Emily Susan Rapp
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Emily Rapp Black (born July 12, 1974) is an American memoirist. When she was six years old, she was chosen as the poster child for the non-profit organization
March of Dimes March of Dimes is a United States nonprofit organization that works to improve the health of mothers and babies. The organization was founded by President Franklin D. Roosevelt in 1938, as the National Foundation for Infantile Paralysis, to comba ...
, due to a congenital birth defect that resulted in the amputation of her left leg. She has written two memoirs, one that presents her life as an amputee and the other that tells the story of the birth of her child Ronan Christopher Louis and his diagnosis of Tay–Sachs disease. She is a former
Fulbright scholar The Fulbright Program, including the Fulbright–Hays Program, is one of several United States Cultural Exchange Programs with the goal of improving intercultural relations, cultural diplomacy, and intercultural competence between the people of ...
and recipient of the
James A. Michener James Albert Michener ( or ; February 3, 1907 – October 16, 1997) was an American writer. He wrote more than 40 books, most of which were long, fictional family sagas covering the lives of many generations in particular geographic locales and ...
Fellowship. She is an assistant professor at the University of California, Riverside, School of Medicine.


Personal background


Early life

Emily Susan Rapp was born on July 12, 1974, in
Grand Island, Nebraska Grand Island is a city in and the county seat of Hall County, Nebraska, United States. The population was 53,131 at the 2020 census. Grand Island is the principal city of the Grand Island metropolitan area, which consists of Hall, Merrick, ...
. Rapp was raised in Laramie, Wyoming;
Kearney, Nebraska Kearney is the county seat of Buffalo County, Nebraska, United States. The population was 30,787 in the 2010 census. It is home to the University of Nebraska at Kearney. The westward push of the railroad as the Civil War ended gave new birt ...
; and Denver, Colorado; by her father, a Lutheran pastor, and her mother, a school nurse. With her second husband, Rick Louis, she had a son, Ronan Christopher Louis, born on March 24, 2010, who died of Tay-Sachs disease on February 15, 2013. She and her current husband, Kent Black, lived in Madrid, New Mexico, before moving to
Redlands, California Redlands ( ) is a city in San Bernardino County, California, United States. As of the 2020 census, the city had a population of 73,168, up from 68,747 at the 2010 census. The city is located approximately west of Palm Springs and east of Lo ...
, where they reside with their daughter, Charlotte (Charlie).


Education

In 1996, Rapp received a Fulbright Fellowship to Seoul, South Korea. She was educated at
Saint Olaf College St. Olaf College is a private liberal arts college in Northfield, Minnesota. It was founded in 1874 by a group of Norwegian-American pastors and farmers led by Pastor Bernt Julius Muus. The college is named after the King and the Patron Saint Olaf ...
, where she received a Bachelor of Arts in religion and women's studies; Harvard University, where she received a Master of Theological Studies;
Trinity College, Dublin , name_Latin = Collegium Sanctae et Individuae Trinitatis Reginae Elizabethae juxta Dublin , motto = ''Perpetuis futuris temporibus duraturam'' (Latin) , motto_lang = la , motto_English = It will last i ...
; and the University of Texas at Austin, where she was a
James A. Michener James Albert Michener ( or ; February 3, 1907 – October 16, 1997) was an American writer. He wrote more than 40 books, most of which were long, fictional family sagas covering the lives of many generations in particular geographic locales and ...
Fellow and received her Masters of Fine Arts degree in creative writing.


Professional background

Before entering divinity school, Rapp worked in Geneva, Switzerland; Namibia; Hong Kong and Bangkok, Thailand for the Women's Desk of the Lutheran World Federation, an international relief organization.


''Poster Child''

In 2007, Rapp published her first memoir, ''Poster Child'', with Bloomsbury, detailing her life as an amputee. She wrote, " henotion, that happiness and fulfillment hinge upon radical transformation, has followed me throughout my life. From an early age, I had fantasies of being 'healed' of my disability, a miracle I envisioned as rather more Disney than biblical."


