Deafness In Benin
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Benin Benin ( , ; french: Bénin , ff, Benen), officially the Republic of Benin (french: République du Bénin), and formerly Dahomey, is a country in West Africa. It is bordered by Togo to the west, Nigeria to the east, Burkina Faso to the north ...
,
deafness Deafness has varying definitions in cultural and medical contexts. In medical contexts, the meaning of deafness is hearing loss that precludes a person from understanding spoken language, an audiological condition. In this context it is written ...
affects 12,500 people out of their total population of 10 million. Since the late 1900s, there has been a growing emergence of resources, recognition, and support for the deaf people in Benin. The deaf community uses American Sign Language (ASL), Langue des Signes de l'Afrique Francophone (LSAF), and Langue des signes du Bénin (Benin Sign Language). The type of sign and how many people use each remain undocumented. However, in 1994, one of the first LSAF dictionaries was published in Benin.


Cultural views, deaf rights, and the CRPD

In Benin, there is a common misconception that deafness is a curse or misfortune brought onto families of deaf children. Other Beninese people believe that the deafness is hereditary and many deaf people are banned from marrying other deaf people. An interview done by Anaïs Prévot on Paul Agboyidou, President of the Deaf School of Louho, and Raymond Sekpon, director of the CAEIS of Louho and President of the NGO ASUNOES-Benin, revealed that Beninese views on deafness still remain mostly negative. Deafness is seen as a curse that is brought onto the family because they angered a deity. Deaf people are also seen as inferior and less capable then a hearing person. According to Paul Agboyidou, people used to chew a leaf at a deaf person to insinuate that they are like sheep who all they do is graze. This isn't seen as much anymore since the creation of the school in Louho and increased community awareness on deafness. As of 1988, Benin has been a member of the
World Federation of the Deaf The World Federation of the Deaf (WFD) is an international non-governmental organization that acts as a peak body for national associations of Deaf people, with a focus on Deaf people who use sign language and their family and friends. WFD aims ...
(WFD). According to the International Disability Alliance (IDA), Benin ratified the
Convention on the Rights of Persons with Disabilities The Convention on the Rights of Persons with Disabilities is an international human rights treaty of the United Nations intended to protect the rights and dignity of persons with disabilities. Parties to the convention are required to promote, ...
(CRPD) and its Optional Protocol (OP) on July 5, 2012. Additionally, there is no mention of sign language in their legislation and there is no Code of Ethics for sign language interpreters. Deaf people in
Benin Benin ( , ; french: Bénin , ff, Benen), officially the Republic of Benin (french: République du Bénin), and formerly Dahomey, is a country in West Africa. It is bordered by Togo to the west, Nigeria to the east, Burkina Faso to the north ...
are not considered to be equal citizens.


Causes of deafness

The main cause of deafness is due to disease (i.e.
meningitis Meningitis is acute or chronic inflammation of the protective membranes covering the brain and spinal cord, collectively called the meninges. The most common symptoms are fever, headache, and neck stiffness. Other symptoms include confusion or ...
and
malaria Malaria is a mosquito-borne infectious disease that affects humans and other animals. Malaria causes symptoms that typically include fever, tiredness, vomiting, and headaches. In severe cases, it can cause jaundice, seizures, coma, or death. S ...
) and poor healthcare. During pregnancy, illness or improper medication use can cause birth defects that can lead to hearing impairments. A newborn may also be given improper dosages of medication and vaccines that can cause side affects leading to deafness.


Early screening and interventions


Newborn and infant hearing screening

As of June 28, 2022, neonatal deafness screening was initiated at the Mother and Child University Hospital Center Jeanne Ebori Foundation (CHUMEJE) through the help of the National Health Insurance and Social Guarantee Fund (CNAMGS). Under the leadership of Professor Simon Ategbo, this is part of the Health Department's launch of their assisted medical procreation (PMA). The screening is done while the child is sleeping by placing some ash in their ear and collecting sound emissions (the term "ash" is most likely a translation error within the article, most of the time a transmitter device is placed in the ear, please see Otoacoustic emission).


Interventions

Currently, there is no available information on early interventions (i.e. cochlear implants,
hearing aid A hearing aid is a device designed to improve hearing by making sound audible to a person with hearing loss. Hearing aids are classified as medical devices in most countries, and regulated by the respective regulations. Small audio amplifiers su ...
s, etc.). The only mention of interventions was through sponsorship programs like Amities Solidarite France Afrique. ASFA helped provide a deaf student with hearing aids through a donation from "Ecouter Voir" in Ollioules.


