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Center For Independent Living
Independent living (IL), as seen by its advocates, is a philosophy, a way of looking at society and disability, and a worldwide movement of disabled people working for equal opportunities, self-determination, and self-respect. In the context of eldercare, independent living is seen as a step in the continuum of care, with assisted living being the next step. In most countries, proponents of the Independent Living Movement claim preconceived notions and a predominantly medical view of disability contribute to negative attitudes towards people with disabilities, portraying them as sick, defective and deviant persons, as objects of professional intervention, or as a burden for themselves and their families. These images have consequences for disabled people's opportunities for raising families of their own, getting education and work, which may result in persons with disabilities living in poverty. The alternative to the Medical Model of Disability is the Social Model of Disabili ...
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Advocate
An advocate is a professional in the field of law. Different countries' legal systems use the term with somewhat differing meanings. The broad equivalent in many English law–based jurisdictions could be a barrister or a solicitor. However, in Scottish, Manx, South African, Italian, French, Spanish, Portuguese, Scandinavian, Polish, Israeli, South Asian and South American jurisdictions, "Advocate" indicates a lawyer of superior classification. "Advocate" is in some languages an honorific for lawyers, such as " Adv. Sir Alberico Gentili". "Advocate" also has the everyday meaning of speaking out to help someone else, such as patient advocacy or the support expected from an elected politician; this article does not cover those senses. Europe United Kingdom and Crown dependencies England and Wales In England and Wales, Advocates and proctors practiced civil law in the Admiralty Courts and also, but in England only, in the ecclesiastical courts of the Church of England, ...
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Paradigm
In science and philosophy, a paradigm () is a distinct set of concepts or thought patterns, including theories, research methods, postulates, and standards for what constitute legitimate contributions to a field. Etymology ''Paradigm'' comes from Greek παράδειγμα (''paradeigma''), "pattern, example, sample" from the verb παραδείκνυμι (''paradeiknumi''), "exhibit, represent, expose" and that from παρά (''para''), "beside, beyond" and δείκνυμι (''deiknumi''), "to show, to point out". In classical (Greek-based) rhetoric, a paradeigma aims to provide an audience with an illustration of a similar occurrence. This illustration is not meant to take the audience to a conclusion, however it is used to help guide them get there. One way of how a ''paradeigma'' is meant to guide an audience would be exemplified by the role of a personal accountant. It is not the job of a personal accountant to tell a client exactly what (and what not) to spend money on ...
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Deinstitutionalisation
Deinstitutionalisation (or deinstitutionalization) is the process of replacing long-stay psychiatric hospitals with less isolated community mental health services for those diagnosed with a mental disorder or developmental disability. In the late 20th century, it led to the closure of many psychiatric hospitals, as patients were increasingly cared for at home, in halfway houses and clinics, in regular hospitals, or not at all. Deinstitutionalisation works in two ways. The first focuses on reducing the population size of mental institutions by releasing patients, shortening stays, and reducing both admissions and readmission rates. The second focuses on reforming psychiatric care to reduce (or avoid encouraging) feelings of dependency, hopelessness and other behaviors that make it hard for patients to adjust to a life outside of care. The modern deinstitutionalisation movement was made possible by the discovery of psychiatric drugs in the mid-20th century, which could manage psych ...
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Americans With Disabilities
Americans with disabilities are a significant minority group in the United States, making up a fifth of the overall population and over half of Americans older than eighty. There is a complex history underlying the United States and its relationship with its disabled population, with great progress being made in the last century to improve the livelihood of disabled citizens through legislation providing protections and benefits. Most notably, the Americans with Disabilities Act is a comprehensive anti-discrimination policy that works to protect Americans with disabilities in public settings and the workplace. Definitions According to the Social Security Advisory Board, when the federal government first began provisioning funds for state-run disability assistance programs, eligible beneficiaries were defined as needing to be "totally and permanently disabled." In 1956, this definition was expanded by the Disability Insurance Program to describe disability as the "inability to enga ...
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Direct Payments
The Direct Payments scheme is a UK Government initiative in the field of Social Services that gives users money directly to pay for their own care, rather than the traditional route of a Local Government Authority providing care for them. The Cabinet Office Strategy Unit calls direct payments "the most successful public policy in the area of social care". Direct Payments are seen as making an important contribution to the independence, well being and quality of life of people with disabilities. When introduced, they were seen as a victory for the rights of disabled people.Pearson, C. (ed) (2006) ''Direct Payments and Personalisation of Care'', Edinburgh, Dunedin Academic Press, Development Direct Payments were set up with the Community Care (Direct Payments) Act (1996) which came into force in April 1997 and was initially available only to a specific subsection of people qualifying for social care. The Act gave local authorities in Britain and Northern Ireland, the powers to mak ...
