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Disenfranchised grief is a term coined by Dr. Kenneth J. Doka in 1989.This concept describes the fact that grief isn’t acknowledged on a personal or societal level in modern day Euro-centric culture. For example, those around you may not view your loss as a significant loss, and they may think you don’t have the right to grieve. They might not like how you may or may not be expressing your grief, and thus they may feel uncomfortable, or judgmental. This is not a conscious way of thinking for most individuals, as it is deeply engrained in our psyche. This can be extremely isolating, and push you to question the depth of your grief and this loss you’ve experienced. This concept is viewed as a ”type of grief”, but it more so can be viewed as a "side effect" of grief. This also is not only applicable to grief in the case of death, but also the many other forms of grief. There are few support systems, rituals, traditions, or institutions such as
bereavement Grief is the response to loss, particularly to the loss of someone or some living thing that has died, to which a bond or affection was formed. Although conventionally focused on the emotional response to loss, grief also has physical, cogniti ...
leave Leave may refer to: * Permission (disambiguation) ** Permitted absence from work *** Leave of absence, a period of time that one is to be away from one's primary job while maintaining the status of employee *** Annual leave, allowance of time away ...
available to those experiencing grief and loss Even widely recognized forms of grief can become disenfranchised when well-meaning friends and family attempt to set a time limit on a bereaved person's right to grieve. For example, the need to regulate mourning and restore a state of normal work activity severely impacted the grieving process of victims of the
Oklahoma City bombing The Oklahoma City bombing was a domestic terrorist truck bombing of the Alfred P. Murrah Federal Building in Oklahoma City, Oklahoma, United States, on April 19, 1995. Perpetrated by two anti-government extremists, Timothy McVeigh and Terry N ...
, according to American scholar
Edward Linenthal Edward Tabor ("Ed") Linenthal (born 1947) is an American academic who specializes in religious and American studies, and particularly memorials and other sacred spaces. Biography and scholarship Linenthal received his A.B. from Western Michigan ...
. Grieving for deceased children was redefined as
post-traumatic stress disorder Post-traumatic stress disorder (PTSD) is a mental and behavioral disorder that can develop because of exposure to a traumatic event, such as sexual assault, warfare, traffic collisions, child abuse, domestic violence, or other threats on ...
if parents were not "over it" within two weeks.


Disenfranchised losses

Examples of events that may lead to disenfranchised grief include: * deaths among distant, disapproved, or unrecognized relationships ** the death of a friend, co-worker, or patient ** the death of an ex-spouse or a partner in an
extramarital affair An affair is a sexual relationship, romantic friendship, or passionate attachment in which at least one of its participants has a formal or informal commitment to a third person who may neither agree to such relationship nor even be aware of i ...
* deaths under socially difficult circumstances ** the death of a loved one due to
suicide Suicide is the act of intentionally causing one's own death. Mental disorders (including depression, bipolar disorder, schizophrenia, personality disorders, anxiety disorders), physical disorders (such as chronic fatigue syndrome), and s ...
or murder ** a death due to socially stigmatized cause, such as
HIV/AIDS Human immunodeficiency virus infection and acquired immunodeficiency syndrome (HIV/AIDS) is a spectrum of conditions caused by infection with the human immunodeficiency virus (HIV), a retrovirus. Following initial infection an individual ...
,
drug addiction Addiction is a neuropsychological disorder characterized by a persistent and intense urge to engage in certain behaviors, one of which is the usage of a drug, despite substantial harm and other negative consequences. Repetitive drug use of ...
, or
lung cancer Lung cancer, also known as lung carcinoma (since about 98–99% of all lung cancers are carcinomas), is a malignant lung tumor characterized by uncontrolled cell growth in tissue (biology), tissues of the lung. Lung carcinomas derive from tran ...
** the death is due to
capital punishment Capital punishment, also known as the death penalty, is the state-sanctioned practice of deliberately killing a person as a punishment for an actual or supposed crime, usually following an authorized, rule-governed process to conclude that t ...
of a criminal * losses that society deems less worthy of grief than the death of a child or adult **
pregnancy loss Pregnancy loss is the death of an embryo or fetus. It may include any of the following: ;Unintentional pregnancy loss: * Miscarriage ** Blighted ovum ** Ectopic pregnancy * Stillbirth * Toxic abortion, caused by pollution or chemical exposures ;P ...
due to
miscarriage Miscarriage, also known in medical terms as a spontaneous abortion and pregnancy loss, is the death of an embryo or fetus before it is able to survive independently. Miscarriage before 6 weeks of gestation is defined by ESHRE as biochemical lo ...
or
abortion Abortion is the termination of a pregnancy by removal or expulsion of an embryo or fetus. An abortion that occurs without intervention is known as a miscarriage or "spontaneous abortion"; these occur in approximately 30% to 40% of pregn ...
**
infertility Infertility is the inability of a person, animal or plant to reproduce by natural means. It is usually not the natural state of a healthy adult, except notably among certain eusocial species (mostly haplodiploid insects). It is the normal state ...
** the death or other loss of a
pet A pet, or companion animal, is an animal kept primarily for a person's company or entertainment rather than as a working animal, livestock, or a laboratory animal. Popular pets are often considered to have attractive appearances, intelligence, ...
** a parent's loss or surrender of a child to
adoption Adoption is a process whereby a person assumes the parenting of another, usually a child, from that person's biological or legal parent or parents. Legal adoptions permanently transfer all rights and responsibilities, along with filiation, from ...
or
foster care Foster care is a system in which a minor has been placed into a ward, group home (residential child care community, treatment center, etc.), or private home of a state-certified caregiver, referred to as a "foster parent" or with a family mem ...
** a child's loss of their birth parents through adoption * other non-death losses ** the loss of a relationship with a person who has become severely disabled (e.g., comatose, advanced stages of dementia) ** a trauma in the family a generation prior ** the loss of a home or place of residence ** the diagnosis of a
sexually transmitted infection Sexually transmitted infections (STIs), also referred to as sexually transmitted diseases (STDs) and the older term venereal diseases, are infections that are Transmission (medicine), spread by Human sexual activity, sexual activity, especi ...
** the loss of a job ** the loss of heirlooms or other objects of sentimental or personal significance.