Emergence of sign languages

American Sign Language American Sign Language (ASL) is a natural language that serves as the predominant sign language of Deaf communities in the United States of America and most of Anglophone Canadians, Anglophone Canada. ASL is a complete and organized visual lang ...
(ASL), Langue des Signes de l'Afrique Francophone (LSAF), and Langue des signes du Bénin (Benin Sign Language) are the primary signing languages that are documented to be used in Benin. However, there is no additional information on how many people use each language.


American Sign Language

Andrew Foster was an African American missionary/pastor that is well regarded as the person who brought
American Sign Language American Sign Language (ASL) is a natural language that serves as the predominant sign language of Deaf communities in the United States of America and most of Anglophone Canadians, Anglophone Canada. ASL is a complete and organized visual lang ...
(ASL) to
Africa Africa is the world's second-largest and second-most populous continent, after Asia in both cases. At about 30.3 million km2 (11.7 million square miles) including adjacent islands, it covers 6% of Earth's total surface area ...
. He helped open schools for the deaf in several African countries as well as a training center for teaching of the deaf, known as
Ibadan Ibadan (, ; ) is the capital and most populous city of Oyo State, in Nigeria. It is the third-largest city by population in Nigeria after Lagos and Kano, with a total population of 3,649,000 as of 2021, and over 6 million people within its me ...
. The first deaf teachers in Benin came from the training center in
Ibadan Ibadan (, ; ) is the capital and most populous city of Oyo State, in Nigeria. It is the third-largest city by population in Nigeria after Lagos and Kano, with a total population of 3,649,000 as of 2021, and over 6 million people within its me ...
where they taught ASL to their students.


Langue des Signes de l'Afrique Francophone (LSAF)

Over time, with ASL being taught and used alongside French, a new form of sign language took on the signs of ASL, but the grammar of
French French (french: français(e), link=no) may refer to: * Something of, from, or related to France ** French language, which originated in France, and its various dialects and accents ** French people, a nation and ethnic group identified with Franc ...
. This led to the evolution of Langue des Signes de l'Afrique Francophone (LSAF) which is distinct and unrelated to French Sign Language. LSAF has been considered a dialect of ASL, however recent discussion has led to LSAF to be considered its own language independent from ASL.


Significant organizations

In Africa, being deaf is still considered a major handicap and leads to constant discrimination therefore deaf education is of high importance and is the main focus for deaf-led organizations in Benin.


Association Nationale des Sourds de Benin

This organization was noted by Carsten Mildner as being a deaf-led organization in Benin, however, no other documentation exists about the history or presence of this organization other than from the African Sign Languages Resource Center website or "Making Lives, Making Communities: Deaf Youth in Benin" by Carsten Mildner.


The Universal Association of Works for the Development of the Deaf (ASUNOES)

The Universal Association of Works for the Development of the Deaf (ASUNOES) works to support the deaf community and defend their rights. The Center for Reception, Education, and Integration of the Deaf (CAEIS) was founded by the ASUNOES as a place of education for the entire community. The CAEIS applies an integrated method in order to ensure that both the deaf and hearing receive the same lessons. The CAEIS offers a lot of different kinds of additional support to the deaf community. The skills training workshops are used to deter literate deaf children from becoming homeless and provide them a way to receive training, certification, and even start their own business. The CAEIS has a sports team that allows deaf children to participate. Although this organization says it has college programs and deaf admittance, there is no further information on the college itself or the fields of study being taught.


Solidarité-Sourds-Bénin (SSB)

This is a French organization located in Fidjrossè-Kpota in
Cotonou Cotonou (; fon, Kútɔ̀nú) is a city in Benin. Its official population count was 679,012 inhabitants in 2012; however, over two million people live in the larger urban area. The urban area continues to expand, notably toward the west. The ci ...
that started in June 2012 under the law of July 1, 1901 (the law is not further specified). This organization was founded by deaf professionals that were former students of Benin's first deaf public school (the name is not specifically mentioned). They created the Association for the Promotion of Employment for the Deaf (APES) due to the lack of work that was offered to deaf people in Benin. In 2005, they created the Center for the Promotion of Deaf Initiatives in Benin (CPISB) with support from France, Canada, and the Agence de la Francophonie. Part of this center was made into a school because of public interest in having a deaf school. This center also offers vocational training in hairdressing, sewing, or painting.