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Assistive Technology
Assistive technology (AT) is a term for assistive, adaptive, and rehabilitative devices for people with disabilities and the elderly. Disabled people often have difficulty performing activities of daily living (ADLs) independently, or even with assistance. ADLs are self-care activities that include toileting, mobility (ambulation), eating, bathing, dressing, grooming, and personal device care. Assistive technology can ameliorate the effects of disabilities that limit the ability to perform ADLs. Assistive technology promotes greater independence by enabling people to perform tasks they were formerly unable to accomplish, or had great difficulty accomplishing, by providing enhancements to, or changing methods of interacting with, the technology needed to accomplish such tasks. For example, wheelchairs provide independent mobility for those who cannot walk, while assistive eating devices can enable people who cannot feed themselves to do so. Due to assistive technology, disabled pe ...
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Universal Design
Universal design is the design of buildings, products or environments to make them accessible to people, regardless of age, disability or other factors. It addresses common barriers to participation by creating things that can be used by the maximum number of people possible. Curb cuts or sidewalk ramps, which are essential for people in wheelchairs but also used by all, are a common example of universal design. The term ''universal design'' was coined by the architect Ronald Mace to describe the concept of designing all products and the built environment to be aesthetic and usable to the greatest extent possible by everyone, regardless of their age, ability, or status in life. However, due to some people having unusual or conflicting access needs, such as a person with low vision needing bright light and a person with photophobia needing dim light, universal design does not address absolutely every need for every person in every situation. Universal design emerged from sli ...
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Paternalistic
Paternalism is action that limits a person's or group's liberty or autonomy and is intended to promote their own good. Paternalism can also imply that the behavior is against or regardless of the will of a person, or also that the behavior expresses an attitude of superiority. Paternalism, paternalistic and paternalist have all been used as a pejorative for example in the context of societal and/or political realms and references. Some such as John Stuart Mill think paternalism to be appropriate towards children, saying: Paternalism towards adults is sometimes thought of as treating them as if they were children. Etymology The word ''paternalism'' derives from the adjective ''paternal'', which entered the English language in the 15th century from Old French ''paternel'' (cf. Old Occitan ''paternal'', as in Catalan, Spanish and Portuguese), itself from Medieval Latin ''paternalis''. The classical Latin equivalent was ''paternus'' "fatherly", from ''pater'' "father". Types ...
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Iron Lung
An iron lung is a type of negative pressure ventilator (NPV), a mechanical respirator which encloses most of a person's body, and varies the air pressure in the enclosed space, to stimulate breathing.Shneerson, Dr. John M., Newmarket General Hospital, ( Newmarket, Suffolk, U.K.)"Non-invasive and domiciliary ventilation: negative pressure techniques,"#5 of series "Assisted ventilation" in ''Thorax,'' 1991;46:131–35, retrieved April 12, 2020Rockoff, Mark, M.D."The Iron Lung and Polio," video (8 minutes), January 11, 2016, OPENPediatrics and Boston Children's Hospital on YouTube, retrieved April 11, 2020 (historical background and images, explanatory diagrams, and live demonstrations)Jackson, Christopher D., MD, Dept. of Internal Medicine, and Muthiah P Muthiah, MD, FCCP, D-ABSM, Assoc. Prof. of Medicine, Div. of Pulmonary / Critical Care / Sleep Medicine, Univ. of Tennessee College of Medicine-Memphis, et.al."What is the background of the iron lung form of mechanical ventilat ...
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Lex Frieden
Lex Frieden (born March 5, 1949) is an American educator, researcher, disability policy expert and disability rights activist. Frieden has been called "a chief architect of the Americans with Disabilities Act." He is also regarded as a founder and leader of the independent living movement by people with disabilities in the U.S. Biography Lex Frieden was born in Alva, Oklahoma, a rural community in northwestern Oklahoma. He graduated from Alva Senior High School in 1967 and began studying electrical engineering at Oklahoma State University. It was as a freshman that he sustained a spinal cord injury in an automobile accident. As part of his rehabilitation from that injury, he went to TIRR Memorial Hermann in Houston, where he met Dr. William A. Spencer, the rehabilitation medicine visionary. Dr. Spencer became Lex's mentor. Public service Frieden's service in the 1970s included membership on a Congressional task force on science, technology and disability empaneled by Olin E. Te ...
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Peg Nosek
Margaret Ann "Peg" Nosek (January 25, 1952 – November 21, 2020) was an American academic and disability rights activist based in Houston, Texas. Early life and education Nosek was born in Schenectady, New York, the daughter of Stanley Michael Nosek and Regina Ann Nosek (née Bernatowicz). Her father was a mechanical engineer."Obituary: Margaret Ann Nosek"
''ACRM'' (November 25, 2020).
She was diagnosed at age 2 with a progressive form of spinal muscular atrophy, and used a wheelchair. She was raised in Ohio, and graduated from