Global Genes is a global non-profit
advocacy organization
Advocacy groups, also known as interest groups, special interest groups, lobbying groups or pressure groups use various forms of advocacy in order to influence public opinion and ultimately policy. They play an important role in the developm ...
for individuals and families fighting rare and
genetic diseases
A genetic disorder is a health problem caused by one or more abnormalities in the genome. It can be caused by a mutation in a single gene (monogenic) or multiple genes (polygenic) or by a chromosomal abnormality. Although polygenic disorders ...
. The organization is associated with a blue denim "Genes Ribbon" that is intended to raise awareness of patients affected by rare and genetic diseases. Global Genes uses a simple concept of "jeans and genes" to promote awareness of
rare disease
A rare disease is any disease that affects a small percentage of the population. In some parts of the world, an orphan disease is a rare disease whose rarity means there is a lack of a market large enough to gain support and resources for discove ...
; its slogan is "Allies in Rare Disease".
History
The organization was founded in 2009, and is associated with several rare disease
awareness campaigns
Consciousness raising (also called awareness raising) is a form of activism popularized by United States feminists in the late 1960s. It often takes the form of a group of people attempting to focus the attention of a wider group on some cause or ...
a numerous fundraising efforts.
The organization has gained recognition for campaigns and annual involvement in promoting
Rare Disease Day
Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. The European Organisation fo ...
.
References
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External links
Global Genes
Medical and health organizations based in California
Genetic diseases and disorders