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Rare Disease Day
Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. The European Organisation for Rare Diseases established the day in 2008 to raise awareness for unknown or overlooked illnesses. According to that organization, treatment for many rare diseases is insufficient, as are the social networks to support individuals with rare diseases and their families; furthermore, while there were already numerous days dedicated to individuals with specific diseases (such as AIDS, cancer, etc.), there had previously not been a day for representing those affected by rare diseases. In 2009, Rare Disease Day went global as the National Organization for Rare Disorders mobilized 200 rare disease patient advocacy organizations in the United States while organizations in China, Australia, Taiwan, and Latin America also lead efforts in their resp ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Rare Diseases
A rare disease is any disease that affects a small percentage of the population. In some parts of the world, an orphan disease is a rare disease whose rarity means there is a lack of a market large enough to gain support and resources for discovering treatments for it, except by the government granting economically advantageous conditions to creating and selling such treatments. Orphan drugs are ones so created or sold. Most rare diseases are genetic and thus are present throughout the person's entire life, even if symptoms do not immediately appear. Many rare diseases appear early in life, and about 30% of children with rare diseases will die before reaching their fifth birthdays. With only four diagnosed patients in 27 years, ribose-5-phosphate isomerase deficiency is considered the rarest known genetic disease. No single cut-off number has been agreed upon for which a disease is considered rare. A disease may be considered rare in one part of the world, or in a particular gro ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Non-profit Organizations
A nonprofit organization (NPO) or non-profit organisation, also known as a non-business entity, not-for-profit organization, or nonprofit institution, is a legal entity organized and operated for a collective, public or social benefit, in contrast with an entity that operates as a business aiming to generate a Profit (accounting), profit for its owners. A nonprofit is subject to the non-distribution constraint: any revenues that exceed expenses must be committed to the organization's purpose, not taken by private parties. An array of organizations are nonprofit, including some political organizations, schools, business associations, churches, social clubs, and consumer cooperatives. Nonprofit entities may seek approval from governments to be Tax exemption, tax-exempt, and some may also qualify to receive tax-deductible contributions, but an entity may incorporate as a nonprofit entity without securing tax-exempt status. Key aspects of nonprofits are accountability, trustworth ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
February Observances
February is the second month of the year in the Julian and Gregorian calendars. The month has 28 days in common years or 29 in leap years, with the 29th day being called the ''leap day''. It is the first of five months not to have 31 days (the other four being April, June, September, and November) and the only one to have fewer than 30 days. February is the third and last month of meteorological winter in the Northern Hemisphere. In the Southern Hemisphere, February is the third and last month of meteorological summer (being the seasonal equivalent of what is August in the Northern Hemisphere). Pronunciation "February" is pronounced in several different ways. The beginning of the word is commonly pronounced either as or ; many people drop the first "r", replacing it with , as if it were spelled "Febuary". This comes about by analogy with "January" (), as well as by a dissimilation effect whereby having two "r"s close to each other causes one to change. The ending of th ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
World Health Observances
International Observances denote a period to observe an issue of international interest or concern. Many of these observances have been established by the United Nations General Assembly, United Nations Economic and Social Council or World Health Organization. World Health Observances mark a period which is often used to promote an issue and mobilize for action. Below follows a list of days and months which have been denoted as health related observances. January * 4 January - World Braille Day * 30 January - World Leprosy Day February *World Cancer Day *World Day of the Sick *International Childhood Cancer Day *Rare Disease Day March *World Tuberculosis Day April *World Health Day *World Parkinson’s Awareness Day *European Patients Rights Day *World Chagas Disease Day *World Malaria DayTesticular Cancer Awareness Month*World Immunization Week May *European Cancer Prevention Week June * International Day for Protection of Children * World Blood Donor Day Men’s Health Mont ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
EURORDIS
The European Organisation for Rare Diseases (EURORDIS) is a non-governmental patient-driven alliance of patient organizations and individuals active in the field of rare diseases, that promotes research on rare diseases and commercial development of orphan drugs. EURORDIS is dedicated to improving the quality of life of all people living with rare diseases in Europe. It was founded in 1997; it is supported by its members and by the French Muscular Dystrophy Association (AFM), the European Commission, corporate foundations and the health industry. There are an estimated 20–30 million people living with rare diseases in Europe alone, and an estimated 6,000 rare diseases. EURORDIS represents more than 960 rare disease organisations in 63 different countries (of which 26 are EU Member States), covering more than 2,000 rare diseases. EURORDIS is a development of the patient self-advocacy movement, itself widely attributed to AIDS activism. EURORDIS was the founding partner of Rare D ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Derby Evening Telegraph
