The European Society for Primary Immunodeficiencies (ESID) is a Europe-wide medical association for

healthcare professionals A health professional, healthcare professional, or healthcare worker (sometimes abbreviated HCW) is a provider of health care treatment and advice based on formal training and experience. The field includes those who work as a nurse, physician (suc ...

and researchers who deal with

primary immunodeficiency diseases Primary immunodeficiencies are disorders in which part of the body's immune system is missing or does not function normally. To be considered a ''primary'' immunodeficiency (PID), the cause of the immune deficiency must not be secondary in nature ( ...

(PID).

History

The European Society for Primary Immunodeficiencies was founded first as an informal group in 1983 in

Rome , established_title = Founded , established_date = 753 BC , founder = King Romulus (legendary) , image_map = Map of comune of Rome (metropolitan city of Capital Rome, region Lazio, Italy).svg , map_caption ...

Italy Italy ( it, Italia ), officially the Italian Republic, ) or the Republic of Italy, is a country in Southern Europe. It is located in the middle of the Mediterranean Sea, and its territory largely coincides with the homonymous geographical re ...

. Over the following decade its membership and activities grew, and the society’s first constitution was adopted in 1994. This signaled ESID’s beginnings as a formal society. The constitution has since been revised twice, in 2000 and 2008.ESID Constitution
, ESID ESID has two sister societies: Th
International Nursing Group for Immunodeficiencies
ref name=ingi

, INGID and th
International Patient Organisation for Primary Immunodeficiencies
Events
, IPOPI

Activities

ESID hosts biennial meetings for the society’s members. These gatherings are composed of scientific lectures on emerging diagnoses and treatment options, interactive discussions, research opportunities, and networking events.XVth Biennial Meeting of the European Society for Primary Immunodeficiencies
, ESID The 15th Biennial Meeting will take place in October, 2012 in

Florence Florence ( ; it, Firenze ) is a city in Central Italy and the capital city of the Tuscany region. It is the most populated city in Tuscany, with 383,083 inhabitants in 2016, and over 1,520,000 in its metropolitan area.Bilancio demografico an ...

.15th Biennial Meeting
, Kenes International The society also participates in several other scientific meetings each year, some of which are hosted by ESID. These meetings offer similar scientific content, though they are often smaller in their regional or educational focus. In 2011, ESID will host symposia in

Prague Prague ( ; cs, Praha ; german: Prag, ; la, Praga) is the capital and largest city in the Czech Republic, and the historical capital of Bohemia. On the Vltava river, Prague is home to about 1.3 million people. The city has a temperate ...

and

Tampere Tampere ( , , ; sv, Tammerfors, ) is a city in the Pirkanmaa region, located in the western part of Finland. Tampere is the most populous inland city in the Nordic countries. It has a population of 244,029; the urban area has a population o ...

Finland Finland ( fi, Suomi ; sv, Finland ), officially the Republic of Finland (; ), is a Nordic country in Northern Europe. It shares land borders with Sweden to the northwest, Norway to the north, and Russia to the east, with the Gulf of B ...

.Scientific Meetings
, ESID The meeting taking place in Prague is ESID's 10th Spring Meeting and is part of ESIDS's PID Care in Development Working Party (PIDCD WP). Established in 2006, the PIDCD WP works to "increase awareness and facilitate diagnosis and care about PID patients in Western countries with less accessible PID care."PID Care in Development
, ESID The meetings that are part of this program focus on establishing professional organizations in developing regions and connecting professionals between different regions of Europe. In addition to the PIDCD WP, ESID has several other Working Parties (WP). The Bone Marrow Transplantation and Gene Therapy Working Party works to "improve the outcome of transplant and gene therapy for severe congenital immunodeficiencies."Bone Marrow Transplantation & Gene Therapy
, ESID The Clinical Working Party supports clinical research among ESPID members.Clinical
, ESID The Educational Working Party works with young researchers and professionals in the PID field.Educational
, ESID The Genetic Working Party supports collaborative research between laboratories associated with ESPID.Genetics
, ESID The Juniors Working Party is a forum for young entrants into the field of PID.ESID Juniors
, ESPID ESID has established biennial Summer Schools to educate young researchers and healthcare professionals in the field of primary immunodeficiency disorders (PID). The mission of these schools is to “enthuse, inform, and encourage the next generation of leaders in PID practice and research throughout Europe.”Education
, ESID The curriculum consists of several days of workshops, discussions, and interaction between participants. Travel grants and scholarships are made available to encourage participation. The 2011 Summer School will be held in Il Ciocco,

Tuscany Tuscany ( ; it, Toscana ) is a Regions of Italy, region in central Italy with an area of about and a population of about 3.8 million inhabitants. The regional capital is Florence (''Firenze''). Tuscany is known for its landscapes, history, art ...

. ESID also maintains an online database containing patient data and information meant to be useful to potential researchers. The information is stripped of identifying factors on the part of the patients. As of March 2011, over 13,000 patients have been entered into the database.Registry
, ESID

Governance

If you wish to see the full list of Board members, kindly visi
www.esid.org

References

External links

ESID Website

ESID 2012

The International Nursing Group for Immunodeficiency

International Patient Organisation for Primary Immunodeficiencies
{{authority control International medical associations of Europe Immunodeficiency