Disenfranchised grievers

Sometimes, people believe that a particular person is not capable of grieving. This commonly happens with very young children and with disabled people. Additionally, grieving people may be disenfranchised because of their circumstances. Loss of a grandchild can be extremely difficult for a grandparent, but the grandparent's grief is often disenfranchised because they are not part of the
immediate family The immediate family is a defined group of relations, used in rules or laws to determine which members of a person's family are affected by those rules. It normally includes a person's parents, siblings, spouse, and children. It can contain other ...
.
Attention Attention is the behavioral and cognitive process of selectively concentrating on a discrete aspect of information, whether considered subjective or objective, while ignoring other perceivable information. William James (1890) wrote that "Atte ...
and
support Support may refer to: Arts, entertainment, and media * Supporting character Business and finance * Support (technical analysis) * Child support * Customer support * Income Support Construction * Support (structure), or lateral support, a ...
is given to the child's parents and siblings, but the grandparent's
grief Grief is the response to loss, particularly to the loss of someone or some living thing that has died, to which a bond or affection was formed. Although conventionally focused on the emotional response to loss, grief also has physical, cogni ...
is two-fold as they have not only grieving the loss of their grandchild, but are also grieving for their adult children who have lost the child. This phenomenon is termed ''double-grief'' by Davidson and it makes bereavement even more difficult. Loss of an ex-spouse is disenfranchised due to the lack of a current or ongoing personal relationship between the former couple. Although the marriage has ended, the relationship has not, and there are ties between the two people that will forever be there including: shared children, mutual friendships, and financial connections. Research has shown that those couples who never resolved conflicts after the relationship ended experienced much more grief than those who had. The grievers experience guilt and thoughts of "what might have been", similar to those of widows. Loss of a child by adoption is often disenfranchised because the decision to give a child up for adoption is
voluntary Voluntary may refer to: * Voluntary (music) * Voluntary or volunteer, person participating via volunteering/volunteerism * Voluntary muscle contraction See also * Voluntary action * Voluntariness, in law and philosophy * Voluntaryism Volunt ...
, and therefore it is not acceptable by society to grieve. Birth mothers lack support, and are expected to just move on and pretend the child does not exist. Many birth mothers experience regret and have thoughts of what might have been or of reuniting with the child.


Relationships

Many types of relationships are not legitimized by society; therefore when one person in the relationship dies, the other may not have their grief legitimized and it can become disenfranchised. For example, following the death of a partner in a homosexual relationship, societal supports can tend to prioritize the immediate family, invalidating the significance of the romantic relationship and loss for the grieving partner (McNutt & Yakushko, 2013). Another example may be a former partner, such as the death of an ex-spouse (a person who the griever was previously married to, but eventually divorced). The death of an ex-spouse does not typically receive the same recognition as the death of a current spouse. Another type of relationship is one in which the griever and the person who died did not necessarily have a close personal relationship. This relationship may include coworkers, doctor and nurse relationships with patients, or even people that the griever does not know personally at all, such as celebrities. Relationships formed online are often not recognized or validated by society, for example where friendships are made through online games and social media. However, when one person dies, the griever or person that did not die in the relationship will often experience disenfranchised grief (Doka, 1989).


