Disability (NCD) is an advisory agency on disability policy in the United States for all levels of government and for private sector entities NCD is an independent agency of the United States government headquartered in ...
*
National Empowerment Center The National Empowerment Center (NEC) is an advocacy and peer-support organization in the United States that promotes an empowerment-based recovery model of mental disorders. It is run by consumers/survivors/ex-patients "in recovery" and is located ...
*
Anti-psychiatry Anti-psychiatry is a movement based on the view that psychiatric treatment is often more damaging than helpful to patients, highlighting controversies about psychiatry. Objections include the reliability of psychiatric diagnosis, the questionabl ...
*
Psychiatric survivors movement The psychiatric survivors movement (more broadly consumer/survivor/ex-patient movement) is a diverse association of individuals who either currently access mental health services (known as consumers or service users), or who are survivors of interv ...
*
Involuntary commitment Involuntary commitment, civil commitment, or involuntary hospitalization/hospitalisation is a legal process through which an individual who is deemed by a qualified agent to have symptoms of severe mental disorder is detained in a psychiatric hos ...
*
Biopsychiatry controversy The biopsychiatry controversy is a dispute over which viewpoint should predominate and form a basis of psychiatric theory and practice. The debate is a criticism of a claimed strict biological view of psychiatric thinking. Its critics include dis ...
*
Involuntary treatment Involuntary treatment (also referred to by proponents as assisted treatment and by critics as forced drugging) refers to medical treatment undertaken without the consent of the person being treated. Involuntary treatment is permitted by law in so ...


References


External links


National Empowerment CenterJudi Chamberlin's virtual memorialMindFreedom International: Tribute to Judi Chamberlin (David Oaks)
*Robin Pape
Biography of Judi Chamberlin
in
Biographical Archive of Psychiatry (BIAPSY)
2015.
Judi Chamberlin Papers, 1944-2010 (bulk 1970-2006)
Digital archives collection maintained by the UMass Amherst Special Collections and University Archives {{DEFAULTSORT:Chamberlin, Judi 1944 births People with schizophrenia 2010 deaths Psychiatric survivor activists People from Brooklyn People from Arlington, Massachusetts Midwood High School alumni Activists from New York (state)