The Huntington's Disease Association (HDA) is a charity that supports people in

England England is a country that is part of the United Kingdom. It shares land borders with Wales to its west and Scotland to its north. The Irish Sea lies northwest and the Celtic Sea to the southwest. It is separated from continental Europe b ...

and

Wales Wales ( cy, Cymru ) is a Countries of the United Kingdom, country that is part of the United Kingdom. It is bordered by England to the Wales–England border, east, the Irish Sea to the north and west, the Celtic Sea to the south west and the ...

affected by the genetic

neurodegenerative A neurodegenerative disease is caused by the progressive loss of structure or function of neurons, in the process known as neurodegeneration. Such neuronal damage may ultimately involve cell death. Neurodegenerative diseases include amyotrophic ...

brain condition

Huntington's disease Huntington's disease (HD), also known as Huntington's chorea, is a neurodegenerative disease that is mostly inherited. The earliest symptoms are often subtle problems with mood or mental abilities. A general lack of coordination and an unst ...

(HD). The HDA was founded in 1986 and is based in

Liverpool Liverpool is a city and metropolitan borough in Merseyside, England. With a population of in 2019, it is the 10th largest English district by population and its metropolitan area is the fifth largest in the United Kingdom, with a popul ...

. It supports a network of regional care advisors who offer care and support to people with and at risk of Huntington's disease and their families. The HDA also has a research programme that supports scientific and social research into HD. It has worked to establish and support a network of

multidisciplinary Interdisciplinarity or interdisciplinary studies involves the combination of multiple academic disciplines into one activity (e.g., a research project). It draws knowledge from several other fields like sociology, anthropology, psychology, ec ...

clinics for HD patients in the UK. The charity was instrumental in the 2010 launch of an

All-Party Parliamentary Group An all-party parliamentary group (APPG) is a grouping in the Parliament of the United Kingdom that is composed of members of parliament from all political parties, but have no official status within Parliament. Description and functions All-party ...

for Huntington's disease in the

UK Parliament The Parliament of the United Kingdom is the supreme legislative body of the United Kingdom, the Crown Dependencies and the British Overseas Territories. It meets at the Palace of Westminster, London. It alone possesses legislative supremac ...

, chaired by Lord Walton of Detchant, and 2010 research revealing that the

prevalence In epidemiology, prevalence is the proportion of a particular population found to be affected by a medical condition (typically a disease or a risk factor such as smoking or seatbelt use) at a specific time. It is derived by comparing the number o ...

of HD is much higher than previously thought. The HDA won the 2005 UK Charity Award for healthcare and medical research and the 2005

National Health Service The National Health Service (NHS) is the umbrella term for the publicly funded healthcare systems of the United Kingdom (UK). Since 1948, they have been funded out of general taxation. There are three systems which are referred to using the " ...

(NHS) Health and Social Care Award for long term conditions. The HDA's patrons are singer

Tony Hadley Anthony Patrick Hadley (born 2 June 1960) is an English pop singer. He rose to fame in the 1980s as the lead singer of the new wave band Spandau Ballet and launched a solo career following the group's split in 1990. Hadley returned to the ban ...

and entertainer

Shane Richie Shane Patrick Paul Roche (born 11 March 1964), known as Shane Richie, is a British actor, comedian, television presenter and singer. Following initial success as a stage and screen performer, he became best known for his portrayal of the charac ...

. The HDA is part of the UK HD Alliance, along with the Scottish Huntington's Association and HD Association Northern Ireland. It is also a member of the International Huntington Alliance.

References

External links

Huntington's Disease Association website

International Huntington Alliance
Health charities in the United Kingdom Huntington's disease {{UK-charity-stub