The ''Derby Telegraph'', formerly the ''Derby Evening Telegraph'', is a daily tabloid newspaper distributed in the Derby area of England. Stories produced by the Derby Telegraph team are published online under the Derbyshire Live brand. History In 1857, Richard Keene was publishing the ''Derby Telegraph'' every Saturday. His business was in the Irongate district of Derby. His family was to include Alfred John Keene who was a local painter whose work is displayed in the Derby Art Gallery. Another paper was first published in 1879 by Eliza Pike. It was known at the time as the ''Derby Daily Telegraph'' and was a four-page broadsheet which cost a halfpenny. Historical copies of the ''Derby Daily Telegraph'', dating back to 1879, are available to search and view in digitised form at The British Newspaper Archive. The first editor was W.J. Piper who stayed in the post until he died in 1918. He was succeeded by William Gilman who in 1927, saw the paper sold three times in a series ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
PR Newswire
PR Newswire is a distributor of press releases headquartered in Chicago. The service was created in 1954 to allow companies to electronically send press releases to news organizations, using teleprinters at first. The founder, Herbert Muschel, operated the service from his house in Manhattan for approximately 15 years. The business was eventually sold to Western Union and then United Newspapers of London. In December 2015, Cision Inc. announced it would acquire the company. On January 1, 2021, Cision formally merged PR Newswire into the company, ending its status as a legal entity after 66 years. Cision plans to continue utilizing the brand name for the foreseeable future in the United States, as well as in Europe and the Asia-Pacific regions. History PR Newswire was founded in March 1954 by Herbert Muschel, who ran the business from his town house in New York City for the first 15 years of its operation. The company used telecommunications lines and teleprinters owned by Weste ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Mystery Diagnosis
''Mystery Diagnosis'' is a television docudrama series that aired on Oprah Winfrey Network, OWN: Oprah Winfrey Network. Each episode focuses on two or more individuals who have struggled with obscure medical ailments, and their quest for a diagnosis. The program details the patients' and doctors' difficulty in pinpointing a diagnosis; often due to nonspecific symptoms, masquerading syndromes, the rarity of the condition or disease, or the patient's case being an unusual manifestation of said condition or disease. The series debuted on Discovery Health Channel in 2005, and was continued when the Oprah Winfrey Network replaced Discovery Health on January 1, 2011. The last season premiered January 5, 2011. Description Each episode tells the stories of two patients who experienced difficult to diagnose medical conditions. Each segment generally begins with a short description of the patient's life before they fell ill (or in the case of a young child, the parents' life before the chi ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
The Discovery Channel
Discovery Channel (known as The Discovery Channel from 1985 to 1995, and often referred to as simply Discovery) is an American cable channel owned by Warner Bros. Discovery, a publicly traded company run by CEO David Zaslav. , Discovery Channel was the third most widely distributed subscription channel in the United States, behind now-sibling channel TBS and The Weather Channel; it is available in 409 million households worldwide, through its U.S. flagship channel and its various owned or licensed television channels internationally. It initially provided documentary television programming focused primarily on popular science, technology, and history, but by the 2010s had expanded into reality television and pseudo-scientific entertainment. , Discovery Channel is available to approximately 88,589,000 pay television households in the United States. History John Hendricks founded the channel and its parent company, Cable Educational Network Inc., in 1982. Several investor ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Evan Harris
Evan Leslie Harris (born 21 October 1965) is a British Liberal Democrat politician. He was the Member of Parliament (MP) for Oxford West and Abingdon from 1997 to 2010, losing his seat in the 2010 general election by 176 votes to Conservative Nicola Blackwood. Since 2011 he has been the joint executive director of Hacked Off, the campaign for an accountable press. Early life and career Evan Harris was born on 21 October 1965 in Sheffield, West Riding of Yorkshire, the son of South African Jewish parents (his father was a medical professor). He was brought up in Liverpool, where he had a state education at the Liverpool Blue Coat School. In 1984 he won a scholarship to the independent Harvard-Westlake School in Los Angeles, California, and later won a scholarship to attend Wadham College, Oxford, where he was awarded a Bachelor of Arts degree in physiology and a diploma in medical sociology. He completed his education at the Oxford Medical School, where he graduated BM BCh and ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
Physical Medicine And Rehabilitation
Physical medicine and rehabilitation, also known as physiatry, is a branch of medicine that aims to enhance and restore functional ability and quality of life to people with physical impairments or disabilities. This can include conditions such as spinal cord injuries, brain injuries, strokes, as well as pain or disability due to muscle, ligament or nerve damage. A physician having completed training in this field may be referred to as a physiatrist. Scope of the field Physical medicine and rehabilitation encompasses a variety of clinical settings and patient populations. In hospital settings, physiatrists commonly treat patients who have had an amputation, spinal cord injury, stroke, traumatic brain injury, and other debilitating injuries or conditions. In treating these patients, physiatrists lead an interdisciplinary team of physical, occupational, recreational and speech therapists, nurses, psychologists, and social workers. In outpatient settings, physiatrists treat pa ... [...More Info...] [...Related Items...] OR: [Wikipedia] [Google] [Baidu] |
