HOME

TheInfoList



OR:

Shine (a name derived from Spina bifida, Hydrocephalus, Information, Networking and Equality) (formerly known as ASBAH) is a UK registered
charity Charity may refer to: Giving * Charitable organization or charity, a non-profit organization whose primary objectives are philanthropy and social well-being of persons * Charity (practice), the practice of being benevolent, giving and sharing * C ...
providing information and advice about
spina bifida Spina bifida (Latin for 'split spine'; SB) is a birth defect in which there is incomplete closing of the spine and the membranes around the spinal cord during early development in pregnancy. There are three main types: spina bifida occulta, men ...
and
hydrocephalus Hydrocephalus is a condition in which an accumulation of cerebrospinal fluid (CSF) occurs within the brain. This typically causes increased pressure inside the skull. Older people may have headaches, double vision, poor balance, urinary inc ...
to individuals, families and carers. Their services are targeted towards: *support to parents before and around the birth of their baby, or diagnosis of the disability *support to the child and family on educational matters *specialised information and help on health matters *helping young people access services to progress towards control of their lives *responding to the needs of adults with spina bifida and/or hydrocephalus. They do this by employing a network of advisers throughout
England England is a country that is part of the United Kingdom. It shares land borders with Wales to its west and Scotland to its north. The Irish Sea lies northwest and the Celtic Sea to the southwest. It is separated from continental Europe b ...
,
Wales Wales ( cy, Cymru ) is a country that is part of the United Kingdom. It is bordered by England to the east, the Irish Sea to the north and west, the Celtic Sea to the south west and the Bristol Channel to the south. It had a population in ...
and
Northern Ireland Northern Ireland ( ga, Tuaisceart Éireann ; sco, label= Ulster-Scots, Norlin Airlann) is a part of the United Kingdom, situated in the north-east of the island of Ireland, that is variously described as a country, province or region. Nort ...
who deliver advice, support and advocacy services. Their staff also include specialist advisers in education, health and continence management. Shine works in partnership with a network of independent affiliated local associations to share information and promote good practice, and to deliver a range of support and specialist services. Advisory committees for medical matters and education are composed of professionals from the relevant fields who offer guidance for ASBAH's services. Shine's work is financed by voluntary donations, trading activities and grants from charitable and corporate trusts. Conductor with spina bifida
Jeffrey Tate Sir Jeffrey Philip Tate (28 April 19432 June 2017) was an English conductor of classical music. Tate was born with spina bifida and had an associated spinal curvature. After studying medicine at the University of Cambridge and beginning a me ...
, CBE, has been their president since 1989. Footballer
Danny Mills Daniel John Mills (born 18 May 1977) is an English former professional footballer best known for his time at Leeds United. His main position was right-back, though he could also play as a centre-back. On 7 August 2009, he announced his retirem ...
is a patron.


References


External links

* {{Official website, www.shinecharity.org.uk Health and disability rights organisations in the United Kingdom Charities for disabled people based in the United Kingdom