''The Still Point of the Turning World''

In 2013, her book ''The Still Point of the Turning World'' was published by Penguin Press. The book shares the author's life and experiences following her son Ronan Christopher Louis's diagnosis at nine months old with Tay–Sachs disease. The book was widely and warmly reviewed, including in the '' Los Angeles Times'', '' The Boston Globe'', and '' The New York Times'', and was chosen by amazon.com as a Best Book of the Month for March 2013. On March 8, 2013, Rapp appeared on '' The Today Show'' to speak about her book, along with her many other public appearances, including a return to '' Fresh Air'' with Terry Gross on NPR.


Short stories, poems, and essays

Rapp's short stories, poems, or essays have appeared in ''The New York Times'', the ''Los Angeles Times'', '' Salon.com'', '' The Sun'', '' The Texas Observer'', '' The Rumpus'', and '' Body & Soul'', among other publications. She has kept her own blog, ''Little Seal'', and she has been a regular columnist for the blog ''Role/Reboot''. Rapp has received many awards for her work, including recognition from '' The Atlantic Monthly'', ''
StoryQuarterly ''StoryQuarterly'' is an American literary journal based at Rutgers University–Camden in Camden, New Jersey. It was founded in 1975 by Tom Bracken, F.R. Katz, Pamela Painter and Thalia Selz. Works originally published in ''StoryQuarterly'' ha ...
'', '' The Huffington Post'', '' Time'' magazine, the Mary Roberts Rinehart Foundation, the Jentel Arts Foundation, the Corporation of Yaddo, the Fine Arts Work Center in Provincetown, Massachusetts, and the Valparaiso Foundation, among others.


Teaching

Rapp has taught writing in the MFA program at Antioch University Los Angeles; the Taos Writers' Workshop in New Mexico; the MFA program at the University of California, Riverside; and the Gotham Writers' Workshop. She is currently an assistant professor at UC Riverside School of Medicine. She travels frequently to schools and universities to talk about issues of the body, illness, and the creative process.


Board memberships

From 1989 to 2003 she served on various boards and committees of the
Evangelical Lutheran Church in America The Evangelical Lutheran Church in America (ELCA) is a mainline Protestant Lutheran church headquartered in Chicago, Illinois. The ELCA was officially formed on January 1, 1988, by the merging of three Lutheran church bodies. , it has approxim ...
, including the Committee on the Status of Women and the Global Mission Board of Directors.


Honors and awards

* 2004: James A. Michener Fellowship at the University of Texas-Austin. * 2005: Philip Roth Writer-in-Residence at Bucknell University * 2006: Rona Jaffe Foundation Writers' Award * 2012: Rapp's essay, "Transformation and Transcendence: The Power of Female Friendship", was named "one of 25 pieces that should be required reading for women" by '' The Huffington Post''. * 2012: Rapp's blog, ''Little Seal'', was named by '' Time'' magazine as one of the 25 best blogs in 2012. * 2013: Named by the ''Los Angeles Times'' as one of the "Faces to Watch" * 2013: Rapp's second memoir, ''The Still Point in the Turning World'', was chosen as a Best Book of the Month in March by Amazon.


Books

* Rapp, Emily (2007). ''Poster Child: A Memoir'', Bloomsbury USA/Macmillan, 240 pages. * Rapp, Emily (2013). ''The Still Point of the Turning World'', Penguin Press, 272 pages.


References


External links

*
Shafira Rhodes-Pitt and Emily Rapp interviewed on ''The Brian Lehrer Show'', WNYC Radio, September 15, 2006
{{DEFAULTSORT:Rapp Black, Emily 1974 births Living people 21st-century American memoirists American women poets St. Olaf College alumni Alumni of Trinity College Dublin Michener Center for Writers alumni 21st-century American women writers People from Grand Island, Nebraska People from Laramie, Wyoming Writers from Denver Harvard Divinity School alumni Writers from Nebraska Writers from Wyoming Writers from Santa Fe, New Mexico American women memoirists 21st-century American poets Rona Jaffe Foundation Writers' Award winners Fulbright alumni