List Of Biobanks
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List Of Biobanks
A biobank is a physical place which stores biological specimens. In some cases, participant data is also collected and stored. Access policies details may vary across biobanks but generally involve obtaining ethics approval from institutional review boards (IRB) and scientific review or peer review Peer review is the evaluation of work by one or more people with similar competencies as the producers of the work (peers). It functions as a form of self-regulation by qualified members of a profession within the relevant field. Peer review ... approval from the institutions under which the biobanks operate as well as Ethics approval from the institutions where the research projects will be undertaken. The samples and data are safeguarded so that researchers can use them in experiments deemed adequate. This article contains a list of biobanks. Classification Biobanks can be classified in several ways. Some examples of how they can be classified is by their controlling entit ...
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Biobank
A biobank is a type of biorepository that stores biological samples (usually human) for use in research. Biobanks have become an important resource in medical research, supporting many types of contemporary research like genomics and personalized medicine. Biobanks can give researchers access to data representing a large number of people. Samples in biobanks and the data derived from those samples can often be used by multiple researchers for cross purpose research studies. For example, many diseases are associated with single-nucleotide polymorphisms. Genome-wide association studies using data from tens or hundreds of thousands of individuals can identify these genetic associations as potential disease biomarkers. Many researchers struggled to acquire sufficient samples prior to the advent of biobanks. Biobanks have provoked questions on privacy, research ethics, and medical ethics. Viewpoints on what constitutes appropriate biobank ethics diverge. However, a consensus has bee ...
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CARTaGENE Biobank
CARTaGENE is a population based cohort based on an ongoing and long-term health study of 40, 000 men and women in Québec. It is a regional cohort member of the Canadian Partnership for Tomorrow's Health (CanPath). The project's core mandate is to identify the genetic and environmental causes of common chronic diseases affecting the Québec population. The overall objective from a public health perspective is to develop personalized medicine and public policy initiatives targeting high-risk groups. CARTaGENE is under the scientific direction of Sébastien Jacquemont, M.D., Ekaterini Kritikou, Ph.D. and Philippe Broët, M.D. Ph.D., of the Sainte-Justine Children's Hospital University Health Center. Based in Montréal Québec, Canada, CARTaGENE is operated under the infrastructure of the Sainte-Justine Children's Hospital University Health Center and has seen funding from Genome Canada, the Canadian Foundation for Innovation and Génome Québec and the Canadian Partnership Agains ...
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NHS Scotland
NHS Scotland, sometimes styled NHSScotland, is the publicly funded healthcare system in Scotland and one of the four systems that make up the National Health Service in the United Kingdom. It operates 14 territorial NHS boards across Scotland, 7 special non-geographic health boards, and NHS Health Scotland. At the founding of the National Health Service in the United Kingdom, three separate institutions were created in Scotland, England and Wales and Northern Ireland. The NHS in Scotland was accountable to the Secretary of State for Scotland rather than the Secretary of State for Health as in England and Wales. Prior to 1948, a publicly funded healthcare system, the Highlands and Islands Medical Service, had been established in Scotland in 1913, recognising the geographical and demographic challenges of delivering healthcare in that region. Following Scottish devolution in 1999, health and social care policy and funding became devolved to the Scottish Parliament. It is curren ...
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Generation Scotland
Generation Scotland is a Biobank, a resource of biological samples and information on health and lifestyle from thousands of volunteer donors in Scotland. The aim of Generation Scotland is to create an ethically sound, family- and population-based infrastructure to identify the genetic basis of common complex diseases. The Generation Scotland concept has been evolving for several years (see Timeline), and now involves three complementary projects, the Scottish Family Health Study GS:SFHS, Genetic Health in the 21st Century GS:21CGH and the Donor DNA Databank GS:3D. Together these projects have recruited a cohort of over 30,000 people. Generation Scotland is establishing multi-disciplinary skills networks in genetic epidemiology, statistical genetics and health informatics. Social scientists have been involved from the start, conducting a public consultation process and addressing ethical, legal and social issues. The output from these projects will be of value to the biomedical ...
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FinnGen
The FinnGen project was launched in 2017 with the aim of collecting biological samples from 500,000 participants in Finland over six years with the aim of improving health through genetic research. This is about 10% of the population. It is hoped that it will be a springboard for better diagnostics and new therapies. It is the key to Finland's Health Sector Growth Strategy for Research and Innovation Activities. Activity It is a public–private partnership between Finnish universities, the National Institute for Health and Welfare, the Finnish Red Cross Blood Service, the biobanks, which are mostly owned by independent hospital districts, hospitals, and pharmaceutical companies including Abbvie, AstraZeneca, Biogen, Celgene, Genentech, GSK, Janssen, Maze Therapeutics, Merck, Novartis, Pfizer, and Sanofi. It has funding of approximately €80 million, some of which has come from the companies. €20 million has come from Business Finland. 500,000 blood samples are to be co ...