Amitiés Solidarité France Afrique (ASFA)

This organization was created in 2004 through the 1901 law (not specified) to help provide support to African students. ASFA sponsors Beninese children in dire financial need to support their school studies and health through vaccines and other health coverage. This organization helped provide support for a student at the Cotonou School for the deaf by providing him with a hearing aid. ASFA is making plans to provide more support for this school as well.


Deaf education

In 1957, Andrew Foster opened schools for the deaf in Africa in
Accra, Ghana Accra (; tw, Nkran; dag, Ankara; gaa, Ga or ''Gaga'') is the capital and largest city of Ghana, located on the southern coast at the Gulf of Guinea, which is part of the Atlantic Ocean. As of 2021 census, the Accra Metropolitan District, , ...
and
Lagos, Nigeria Lagos (Nigerian English: ; ) is the largest city in Nigeria and the second most populous city in Africa, with a population of 15.4 million as of 2015 within the city proper. Lagos was the national capital of Nigeria until December 1991 fo ...
. Andrew Foster was also responsible for opening a training center in
Ibadan Ibadan (, ; ) is the capital and most populous city of Oyo State, in Nigeria. It is the third-largest city by population in Nigeria after Lagos and Kano, with a total population of 3,649,000 as of 2021, and over 6 million people within its me ...
for teaching the deaf in 1975. By 1976, the training center was able to send out its first deaf teachers to
Togo Togo (), officially the Togolese Republic (french: République togolaise), is a country in West Africa. It is bordered by Ghana to the west, Benin to the east and Burkina Faso to the north. It extends south to the Gulf of Guinea, where its c ...
,
Benin Benin ( , ; french: Bénin , ff, Benen), officially the Republic of Benin (french: République du Bénin), and formerly Dahomey, is a country in West Africa. It is bordered by Togo to the west, Nigeria to the east, Burkina Faso to the north ...
, the
Ivory Coast Ivory Coast, also known as Côte d'Ivoire, officially the Republic of Côte d'Ivoire, is a country on the southern coast of West Africa. Its capital is Yamoussoukro, in the centre of the country, while its largest city and economic centre is ...
, and
Senegal Senegal,; Wolof: ''Senegaal''; Pulaar: 𞤅𞤫𞤲𞤫𞤺𞤢𞥄𞤤𞤭 (Senegaali); Arabic: السنغال ''As-Sinighal'') officially the Republic of Senegal,; Wolof: ''Réewum Senegaal''; Pulaar : 𞤈𞤫𞤲𞤣𞤢𞥄𞤲𞤣𞤭 ...
. Today, there are several nursery primary schools as well as deaf colleges in Benin.


Primary and secondary education

There are a number of primary and secondary schools that offer education for the deaf, although many of the schools below claim to be the only one.


École Béninoise pour Sourds (EBS)

Created in 1977 by Andrew Foster, École Béninoise pour Sourds (EBS) was the first school for the deaf in Benin until the 90's. The school was originally part of the Center for Household Education in Gbéto-south in
Cotonou Cotonou (; fon, Kútɔ̀nú) is a city in Benin. Its official population count was 679,012 inhabitants in 2012; however, over two million people live in the larger urban area. The urban area continues to expand, notably toward the west. The ci ...
. The first set of students were taught by a career teacher and a deaf person that were trained at the training center in Ibadan. Eventually, other deaf schools were created in Sènandé in
Cotonou Cotonou (; fon, Kútɔ̀nú) is a city in Benin. Its official population count was 679,012 inhabitants in 2012; however, over two million people live in the larger urban area. The urban area continues to expand, notably toward the west. The ci ...
, Parakou,
Bohicon Bohicon or Gbohikon is a city in Benin, and a conurbation of Abomey lying 9 kilometres east of the city on the railway line from Cotonou to Parakou and on Benin's main highway RNIE 2 which joins the RNIE 4. The commune covers an area of 139 square ...
and
Porto-Novo Porto-Novo (Portuguese: "New Port", , ; yo, Àjàṣẹ́, ), also known as Hogbonu and Ajashe, is the capital of Benin. The commune covers an area of and as of 2002 had a population of 223,552 people. Situated on an inlet of the Gulf of Gu ...
.


Center for Reception, Education, and Integration of the Deaf (CAEIS)

The CAEIS was founded by ASUNOES in the Louho school district in 1997. Located in Porto Novo, the CAEIS was created with the focus on an integrated model off education. In classrooms, spoken French and sign language are used in tandem and the student body is made of both deaf and hearing students. There is no information on what type of sign language is taught and used here. The EIS is their primary school and the CSEB is their secondary school.


