Intersex Peer Support Australia (IPSA), also known as the Androgen Insensitivity Syndrome Support Group Australia, is possibly the oldest known
intersex
Intersex people are individuals born with any of several sex characteristics including chromosome patterns, gonads, or genitals that, according to the Office of the United Nations High Commissioner for Human Rights, "do not fit typical bin ...
organization, established in 1985.
It provides peer and family support, information and advocacy. The group is run by volunteers, for people with intersex variations such as
androgen insensitivity syndrome
Androgen insensitivity syndrome (AIS) is a difference in sex development involving hormonal resistance due to androgen receptor dysfunction.
It affects 1 in 20,000 to 64,000 XY ( karyotypically male) births. The condition results in the partial ...
.
It changed name from the Androgen Insensitivity Syndrome Support Group Australia (AISSGA) to Intersex Peer Support Australia in 2019.
History
IPSA may be the oldest
intersex
Intersex people are individuals born with any of several sex characteristics including chromosome patterns, gonads, or genitals that, according to the Office of the United Nations High Commissioner for Human Rights, "do not fit typical bin ...
organization, established in 1985,
prior to the Androgen Insensitivity Syndrome Support Group (UK), established in 1988, and the
Intersex Society of North America
The Intersex Society of North America (ISNA) was a non-profit advocacy group founded in 1993 by Cheryl Chase to end shame, secrecy, and unwanted genital surgeries.Matthews, Karen (Oct 22, 2000). Debate Grows Over Using Surgery on Infants with Amb ...
(ISNA) in 1993.
IPSA was founded by Dr Garry Warne, then the Director of Paediatric Endocrinology at the
Royal Children's Hospital, Melbourne.
It is now run by a board of people with intersex variations, and parents. Notable members include
Bonnie Hart,
Phoebe Hart and
Tony Briffa. Many members of the group took part in Phoebe Hart's 2010 autobiographical road movie, ''
Orchids, My Intersex Adventure''.
The organisation changed name in 2019.
Activities
Peer support
The core activity of the Group is to provide peer and family support, information and advocacy.
It produces regular newsletters, known as ''dAISy'', an annual conference, and regular meetings in Brisbane, Melbourne and Sydney.
Physical integrity and bodily autonomy
The group has advocated on
intersex human rights
Intersex people are born with sex characteristics, such as chromosomes, gonads, or genitals, that, according to the UN Office of the High Commissioner for Human Rights, "do not fit typical binary notions of male or female bodies."
Intersex peo ...
issues since at least the turn of the century, with submissions on discrimination and prenatal terminations dating back to 2003.
Tony Briffa was published in
''Nature'' in April 2004, calling for an end to irreversible sex assignment treatments in infancy. The group has also made a similar submission to a 2013 Australian Senate inquiry on involuntary or coerced sterilisation of people with disabilities.
In March 2017, representatives of IPSA participated in an Australian and Aotearoa/New Zealand consensus "Darlington Statement" by intersex community organizations and others.
The statement calls for legal reform, including the criminalization of deferrable
intersex medical interventions
Intersex medical interventions, also known as intersex genital mutilations (IGM), are surgical, hormonal and other medical interventions performed to modify atypical or ambiguous genitalia and other sex characteristics, primarily for the purposes ...
on children, an end to legal classification of sex, and improved access to peer support.
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Education and awareness
Andie Hider, then president of IPSA, took part in the ABC television program ''Four Corners'' in July 2005. Current president Bonnie Hart appeared on Australian television with Intersex Human Rights Australia president Morgan Carpenter
Morgan Carpenter is a bioethicist, intersex activist and researcher. In 2013 he created the intersex flag, and became president of Intersex Human Rights Australia (formerly OII Australia). He is now a co-executive director. In 2015, he cofound ...
in March 2015, and in a short video for the National LGBTI Health Alliance QLife project, later that year.
Affiliations
IPSA is a member of LGBTIQ+ Health Australia.
See also
* Androgen insensitivity syndrome
Androgen insensitivity syndrome (AIS) is a difference in sex development involving hormonal resistance due to androgen receptor dysfunction.
It affects 1 in 20,000 to 64,000 XY ( karyotypically male) births. The condition results in the partial ...
* Intersex human rights
Intersex people are born with sex characteristics, such as chromosomes, gonads, or genitals, that, according to the UN Office of the High Commissioner for Human Rights, "do not fit typical binary notions of male or female bodies."
Intersex peo ...
* Intersex rights in Australia
Intersex rights in Australia are protections and rights afforded to intersex people through statutes, regulations, and international human rights treaties, including through the ''Sex Discrimination Act 1984'' (Cth) which makes it unlawful to d ...
References
External links
*
{{LGBT in Australia
Charities based in Australia
Intersex rights organizations
Intersex medical and health organizations
Intersex support groups
Medical and health organisations based in Victoria (Australia)
1985 establishments in Australia
Intersex rights in Australia