Huntington's Disease Association
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Huntington's Disease Association
The Huntington's Disease Association (HDA) is a charity that supports people in England and Wales affected by the genetic neurodegenerative brain condition Huntington's disease (HD). The HDA was founded in 1986 and is based in Liverpool. It supports a network of regional care advisors who offer care and support to people with and at risk of Huntington's disease and their families. The HDA also has a research programme that supports scientific and social research into HD. It has worked to establish and support a network of multidisciplinary clinics for HD patients in the UK. The charity was instrumental in the 2010 launch of an All-Party Parliamentary Group for Huntington's disease in the UK Parliament, chaired by Lord Walton of Detchant, and 2010 research revealing that the prevalence of HD is much higher than previously thought. The HDA won the 2005 UK Charity Award for healthcare and medical research and the 2005 National Health Service (NHS) Health and Social Care Award fo ...
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Liverpool
Liverpool is a city and metropolitan borough in Merseyside, England. With a population of in 2019, it is the 10th largest English district by population and its metropolitan area is the fifth largest in the United Kingdom, with a population of 2.24 million. On the eastern side of the Mersey Estuary, Liverpool historically lay within the ancient hundred of West Derby in the county of Lancashire. It became a borough in 1207, a city in 1880, and a county borough independent of the newly-created Lancashire County Council in 1889. Its growth as a major port was paralleled by the expansion of the city throughout the Industrial Revolution. Along with general cargo, freight, and raw materials such as coal and cotton, merchants were involved in the slave trade. In the 19th century, Liverpool was a major port of departure for English and Irish emigrants to North America. It was also home to both the Cunard and White Star Lines, and was the port of registry of the ocean li ...
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All-Party Parliamentary Group
An all-party parliamentary group (APPG) is a grouping in the Parliament of the United Kingdom that is composed of members of parliament from all political parties, but have no official status within Parliament. Description and functions All-party parliamentary groups are informal cross-party groups of members of the House of Commons and the House of Lords and have no official status within Parliament. APPGs generally have officers drawn from the major political parties from both houses. APPG members meet to discuss a particular issue of concern and explore relevant issues relating to their topic. APPGs regularly examine issues of policy relating to a particular areas, discussing new developments, inviting stakeholders and government ministers to speak at their meetings, and holding inquiries into a pertinent matter. APPGs have no formal place in the legislature, but are an effective way of bringing together parliamentarians and interested stakeholders. Every APPG must hold at lea ...
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Scottish Huntington's Association
Scottish Huntington's Association, also known as SHA, is a registered charity located in Scotland that supports families impacted by the degenerative brain condition Huntington’s disease. Its headquarters is in Paisley. History and operation The charity was established in 1989 by families for families living with Huntington's disease and its chief executive is Alistair Haw. It works with the NHS and other agencies to co-ordinate a national plan for delivery of services to Huntington's patients and their families. It is also a member of the Neurological Alliance of Scotland. The charity funds nine specialist services across Scotland's regions to assist with access to nursing, welfare and other support. It has been estimated that 16 in every 100,000 people in Scotland are living with the illness and the charity has reported an increase in referrals in recent years. The charity also delivers youth services to young people who may be affected by the disease and works to raise awar ...
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National Health Service (England)
The National Health Service (NHS) is the Publicly funded health care, publicly funded healthcare system in England, and one of the four National Health Service systems in the United Kingdom. It is the second largest single-payer healthcare system in the world after the Brazilian Sistema Único de Saúde. Primarily funded by the government from general taxation (plus a small amount from National Insurance contributions), and overseen by the Department of Health and Social Care, the NHS provides healthcare to all legal English residents and residents from other regions of the UK, with most services free at the point of use for most people. The NHS also conducts research through the National Institute for Health and Care Research (NIHR). Free healthcare at the point of use comes from the core principles at the founding of the National Health Service. The 1942 Beveridge cross-party report established the principles of the NHS which was implemented by the Attlee ministry, Labour ...
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UK Charity Awards
The UK Charity Awards are annual awards for outstanding achievements within the UK not-for-profit sector. Categories reflect the management of charities and not-for-profits, and awards are made to individuals, departments and whole organizations. Past individual winners have included Lord Rix and Richard Curtis, both for the Lifetime Achievement Award. The event is hosted by ''Charity Times'' magazine, with help from BBC Training and Development and The Community Channel, as well as commercial sponsors. External links * http://www.charitytimes.com/awards Charity Awards Awards An award, sometimes called a distinction, is something given to a recipient as a token of recognition of excellence in a certain field. When the token is a medal, ribbon or other item designed for wearing, it is known as a decoration. An award ...
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Prevalence
In epidemiology, prevalence is the proportion of a particular population found to be affected by a medical condition (typically a disease or a risk factor such as smoking or seatbelt use) at a specific time. It is derived by comparing the number of people found to have the condition with the total number of people studied and is usually expressed as a fraction, a percentage, or the number of cases per 10,000 or 100,000 people. Prevalence is most often used in questionnaire studies. Difference between prevalence and incidence Prevalence is the number of disease cases ''present ''in a particular population at a given time, whereas incidence is the number of new cases that ''develop '' during a specified time period. Prevalence answers "How many people have this disease right now?" or "How many people have had this disease during this time period?". Incidence answers "How many people acquired the disease uring a specified time period". However, mathematically, prevalence is propor ...