Centre pour la Promotion des Initiatives des Sourds du Benin (CPISB)

CPISB was created in 2005 by the French organization Solidarité-Sourds-Bénin (SSB). This school offers primary and secondary education. The teachers are all trained deaf professionals that offer a bilingual education in French-LSAO (West African Sign Language). This school also aims to help provide food to their students and provide students who live further away with accommodations to ensure they still receive an education.


Higher education

Higher education for DHH individuals in Benin is highly restricted due to the lack of DHH institutions and low admittance of DHH students into mainstream colleges and universities. As mentioned in "Making Lives, Making communities," many of the students that are admitted to colleges in Benin are post-lingually deaf. Many of the students don't need to rely on interpreting services and also come from a decent education backgrounds. For students that are pre-lingually deaf or post-lingually deaf at a very early age, the education that they receive during their primary and secondary studies usually isn't as rigorous as education that is taught in mainstream schools, therefore preventing them from being at the level of admittance.


Healthcare


Communication

Access to healthcare services in
Sub-Saharan Africa Sub-Saharan Africa is, geographically, the area and regions of the continent of Africa that lies south of the Sahara. These include West Africa, East Africa, Central Africa, and Southern Africa. Geopolitically, in addition to the List of sov ...
is limited by the lack of communication between DHH individuals and their families. According to Baratedi et al., the most pressing issue for accessing healthcare is the communication barrier.{{Cite journal , last1=Baratedi , first1=William M. , last2=Tshiamo , first2=Wananani B. , last3=Mokotedi , first3=Mosidi T. , last4=Khutjwe , first4=Joyce V. , last5=Mamalelala , first5=Tebogo T. , last6=Sewane , first6=Eulie B. P. , date=January 2022 , title=Experiences of accessing healthcare services by people with hearing loss/impairment (deaf) in sub‐Saharan Africa: An integrative review , url=https://onlinelibrary.wiley.com/doi/10.1111/jnu.12707 , journal=Journal of Nursing Scholarship , volume=54 , issue=1 , pages=46–55 , doi=10.1111/jnu.12707 , pmid=34843169 , s2cid=244713954 , issn=1527-6546 DHH individuals are reliant on their families, however, many families are either overprotective, inattentive, or all around neglectful. All of which increase the difficulty for accessing health care. Communication between healthcare workers and deaf patients as well as a lack of health knowledge prevents better access to DHH people. Oftentimes interpretation services are unavailable are expensive. In addition, healthcare workers often lack knowledge on deafness. Deaf people frequently face discrimination within clinical settings. Deaf people are forced to wait long periods of time because hearing people are served first. Deaf people have reported that healthcare workers rude to them or outright negligent which further discourages DHH individuals from accessing health services.


HIV/AIDS

There is a great lack of knowledge and awareness of
HIV/AIDS Human immunodeficiency virus infection and acquired immunodeficiency syndrome (HIV/AIDS) is a spectrum of conditions caused by infection with the human immunodeficiency virus (HIV), a retrovirus. Following initial infection an individual ...
and its spread within deaf populations globally. Many DHH people are severely undereducated leading to a lack of health-related information, especially sexual and reproductive issues. Very few countries in Africa are aware that it can affect deaf people. People with disabilities are often neglected when it comes to HIV prevention, education, and access to testing and treatment. Treatment, medication, and transportation costs are all struggles for many in the deaf community since many people are unemployed or have low paying jobs. This burden is especially worse for individuals with HIV/AIDS.


See also

* Deafness in the Democratic Republic of the Congo *
Deafness in Egypt According to The Deaf Unit Cairo, there are approximately 1.2 million deaf and hard of hearing individuals in Egypt aged five and older. Deafness can be detected in certain cases at birth or throughout childhood in terms of communication delays and ...
* Deafness in Tunisia *
History of deaf education in Africa Prior to 1956, the only deaf schools in Africa were in Egypt and South Africa. Andrew Foster brought American Sign Language (ASL), and deaf schools to Africa in 1956. After Andrew Foster's death in 1986, deaf schools have continued to vary and spre ...


References

Benin Benin ( , ; french: Bénin , ff, Benen), officially the Republic of Benin (french: République du Bénin), and formerly Dahomey, is a country in West Africa. It is bordered by Togo to the west, Nigeria to the east, Burkina Faso to the north ...
Disability in Benin