Responses

There are many models for dealing with grief. The
Kübler-Ross model The five stages of grief model (or the Kübler-Ross model) is popularly known as a model that describes a series of emotions experienced by people who are grieving Grief is the response to loss, particularly to the loss of someone or some liv ...
describes grieving in five steps or stages: denial, anger, bargaining, depression, and acceptance (Kübler-Ross, 1969). In other words, in order to begin grieving one must first endorse the loss, and then express emotion. The griever must then accept the loss and adjust to the change the death or loss caused in his or her life (Cordaro, 2012). Over the years, however, how grief is conceptualised has moved away from predictable stages that lead to 'recovery' or 'closure', towards an understanding of grief that addresses the complexity and diversity of the grieving experience (Australian Psychological Society, 2016). Models such as Worden's tasks of grief (2008) and the dual-process model (Stroebe and Schutt, 1999) offer frameworks for dealing with grief in a way that enhances the self awareness of the grieving person (Australian Psychological Society, 2016). Disenfranchised grief presents some complications that are not always present in other grieving processes. First, there are usually intensified reactions to death or loss. For example, the griever may become more depressed or angry due to not being able to fully express his or her grief. Secondly, disenfranchised grief means society does not recognize the death or loss; therefore, the griever does not receive strong social support and may be isolated. As disenfranchised grief is not legitimized by others, the bereaved person may be denied access to rituals, ceremonies, or the right to express their thoughts and emotions (McKissock & McKissock, 1998). When supporting someone through disenfranchised grief it is important to acknowledge and validate their loss and grief (McKissock & McKissock, 1998).


See also

*
Ambiguous loss Ambiguous loss is a loss that occurs without a significant likelihood of reaching emotional closure or a clear understanding. This kind of loss leaves a person searching for answers, and thus complicates and delays the process of grieving, and o ...
*
Anticipatory grief Anticipatory grief refers to a feeling of grief occurring before an impending loss. Typically, the impending loss is the death of someone close due to illness. This can be experienced by dying individuals themselves and can also be felt due to no ...
*
Delayed grief The terms delayed grief and unresolved grief are variations of grieving after a loss. The meaning of ''unresolved grief'' is any aspect of grieving that has yet to be resolved. Overview In cases of delayed grief, the reaction to the loss is postpo ...
*
Grief Grief is the response to loss, particularly to the loss of someone or some living thing that has died, to which a bond or affection was formed. Although conventionally focused on the emotional response to loss, grief also has physical, cogni ...


References


Sources

* Aloi, J. A. (2009). Nursing the disenfranchised: Women who have relinquished an infant for adoption. Journal of Psychiatric and Mental Health Nursing, 16(1), 27–31. doi:10.1111/j.1365-2850.2008.01324.x * Cordaro, M. (2012). Pet loss and disenfranchised grief: Implications for mental health counseling practice. Journal of Mental Health Counseling, 34(4), 283–294. * Doka, K. J. (1989). Disenfranchised grief: Recognizing hidden sorrow. Lexington, MA, England: Lexington Books/D. C. Heath and Com. * Havelin, L. (2012, February 3). Children and Pet Loss. Retrieved October 22, 2014. * Humphrey, K. (2009). Counseling strategies for loss and grief. Alexandria, VA: American Counseling Association. * Kamerman, J. (1993). Latent functions of enfranchising the disenfranchised griever. Death studies, 17(3), 281-287 * Kubler-Ross, E. (1969). On death and dying. New York, NY: Scribner. * McNutt, B., & Yakushko, O. (2013). Disenfranchised grief among lesbian and gay bereaved individuals. Journal of LGBT Issues in Counseling, 7(1), 87-116. * Perrucci, A. (2014, October 7). High court refuses to rule—and gives tacit victory—on same-sex marriage. Retrieved October 22, 2014. * Purtuesi D.R. (1995) Silent voices heard: impact of the birth- mother's experience then and now. * Some, Sobonfu (Photographer). (2012, May)
Embracing Grief


Further reading

* Kenneth J. Doka, editor. ''Disenfranchised Grief: Recognizing Hidden Sorrow'' Lexington Books, 1989. {{ISBN, 0-669-17081-X


External links


Disenfranchised Grief


Grief Racism