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Lord Walton Of Detchant
John Nicholas Walton, Baron Walton of Detchant (16 September 1922 – 21 April 2016) was a British neuroscientist, academic, and life peer who sat in the House of Lords as a crossbencher. Life Lord Walton qualified from Durham University College of Medicine and completed his MD at Newcastle Medical School. Walton was President of the British Medical Association (BMA) from 1980 to 1982, President of the General Medical Council (GMC) 1982-89 and President of the Royal Society of Medicine from 1984 to 1986. He was also appointed second Warden of Green College, Oxford in 1983, where he stayed until 1989. Green College merged with Templeton College, Oxford in 2008 to become Green Templeton College, located on the site that was previously Green College. Having been knighted in 1979, Walton was created a life peer on 24 July 1989 as Baron Walton of Detchant, ''of Detchant in the County of Northumberland'' and sat as a crossbencher. In 1992 he became a member of the Science and Tech ...
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UK Parliament
The Parliament of the United Kingdom is the supreme legislative body of the United Kingdom, the Crown Dependencies and the British Overseas Territories. It meets at the Palace of Westminster, London. It alone possesses legislative supremacy and thereby ultimate power over all other political bodies in the UK and the overseas territories. Parliament is bicameral but has three parts, consisting of the sovereign ( King-in-Parliament), the House of Lords, and the House of Commons (the primary chamber). In theory, power is officially vested in the King-in-Parliament. However, the Crown normally acts on the advice of the prime minister, and the powers of the House of Lords are limited to only delaying legislation; thus power is ''de facto'' vested in the House of Commons. The House of Commons is an elected chamber with elections to 650 single-member constituencies held at least every five years under the first-past-the-post system. By constitutional convention, all governmen ...
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Multidisciplinary
Interdisciplinarity or interdisciplinary studies involves the combination of multiple academic disciplines into one activity (e.g., a research project). It draws knowledge from several other fields like sociology, anthropology, psychology, economics, etc. It is about creating something by thinking across boundaries. It is related to an ''interdiscipline'' or an ''interdisciplinary field,'' which is an organizational unit that crosses traditional boundaries between Outline of academic disciplines, academic disciplines or School of thought, schools of thought, as new needs and professions emerge. Large engineering teams are usually interdisciplinary, as a power station or mobile phone or other project requires the melding of several specialties. However, the term "interdisciplinary" is sometimes confined to academic settings. The term ''interdisciplinary'' is applied within education and training pedagogies to describe studies that use methods and insights of several establishe ...
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Tony Hadley
Anthony Patrick Hadley (born 2 June 1960) is an English pop singer. He rose to fame in the 1980s as the lead singer of the new wave band Spandau Ballet and launched a solo career following the group's split in 1990. Hadley returned to the band in 2009 but left again in 2017. Hadley is known for his "expressive voice" and "vocal range". Early life Anthony Patrick Hadley was born the first of three children at the Royal Free Hospital in Islington, North London. He has a sister, Lee, and a brother, Steve. His father, Patrick Hadley, worked as an electrical engineer for the ''Daily Mail'', and his mother, Josephine, worked for the local health authority. Spandau Ballet Hadley co-founded Spandau Ballet in 1976 as The Cut, with Gary Kemp, Steve Norman, John Keeble and Michael Ellison, all of whom were students at Dame Alice Owen's Grammar School. As a member of Spandau Ballet, Hadley went on to enjoy international success in the 1980s, including hits such as "True", "Gold" and ...
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Huntington's Disease
Huntington's disease (HD), also known as Huntington's chorea, is a neurodegenerative disease that is mostly inherited. The earliest symptoms are often subtle problems with mood or mental abilities. A general lack of coordination and an unsteady gait often follow. It is also a basal ganglia disease causing a hyperkinetic movement disorder known as chorea. As the disease advances, uncoordinated, involuntary body movements of chorea become more apparent. Physical abilities gradually worsen until coordinated movement becomes difficult and the person is unable to talk. Mental abilities generally decline into dementia. The specific symptoms vary somewhat between people. Symptoms usually begin between 30 and 50 years of age but can start at any age. The disease may develop earlier in each successive generation. About eight percent of cases start before the age of 20 years, and are known as ''juvenile HD'', which typically present with the slow movement symptoms of Parkinson's d ...
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Neurodegeneration
A neurodegenerative disease is caused by the progressive loss of structure or function of neurons, in the process known as neurodegeneration. Such neuronal damage may ultimately involve cell death. Neurodegenerative diseases include amyotrophic lateral sclerosis, multiple sclerosis, Parkinson's disease, Alzheimer's disease, Huntington's disease, multiple system atrophy, and prion diseases. Neurodegeneration can be found in the brain at many different levels of neuronal circuitry, ranging from molecular to systemic. Because there is no known way to reverse the progressive degeneration of neurons, these diseases are considered to be incurable; however research has shown that the two major contributing factors to neurodegeneration are oxidative stress and inflammation. Biomedical research has revealed many similarities between these diseases at the subcellular level, including atypical protein assemblies (like proteinopathy) and induced cell death. These similarities suggest that ...
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