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EuroBioBank
EuroBioBank is an organization which manages a network of biobanks in Europe. It provides human DNA, cell, and tissue samples to the scientific community for research on rare diseases. Founding Before the founding of EuroBioBank, researchers typically stored biobank specimens in their own laboratories and used them only for their own work. EuroBioBank allows researchers in many places to all share specimens. Members The following are member biobanks: *EURORDIS *Généthon *Myobank – AFM, Myology Institute France ( Paris ) *3 C-R (Conseil et expertise pour les biobanques) France (Castelginest) *MTCC (Muscle Tissue Culture Collection), University of Munich *DNA biobank of the Department of Molecular Genetics and Diagnostics, National Institute of Environmental Health (NIEH) Hungary *Bank of the National Laboratory for the Genetics of Israeli Populations (NLGIP), Tel-Aviv University *Bank for the Diagnosis and Research of Movement Disorders (MDB), Carlo Besta Neurologica ...
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University Of Tartu
The University of Tartu (UT; et, Tartu Ülikool; la, Universitas Tartuensis) is a university in the city of Tartu in Estonia. It is the national university of Estonia. It is the only classical university in the country, and also its biggest and most prestigious university. It was founded under the name of ''Academia Gustaviana'' in 1632 by Baron Johan Skytte, the Swedish Governors-General, Governor-General (1629–1634) of Swedish Livonia, Swedish Ingria, Ingria, and Karelia (historical province of Finland), Karelia, with the required ratification provided by his long-time friend and former student – from age 7 –, King Gustavus Adolphus of Sweden, Gustavus Adolphus, shortly before the king's death on 6 November in the Battle of Lützen (1632), during the Thirty Years' War (1618–1648). Nearly 14,000 students are at the university, of whom over 1,300 are foreign students. The language of instruction in most curricula is Estonian, some more notable exceptions are taught in ...
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Estonian Genome Project
The Estonian Genome Project is a population-based biological database and biobank which was established in 2000 to improve public health in Estonia. It contains health records and biological specimens from a large percentage of the Estonian population. History In June 2000 the Estonian Genome Foundation introduced the Estonian government to the Estonian Genome Project, and lobbied for legislative changes and government support to make the project possible. The project organizers invited input broadly from many sectors in planning to establish the EGF. The project was also presented as a cultural investment towards strengthening national identity by contributing to global research. At the time, many research teams were organizing similar projects, but this project was projected to be the world's largest. An early goal of the project was to collect biological specimens and health data from 70% of Estonia's population of 1.4 million within its first 10 years. By 2004 the EGF had co ...
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DeCODE Genetics
deCODE genetics ( is, Íslensk erfðagreining) is a biopharmaceutical company based in Reykjavík, Iceland. The company was founded in 1996 by Kári Stefánsson with the aim of using population genetics studies to identify variations in the human genome associated with common diseases, and to apply these discoveries "to develop novel methods to identify, treat and prevent diseases." As of 2019, more than two-thirds of the adult population of Iceland was participating in the company's research efforts, and this "population approach" serves as a model for large-scale precision medicine and national genome projects around the world. deCODE is probably best known for its discoveries in human genetics, published in major scientific journals and widely reported in the international media. But it has also made pioneering contributions to the realization of precision medicine more broadly, through public engagement in large-scale scientific research; the development of DNA-based disease ...
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DeCODE Genetics
deCODE genetics ( is, Íslensk erfðagreining) is a biopharmaceutical company based in Reykjavík, Iceland. The company was founded in 1996 by Kári Stefánsson with the aim of using population genetics studies to identify variations in the human genome associated with common diseases, and to apply these discoveries "to develop novel methods to identify, treat and prevent diseases." As of 2019, more than two-thirds of the adult population of Iceland was participating in the company's research efforts, and this "population approach" serves as a model for large-scale precision medicine and national genome projects around the world. deCODE is probably best known for its discoveries in human genetics, published in major scientific journals and widely reported in the international media. But it has also made pioneering contributions to the realization of precision medicine more broadly, through public engagement in large-scale scientific research; the development of DNA-based disease ...
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Stem Cell
In multicellular organisms, stem cells are undifferentiated or partially differentiated cells that can differentiate into various types of cells and proliferate indefinitely to produce more of the same stem cell. They are the earliest type of cell in a cell lineage. They are found in both embryonic and adult organisms, but they have slightly different properties in each. They are usually distinguished from progenitor cells, which cannot divide indefinitely, and precursor or blast cells, which are usually committed to differentiating into one cell type. In mammals, roughly 50–150 cells make up the inner cell mass during the blastocyst stage of embryonic development, around days 5–14. These have stem-cell capability. ''In vivo'', they eventually differentiate into all of the body's cell types (making them pluripotent). This process starts with the differentiation into the three germ layers – the ectoderm, mesoderm and endoderm – at the gastrulation stage. However ...
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Coriell Institute For Medical Research
The Coriell Institute for Medical Research is an independent, non-profit biomedical research center dedicated to the study of the human genome. Coriell features programs in biobanking, personalized medicine, cell biology, cytogenetics, genotyping, and induced pluripotent stem cell science. Located in downtown Camden, New Jersey, the Institute has partnered with several prominent state and national health leaders, including Cooper University Hospital, the Cooper Medical School of Rowan University, the United States Air Force, the University of Pennsylvania, and Stanford University. History Coriell Institute was chartered in 1953 as the South Jersey Medical Research Foundation Laboratory and constructed facilities in 1956. The laboratory was later named for director Lewis L. Coriell, who had worked at the Camden Municipal Hospital and developed aseptic tissue culture techniques that ultimately allowed poliovirus to be grown in culture. Dr. Coriell also led the field trials for the ...
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